Indigestion Celiac And Weight Loss

[sfsassy]

I have posted a few times. I am still in the process of understanding my Celiac. But there have been some new symptoms that I would like to get some opinions on.

I have been gluten free for 3 months now. (Diagnosed with Celiac at that time as well)

Overall, I had great improvement. My foggy hear cleared up. My nausea went away. My D went away. My weight loss stabilized (I lost 15-20 while sick)

In the last 3 weeks I have developed really bad indigestion. I went to the Dr after 1 week of suffering and she said I 1. had some gluten somewhere and it triggered it. 2. I just have indigestion. Maybe from foods or stress. (she mentioned that yes, even if you have Celiac it does not mean you will never have a case of indigestion.)

She started me on a 2 week course of meds to help with the indigestion. (gluten free meds)

Well, 3 weeks into the start I still have really bad indigestion. Most of the day everyday.

In addition to this, I have also had sudden weight loss. ( I was at the same weight for 3 months) Then now it seems like I am dropping a 1 a day and I am not dieting in any way or working out. I am eating normal amounts of food too.

Has anyone else had something like this?

I think I am eating gluten somehow .....or is it casein (I am still doing dairy, but not a lot after these symptoms started)....or is it just something other? Could it just be my body readjusting to my gluten-free life.

I am just trying to "reset".

Thoughts?

[Celiactapper]

For people with celiac, it's common to be reactive or intolerant of other foods. For me, it's soy--lots of indigestion, cramps, diarrhea, and overall sickness. Also, many of us cannot eat iodine, and in some areas, it's present in high concentrations in milk and dairy products (so it may not be the casein...or just the casein). I've found that organic dairy products are fine, though. Try to avoid seafood, iodized salt, chips, crackers, and vegetables high in iodine like asparagus.

Another consideration is that you may have another autoimmune disease as a result of celiac. Have you had your thyroid tested recently? It can suddenly go bad and cause weight loss. Have you had a colonoscopy recently? If not, this might be a good idea, too.

Although symptoms of celiac can wax and wane depending on a number of factors, including stress, it's odd that your symptoms came on suddenly and are lasting so long on a gluten-free diet. Are you certain that your cosmetics (especially lipstick), shampoo, creme rinse, etc., are all gluten free? Is your kitchen shared by someone who can eat gluten, so there is a possibility of contamination? Are your supplements gluten-free?

BTW, from your signature, I'm wondering if you live in San Francisco (??). I live in the East Bay (Martinez) and meet up with gluten-intolerant people through meetup.com on a regular basis in S.F. and Oakland. Feel free to join us! Have you tried Pica Pica, a restaurant in S.F. that serves ONLY gluten-free food? It's great! We oftentimes meet at Mariposa Bakery in Oakland on Saturdays.

Good luck to you!

[sfsassy]

I used to live in SF area. I lived in San Mateo. I move to the midwest. I miss it!!

I wonder the other food sensitivities. My next step is to me hard core and write things down. I wonder if I should do another elimination diet?

As for other conditions: They checked my thyroid when I was undiagnosed with celiac 9 months ago. I have heard that sometimes there is a connection. Perhaps I should have them look again.

I have not had a colonoscopy at all. just the scope the other way. Dr. did a barium x ray in place of at the time ( in scope they also found H Pylori, but it was treated and retested later and I am fine now)

As for cosmetics, I have to be honest. I did not even think of that. Is there a place to check if your brand of lipstick has gluten? I used MAC. (maybe it's that. My house is gluten free. I have my own toaster and everything...cutting boards etc) I do go out to eat a lot.

What other autoimmune diseases are related to celiac?

[sfsassy]

also, iodine has never crossed my mind either. I do eat lots of seafood, sea salt on food too. Where can I read up on this?