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Other Conditions Along With Celiac, Sound Familiar?


cozynana

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cozynana Newbie

I am trying to put all the pieces together. I have had a 2 1/2 year illness. During this period I started the transition of menopause (which seemed to set of the following), had a precancerous uterus and ovaries removed, diagnosed with celiac and trigonitis with interstital cystits symptoms, terrible hormonal flushes and nausea, botched colonoscopy, and terrible fatigue. I also found out I have a very low white blood count, malabsorbtion issues, and do not clear estrogen well and always much sicker around what use to be that time of the month. I am hoping someone else has had something similar and has advice to give about these issues. I am tired of being sick and tired!!!!!!


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cassP Contributor

I am trying to put all the pieces together. I have had a 2 1/2 year illness. During this period I started the transition of menopause (which seemed to set of the following), had a precancerous uterus and ovaries removed, diagnosed with celiac and trigonitis with interstital cystits symptoms, terrible hormonal flushes and nausea, botched colonoscopy, and terrible fatigue. I also found out I have a very low white blood count, malabsorbtion issues, and do not clear estrogen well and always much sicker around what use to be that time of the month. I am hoping someone else has had something similar and has advice to give about these issues. I am tired of being sick and tired!!!!!!

yes- usually a lot of problems or diseases come along with Celiac. or vitamin deficiencies from malabsorption.

i myself, also have Hashimoto's & Grave's... and have often suspected that i would have developed full blown Interstitial Cystitis had i not stopped eating gluten. when i have too much fructose, or when i get accidentally glutened- i get that feeling again- like im getting a bladder infection.

with your fatigue- have u had your thyroid checked???? it's so common to have thyroid issues with gluten intolerance.

also- i would love to hear if other have Low WBCs... i do not, but my best friend & mom recently had the Low WBCs, and i'd like to hear others' input on this.

Takala Enthusiast

Hang in there and stick to the gluten free diet as closely as possible.

Celiac/gluten intolerance goes along with cystic ovaries, fibroids, endometriosis, etc. It also, imo, causes cystitis because mine cleared up completely after I went gluten free. The explanation would be that with properly absorbing minerals, the kidneys filters are no longer tasked with trying to regulate blood calcium the way they had to before and aren't catching all this calcium.

In 2008 I had one enlarged and rogue ovary with a cyst/tumor taken out, the surgeon would have taken everything but I said, no, minimalist, because I knew that if everything goes that means more potential bone loss without the estrogen. I also have reacted so poorly to artificial hormones before in bc pills I had no intention of taking anything else. (natural progesterone cream, for awhile, had helped some but the artificial progest. is a known depressant and very bad stuff.) This relieved a lot of pain symptoms, but made the hot flashes worse. FINALLY this past winter after nearly 3 years, the hot flashes started dying down to where they do not bother me most of the time now.

I wish I had figured out the gluten-free diet need sooner, I could have saved myself many problems.

JustDucky Newbie

Hang in there and stick to the gluten free diet as closely as possible.

Celiac/gluten intolerance goes along with cystic ovaries, fibroids, endometriosis, etc. It also, imo, causes cystitis because mine cleared up completely after I went gluten free. The explanation would be that with properly absorbing minerals, the kidneys filters are no longer tasked with trying to regulate blood calcium the way they had to before and aren't catching all this calcium.

In 2008 I had one enlarged and rogue ovary with a cyst/tumor taken out, the surgeon would have taken everything but I said, no, minimalist, because I knew that if everything goes that means more potential bone loss without the estrogen. I also have reacted so poorly to artificial hormones before in bc pills I had no intention of taking anything else. (natural progesterone cream, for awhile, had helped some but the artificial progest. is a known depressant and very bad stuff.) This relieved a lot of pain symptoms, but made the hot flashes worse. FINALLY this past winter after nearly 3 years, the hot flashes started dying down to where they do not bother me most of the time now.

I wish I had figured out the gluten-free diet need sooner, I could have saved myself many problems.

Wow Takala - I'm a newb, and I didn't know about the endometriosis link - I had an endometrioma surgically removed five years ago. Thanks for the info.

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    • knitty kitty
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    • catnapt
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    • catnapt
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