Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Why Do Some People Feel They *must* Have An Endoscopy?


Monklady123

Recommended Posts

psawyer Proficient

Damage to the villi can also be caused by:

Tropical sprue;

Giardiasis ("beaver fever");

exposure to high levels of radiation;

alcohol abuse.

However, the most common cause by far is celiac disease. The pathologist's examination of the biopsied tissue should identify the cause.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 105
  • Created
  • Last Reply
sandsurfgirl Collaborator

My blood tests were off the chart positive. The docs said you definetly have it. We decided to do an endo & colonoscopy to check the extent of the damage and mostly to make sure there wasn't anything else to deal with.

Now that I understand. Seeing the extent of the damage makes sense. When doctors doubt the blood tests and tell people to keep eating gluten to get an abnormal endoscopy, that irks me.

Link to comment
Share on other sites
mommida Enthusiast

That makes sense to me too. We have Celiacs here that also have Barrett's esophagus, Nutcracker syndrome, and other things to contend with.

You are also establishing a baseline to determine if the gluten free diet is healing the damage.

Link to comment
Share on other sites
Britgirl Rookie

I have had the procedure more than once, and I strongly disagree with your label of "torture."

You fast for a number of hours, and are sedated during the actual procedure. It is painless. The preparation for a colonoscopy is much more involved, and rather unpleasant, but it isn't "torture" either.

And I disagree with you also. My mum has had them every year for the duration of her Celiac. In every case there has either been damage to her throat or the anesthesia didn't take. I know it's not the case for everyone, but still after seeing the result every year, I am glad I managed to avoid it.

Link to comment
Share on other sites
Monklady123 Collaborator

Thanks for all your replies. A very interesting discussion. :)

I guess it makes sense to have the test if there is some concrete reason relating to work or insurance or something like that. (however, personally, if I had to do the gluten challenge I wouldn't be *able* to work).

Well, I had a "borderline" blood test, and that combined with my immediate reaction to going off gluten (and my immediate reaction when I accidentally eat gluten) caused my doctor to say "yep, celiac." I guess she has no actual "proof" but it doesn't bother either one of us. I just tell everyone that I have celiac, which avoids the problem that some of you mentioned of people not taking it seriously if it's "just" gluten intolerance.

I wouldn't be able to leave the house for the duration of the gluten challenge so I'll never be having it! :ph34r:

Link to comment
Share on other sites
mommida Enthusiast

If the endoscopy involved a gluten challenge, I would not do it. Gluten challenges can lead to dehydration and hospitalization for some. Like you said, I would not make it out of the house during a gluten challenge.

Link to comment
Share on other sites
sandsurfgirl Collaborator

My GI doc was just telling me about a thing called "celiac crisis" where gluten induces your body to go wacky, your organs to shut down. He just had a patient in the hospital for an entire month due to celiac crisis. He was telling me to be so careful about gluten, especially since I have adrenal problems. He said be careful about sharing cups with my family even. I already knew that, but I thought it was great that he knew that. I would bet that lots of docs don't even know about celiac crisis and don't think twice about telling people to stay on gluten.

I say if you have to have it, get an endoscopy but go gluten free if you have positive blood tests or positive dietary response. The damage doesn't heal that fast, so if you get the scope quickly, you can still see damage.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

My GI doc was just telling me about a thing called "celiac crisis" where gluten induces your body to go wacky, your organs to shut down. He just had a patient in the hospital for an entire month due to celiac crisis.

With so few doctors concerned about Celiac Disease, I'm surprise there is a definition called a 'celiac crisis'. I'd like to hear more about it.

It was always my understanding that unaddressed Celiac Disease can lead to other issues, and some, if continued to be unaddressed , potentially life threatening issues. Dehydration can be life threatening.

I am certain that his patient has other issues going on. If not, he was REALLY off base with his diagnosis. (wonder if he checked on her hospital food :unsure: )

Link to comment
Share on other sites
ElseB Contributor

Blood tests do NOT have false positives.

Not so. From the Open Original Shared Link:

Causes of false positive celiac serologic tests

The endomysial antibody test is virtually 100% specific for celiac disease. However anti-tTG has been reported to be positive in the presence of liver disease, especially cirrhosis [33], diabetes [34, 35] and severe heart failure [36], as well as arthritis [37] and various autoimmune disorders [38]. The use of human tTG as the antigen in the test kit adds some greater specificity. Antigliadin antibodies may be present in inflammatory bowel disease [39], collagen vascular disease [40], and in many healthy people as well [41].

Link to comment
Share on other sites
mushroom Proficient

Not so. From the Open Original Shared Link:

Causes of false positive celiac serologic tests

The endomysial antibody test is virtually 100% specific for celiac disease. However anti-tTG has been reported to be positive in the presence of liver disease, especially cirrhosis [33], diabetes [34, 35] and severe heart failure [36], as well as arthritis [37] and various autoimmune disorders [38]. The use of human tTG as the antigen in the test kit adds some greater specificity. Antigliadin antibodies may be present in inflammatory bowel disease [39], collagen vascular disease [40], and in many healthy people as well [41].

But it's interesting that many doctors only run the AGA and the tTG - non even total serum IgA :(

Link to comment
Share on other sites
concernedmamma Explorer

I haven't read through all of the replies, but wanted to give you an alternate view.

Both my boys have Celiac. One DX through positive blood work and a scope (because that is what we were told to do and I just wanted my 'baby' to feel better, so that is what we did). He had had many health concerns prior, honestly we are only now starting to see improvement, over a year and a half later.

Son number two had positive blood work a year later. By this time I was more educated and opted out of the scope for him. He has very few/questionable symptoms, and so far, 4 months in we are seeing little change.

Now my blood work has come back positive. I have not had symptoms that I would make a clear connection to Celiac. I initially was not going to do the scope, and went gluten free for one week. it was then that I realized that to completely 'buy in' to the idea that I had to remain gluten-free life long (even if I don't see any positive changes) I would need to KNOW that eating Gluten was doing actual damage to my body. Also, there is a bit of a tax break here in Canada and I was told that the adult GI would not definitively diagnose me with out a scope. So now I am back on a Gluten filled diet and my scope is booked November 15th.

Link to comment
Share on other sites
pricklypear1971 Community Regular

With so few doctors concerned about Celiac Disease, I'm surprise there is a definition called a 'celiac crisis'. I'd like to hear more about it.

It was always my understanding that unaddressed Celiac Disease can lead to other issues, and some, if continued to be unaddressed , potentially life threatening issues. Dehydration can be life threatening.

I am certain that his patient has other issues going on. If not, he was REALLY off base with his diagnosis. (wonder if he checked on her hospital food :unsure: )

It's neither here nor there.... As one of those adrenally challenged patients (and it's a toss-up as to what caused the adrenal damage) it's irrelevant. When you arrive at a certain point you just end up at the hospital.

When gluten=freak out and you can't breathe or eat or drink you don't split hairs, you just stay the heck away from gluten if it's the trigger.

Jeez, I'll never forget (as much as my addled, hyped up brain will allow me to remember) being unable to handle the sensation of water on my skin + sound of water running - while munching on ak-muk whole wheat crackers since I was supposed to be eating "complex carbs" to stabilize my tanking blood sugar. Oh, yeah....and DH literally sprouting all over my body at the same time.

I still roll my eyes at that one. I really thought I had lost it, and I had.... Try explaining THAT one calmly over the phone.

Who needs psychodellic shrooms when you've got gluten (and steroids)?!?!

Who knows if gluten technically causes everything to stop working, the point is that it can trigger a full - body crises that needs emergency treatment (oh geez, just keep the steroids away, please!).

And now you know why I wear the MedicAlert bracelet.

Ugh, I'm having flashbacks!!!

Here's a reference for Celiac Crisis https://www.celiac.com/articles/22235/1/Celiac-Crisis-A-Rare-but-Serious-Complication-of-Celiac-Disease-in-Adults/Page1.html

It seems to be more "lack of nutrition" focused but I'm sure it's more complicated and varied (as are all Celiac things, evidently).

Link to comment
Share on other sites
Katrala Contributor

While this doesn't apply to everyone, I feel that some people who call themselves celiac don't have an endoscopy after a negative blood test because they are scared it will also be negative.

An endoscopy was a million times easier for me than a colonoscopy. I had mine in the morning which meant I just went to bed and didn't eat any breakfast. The whole thing took an hour or less and I had no problems. I was shopping 2 hours later.

Given that intestinal damage is what celiac is (except for latent, obviously,) I don't see how you can self-diagnose 100%. People with a history of celiac in the family, etc. I can understand more, though.

Don't pick a random doctor. Ask around and get references and find a doctor that knows what they are doing.

And for whatever tax, insurance, college, etc. need you have in the future, you have a 100% medical diagnosis.

Link to comment
Share on other sites
DonnaMM Explorer

Katrala,

I agree with what you are saying about people feel to be official they must have the egd. I was one of those people. I had problems for years and accepted the fact when my doctors said it was not a food intolerance its just stress just live with it and get on with your life (the dr said those exact words) but once the pain got too bad I insisted for more blood work and egd because I struggled giving up gluten ( even though it made me feel better). The blood and biopsy still came back negative but the egd showed damage. My dr still did not want to diagnose me but I have a good friend that is a GI and based on my family history And my own history said it is celiac no question. I am now starting to think an egd is not all that important because doctors don't seem to care. But I don't agree with how many people seem to diagnose themselves without having gone through any testing at all. Also I was terrified to have my egd because just like you said I was afraid it would come back negative. I was so worried I was goig to pay all this money and they still would not figure what was wrong. Even though my GI refused the diagnosis the damage that was done was enough for me based on my European background and other autoimmune problems

Link to comment
Share on other sites
Reba32 Rookie

I had the endoscopy (with incredibly painful gluten challenge for 8 weeks prior) so that my husband would quit bugging me, so that my employer would know I have a definitive diagnosis, and to see what the extent of the damage was. My husband (we're since divorced) wouldn't believe me that I had Celiac disease, despite how sick I got when I ate anything with gluten in it (I discovered it years after we were married), he didn't outright say it, but I know he thought it was all in my head. Yes, he was a bit of an ass about it. Even my doctors that I saw gave me the smile and nod to humour me :huh:

The GI doctor said I couldn't possibly have Celiac disease because I was fat and constipated, instead of skinny with diarrhea. (I still don't get why they won't even consider Celiac unless a person has diarrhea? Only about 35% of Celiacs have it, 35% have constipation, and the rest have no GI symptoms at all! grrrr). She was more surprised than I was when the blood tests came back 99.9% positive, and the endoscopy showed obvious intestinal damage. It was also discovered that I have a hiatal hernia, which I wouldn't have know had I not had the endoscopy.

Plus, now that I'm back in Canada, if I choose to keep accounting records, I can claim a tax break with my definitive diagnosis. I wouldn't be able to if I was self diagnosed and didn't have the paperwork to back it up. I just can't be bothered to keep records of my gluten free food purchases, and I don't buy many packaged foods anyway. I eat mostly foods that Nature made gluten free naturally.

Link to comment
Share on other sites
Katrala Contributor

The blood and biopsy still came back negative but the egd showed damage.

If it showed damage, what was the doctor's rationale for not diagnosing?

I mean, I understand if there was no damage, but I thought damage was what they were looking for?

Link to comment
Share on other sites
mushroom Proficient

I suppose if I had had to prove to someone important in my life that I had what I said I had, I might have gone ahead with trying to get a diagnosis, but since I did not have to, most of the things you folksare saying about why you did it are the reasons why I didn't. The pain of the challenge, just because some jerk(s) didn't think to test me before, because I was a 'head case'.... no way was I going to put myself through agony to prove to the medical professionals what I already knew, and give them another chance to screw up.and screw me over all over again. :blink:

Link to comment
Share on other sites
DonnaMM Explorer

If it showed damage, what was the doctor's rationale for not diagnosing?

I mean, I understand if there was no damage, but I thought damage was what they were looking for?

Not quite sure why he was so against diagnosing me. He said he hates to put me on such a restrictive diet if the biopsy came back negative. I was just like ok great its negative but I am going to stay on the gluten free diet cause its the only thing that gets rid of the pain. I had also been gluten free for about four months, but he refused to take that into consideration for a negative biopsy. Whatever I, just like a lot of people here want to just give up on these doctors all together

Link to comment
Share on other sites
DonnaMM Explorer

I suppose if I had had to prove to someone important in my life that I had what I said I had, I might have gone ahead with trying to get a diagnosis, but since I did not have to, most of the things you folksare saying about why you did it are the reasons why I didn't. The pain of the challenge, just because some jerk(s) didn't think to test me before, because I was a 'head case'.... no way was I going to put myself through agony to prove to the medical professionals what I already knew, and give them another chance to screw up.and screw me over all over again. :blink:

Mushroom,

I am sorry that you have such a terrible experience with doctors. I work with them all day long and always gave them the benefit of the doubt, but I am beginning to see their true colors. I am in grad school now to become an NP and I really need to learn from mine and everyone elses on here experiences with doctors and be sure I never become that way. I unfortunately had to prove something to my oncologist. She thought I was making everything up about stomach, and it still came back negative but I really dont care what she thinks anymore

Link to comment
Share on other sites
mushroom Proficient

Mushroom,

I am sorry that you have such a terrible experience with doctors. I work with them all day long and always gave them the benefit of the doubt, but I am beginning to see their true colors. I am in grad school now to become an NP and I really need to learn from mine and everyone elses on here experiences with doctors and be sure I never become that way. I unfortunately had to prove something to my oncologist. She thought I was making everything up about stomach, and it still came back negative but I really dont care what she thinks anymore

I worked with doctors for only one year - quite long enough, I might add - then switched to lawyers :blink: Most of my work with lawyers involved personal injury or (mainly) medical malpractice litigation, so you can see how my glasses might be tinted with anything but rose :lol: But it is the personal experiences that have cleared my lenses. I know some good ones, one or two great ones, and several who might have killed me if I let them :ph34r: For the most part I have self-diagnosed my ailments, and my current GP(to whom I usually present a diagnosis :D ) will cheerfully admit what she does not know and say, "Let's look that up and let me talk to some people to find out where you should go and what we should do." She knows better than to offer me some pills and pat me on the shoulder :rolleyes:

I think the US doctors are the worst at pill-pushing; the things they tried to make me take in the three months I was there over the summer were unbelievable. But at least I was able to figure out from the whole experience what I should be doing, so I suppose it helped. :)

Good luck on your NP course. If you keep an open eye and an open mind when viewing what goes on around you, I am sure you will become a good one. Especiallly if you remember that the patient probably knows more about what's going on in her body than you do - listen to her, is my advice. Sometimes it seems like doctors do not have ears :rolleyes:

Link to comment
Share on other sites
  • 4 weeks later...
love2travel Mentor

I had both the colonoscopy and gastroscopy done and am glad I did. My doctor told me I had celiac due to my positive bloodwork but at that time I had no idea that was all I needed. I wanted scopes done to prove I did it either way because I was asymptomatic and just could not wrap my mind around not eating gluten-containing foods (I teach culinary classes and food is my passion). So, when I was told the biopsies were positive that did it for me. Who knows? I may have cheated without being officially diagnosed because I wasn't getting sick from eating gluten so I really needed that proof. In retrospect I *was* having gluten-related problems such as miscarriages but I had no clue of the correlations at the time.

Link to comment
Share on other sites
tennisman Contributor

I didn't have a choice my doctor said I had to have an Endoscopy .

Link to comment
Share on other sites
Di2011 Enthusiast

love2travel,

I think you will be the best - best gluten free cook/chef we've ever had on board our crazy cruise ship / tv chef program or something. We NEED you! All the different cuisines you can help us with (gluten-free), substitute (gluten-free) ingredients for our favourite dishes. I reckon that you will be my "Jamie Oliver".

Link to comment
Share on other sites
Monklady123 Collaborator

I didn't have a choice my doctor said I had to have an Endoscopy .

We always have a choice. It's your body. Even with a broken bone you have a choice. Wouldn't recommend choosing not to set a broken bone though. :P But we always have choices in medical care.

Link to comment
Share on other sites
tennisman Contributor

We always have a choice. It's your body. Even with a broken bone you have a choice. Wouldn't recommend choosing not to set a broken bone though. :P But we always have choices in medical care.

I was 15 at the time so I had to do what the doctor said lol . Plus I think in the uk you need to get a biopsy to confirm you have celiac disease so you can get gluten free food on prescription . I don't really wanna do most the tests my doctors have told me to do but I need to get better so don't really have much choice :(

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,500
    • Most Online (within 30 mins)
      7,748

    fine one
    Newest Member
    fine one
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SuzanneL
      It was tTG IGG that was flagged high. I'm not sure about the other stuff. I'm still eating my normal stuff. 
    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
×
×
  • Create New...