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earthtoneNJ

"But You Can Eat Whole Wheat, Right?"

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I saw a sign today advertising for a homemade specialty bread store. I scanned the list of what they make to see if they had any gluten free bread. No such luck, but the last product they listed was "Spelt bread for people with Wheat allergies" :o


A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

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I saw a sign today advertising for a homemade specialty bread store. I scanned the list of what they make to see if they had any gluten free bread. No such luck, but the last product they listed was "Spelt bread for people with Wheat allergies" :o

Depending on what allergenic protein a wheat-allergic person reacts to, spelt might be safe. At least they didn't suggest it as safe for celiacs.

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Depending on what allergenic protein a wheat-allergic person reacts to, spelt might be safe. At least they didn't suggest it as safe for celiacs.

Really? I thought Spelt was just another (older) form of wheat. I thought I saw someone with a wheat allergy post here that they reacted to spelt, so I guess that's where I got confused. Thanks for the info.


A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

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Really? I thought Spelt was just another (older) form of wheat. I thought I saw someone with a wheat allergy post here that they reacted to spelt, so I guess that's where I got confused. Thanks for the info.

Actually I think you are right. Spelt is wheat and I do think someone allergic to or intolerant to wheat would react. But I could of course be wrong.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Depending on what allergenic protein a wheat-allergic person reacts to, spelt might be safe.

This is the way I understand it too. Some people with a wheat allergy can use spelt.

Of course, that does not hold true for Celiacs :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Really? I thought Spelt was just another (older) form of wheat. I thought I saw someone with a wheat allergy post here that they reacted to spelt, so I guess that's where I got confused. Thanks for the info.

It's a varietal of wheat, but not the same species as common wheat(or sub-species; there appears to be some confusion). Some of the proteins in the two species will be identical and someone who reacts to those proteins in common wheat will also react to spelt. However, some of the proteins will be different, and someone who reacts to a protein that is only in common wheat will not react to spelt.

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Spelt contains gluten. It is not identical to modern wheat, but neither is barley or rye. Celiacs must avoid all forms of gluten, including spelt.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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These are so funny. I'm brand new to this board but I can completely relate to this thread. I realized through an elimination diet in March of this year that I'm extremely gluten intolerant and I've also given up dairy which bothers me too. (May re-introduce wheat to get a celiac's diagnosis as I have many classic symptoms but am dreading the process).

Anyhow, I have been scrambling myself to figure out what is safe and not safe (never thought about make up...will have to research that next)

Anytime I travel or eat out I panic...I realize that nobody but me can be trusted when it comes to what foods are safe for me. In a hotel restaurant in Rhode Island I was already crashing from something I ate and was really struggling. There was a risotto on the menu and I asked the waitress to ask the chef if it was dairy free and if there was any soy sauce. I had already learned not to trust the servers. She comes back and says no soy sauce and dairy free. Risotto comes out...in a cheese sauce, which I discovered after taking a big bite. They did comp my meal.

I too have been asked many of the same questions :"You CAN eat white bread though?" and "What do you eat then?"

Honestly I'm eating 100% healthier since I've had to take control of my diet.

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I'm having trouble accepting that my son won't eat as well as I can feed him at school. I am going to start sending him lunch, but since being diagnosed we eat SO healthy. Then he goes to school. I took him to school at lunch time today and saw what they were feeding him...and oh goodness. It made me wish I had fed him before he went to school. Being a Celiac has made everyone in my family healthier.


Diagnosed with Gluten Allergy April 2010. Family history of Celiac disease and bowel cancers. Already feeling a billion times better since going gluten free.

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Here is a conversation I had with my Dad's sister. She's supposed to be a nurse...and supposedly the smart one?!?

ME: I can't eat anything with wheat in it...

HER: Oh. So you can only eat White bread? (I HATE THIS LINE!!!)

ME: No. White bread is just bleached wheat. I can't have any wheat at all...

HER: OK...So how bout this cake mix? *holding up a box of regular betty crocker cake mix*

ME: No. Not that either

HER: Oh. Well, You can still eat Ravioli out of the can right? Or spaghetti from a box?

ME: NO. I have to eat special spaghetti, regular pasta is made from wheat...

HER: Ok. I got it. So you can eat Kraft Mac and Cheese Right?

ME: *head palm* No.

Needless to say I NEVER let her cook for me....

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Here is a conversation I had with my Dad's sister. She's supposed to be a nurse...and supposedly the smart one?!?

ME: I can't eat anything with wheat in it...

HER: Oh. So you can only eat White bread? (I HATE THIS LINE!!!)

ME: No. White bread is just bleached wheat. I can't have any wheat at all...

HER: OK...So how bout this cake mix? *holding up a box of regular betty crocker cake mix*

ME: No. Not that either

HER: Oh. Well, You can still eat Ravioli out of the can right? Or spaghetti from a box?

ME: NO. I have to eat special spaghetti, regular pasta is made from wheat...

HER: Ok. I got it. So you can eat Kraft Mac and Cheese Right?

ME: *head palm* No.

Needless to say I NEVER let her cook for me....

Oh, that's just frightening.

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Here is a conversation I had with my Dad's sister. She's supposed to be a nurse...and supposedly the smart one?!?

ME: I can't eat anything with wheat in it...

HER: Oh. So you can only eat White bread? (I HATE THIS LINE!!!)

ME: No. White bread is just bleached wheat. I can't have any wheat at all...

HER: OK...So how bout this cake mix? *holding up a box of regular betty crocker cake mix*

ME: No. Not that either

HER: Oh. Well, You can still eat Ravioli out of the can right? Or spaghetti from a box?

ME: NO. I have to eat special spaghetti, regular pasta is made from wheat...

HER: Ok. I got it. So you can eat Kraft Mac and Cheese Right?

ME: *head palm* No.

Needless to say I NEVER let her cook for me....

I guess she slept through her nutrition classes. Wow I can't believe a nurse could be that clueless, scarey.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I guess she slept through her nutrition classes. Wow I can't believe a nurse could be that clueless, scarey.

She's one of those foodiots. Ask her where the flour trees grow. You might get an interesting answer. ;)

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I can't believe a nurse could be that clueless

Related story... a friend had gastric bypass surgery and is having trouble with her diet. She suspects she might have lactose intolerance so she called her doctor who said, yogurt and cheese don't have lactose because they're processed so she can go ahead and eat them.

:blink:

I can maybe sort of understand an average person may not know this but a doctor? One who deals with gastric bypass patients who have to drastically change their diets? You'd think they'd be up on basic food intolerance knowledge.


40 year old former foodie on a quest to feel better!

-IgE to oats and rye

-Diagnosed with
Colitis
via endoscopy/colonoscopy Oct '10

-Following
FODMAP
diet since June '10, Positve
SIBO
test, July '10

-Diagnosed
non-celiac gluten intolerant
June '10 (celiac in March '10, endocsocopy in Oct '10 shows no signs of celiac)

-
Osteopenia
June '10

-
Gluten free
since July '09 &
Soy free
since December '09

-
Dairy free
since '06

-
IBS & Sjogren's
diagnosed '05

-
RA
diagnosed as a toddler

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yogurt and hard cheese have very little lactose.....


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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I can maybe sort of understand an average person may not know this but a doctor? One who deals with gastric bypass patients who have to drastically change their diets? You'd think they'd be up on basic food intolerance knowledge.

Doctors....LOL! Even though I have a print out, right on my refrigerator door that tells me the lactose content of "commonly eaten foods", and yogurt is pretty low in lactose, I still eat soy yogurt. Although, I will admit, because of a lack of not-gross cheese substitutes out there, I still indulge in "regular" cheese, with the help of "Lactaid." I tried once to eat a regular yogurt, and got sick as a dog, even with the Lactaid. I guess we are all different, and we all have to make choices about how far we are willing to "push" our diet. Lactose, unlike gluten, does not make my belly extend, which is the symptom I find most painful and annoying. My clothes don't fit, my back hurts, ugh, it's hell. But Lactose...if I screw up its just a few trips to the potty with D. I take 2 lactaid before a sandwich with a slice or two of cheese, and that is fine, but if I am having a "cheese plate" (a common snack with my BF and I...(different cheeses and rice crackers...yum..), I have to take 3 - 4 Lactaid. It's probably better if I avoid 'cheese plate lunch' day, but hey, it's a risk I am willing to take!

You can find out the general amount of lactose in commonly eaten foods. That way, you have a formal, educated answer to the lactose content of food, and you can make your own choices. I found a great table here:http://digestive.niddk.nih.gov/ddiseases/pubs/lactoseintolerance/

They have an excellent chart about half-way down the page. I printed 3 and hung on my fridge, one on bf's fridge, and carry one in my purse. Good luck!


Heather C.

July, 2010: Diagnosed with Celiac Disease via elimination diet and strong Lactose Intolerance via blood work. My symptoms of glutening include 1. extreme abdominal distention, 2. severe abdominal pain, 3. gas, 4. mood swings/generally negative and unpleasant to be around!

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yogurt and hard cheese have very little lactose.....

But very little does not equal none. Besides, he didn't make that distinction so she continued to eat cottage cheese, cream cheese, yogurt, etc.

I'm severely lactose intolerant and been dairy free for a long time so I know my stuff when it comes to lactose, cassein and whey. Lactaid doesn't work for me but I suggested to my friend that she try Lactaid milk or soy milk to see if she feels better.

I don't want to stray too far off topic, just wanted to highlight that nurses and docs can be just as ignorant about food intolerances as anyone else.


40 year old former foodie on a quest to feel better!

-IgE to oats and rye

-Diagnosed with
Colitis
via endoscopy/colonoscopy Oct '10

-Following
FODMAP
diet since June '10, Positve
SIBO
test, July '10

-Diagnosed
non-celiac gluten intolerant
June '10 (celiac in March '10, endocsocopy in Oct '10 shows no signs of celiac)

-
Osteopenia
June '10

-
Gluten free
since July '09 &
Soy free
since December '09

-
Dairy free
since '06

-
IBS & Sjogren's
diagnosed '05

-
RA
diagnosed as a toddler

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But very little does not equal none. Besides, he didn't make that distinction so she continued to eat cottage cheese, cream cheese, yogurt, etc.

Everyone has a different tolerance level. I was severely intolerant of milk, cream, ice cream and frozen yogurt. I could eat cheeses, cream cheese, sour cream, yogurt, butter, without any problem.


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

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Kind of like asking someone who's can not eat shellfish if they can have shrimp if you remove the shell.


1960s-had symptoms-could have been before but don't remember

1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms

Me, dd and ds diagnosed with Lactose Intolerance

2000-osteopenia

2001-had stroke because of medications I was given

June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months

June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)

May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world

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When you have a gastric bypass you lose the part of your intestine that digests lactose. You are told before surgery that you will become lactose intolerant. To me it didn't make any difference since I had been severely lactose intolerant since the age of 18. I'm surprised that the above doctor who performs this surgery for a living wouldn't have informed all of his patient's of this beforehand. ?????

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It's possible that he has had other bypass patients report that cheeses, etc. did not give them issues. I know someone who still drinks milk post-bypass, so I think problems/severity is variable.

If the cheese is properly aged (which almost no cheese is these days) then it should contain no lactose. But that takes years. It's just like dry wine - given the proper conditions and the right starting ingredients, fermentation should continue until all sugars have been consumed.

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Please keep in mind, guys, the conversation you are joining is two years old, and

many of the participants may not be around anymore. Very amusing thread to resurrect

though. :D


If you're going through hell, keep going. ~Winston Churchill

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