Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Things People Say To Celiacs


researchmomma

Recommended Posts

researchmomma Contributor

This is so funny. Go to Open Original Shared Link and scroll down to the video.

It is a quick watch and super funny.

I will add to the ridiculous questions and statements:

My mother said to me "well she can eat white bread cuz it has less gluten, right?".


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Meggielynn13 Rookie

That's like my dad telling me I can eat crackers instead of bread. Since he's trying to eat less bread, he's been having low fat crackers or something. People just don't get it. Or they think you are just on a fad diet. I feel like only people that have Celiac get it.

IrishHeart Veteran

Hilarious and yet, frustratingly annoying as well :lol:

Thanks for sharing, honey!

Yes, I have heard similar queries about bread, only it was "WHOLE WHEAT is wrong, but other bread is okay, right?"

another was:

someone, smiling at me, all excited, holding up an ice cream sandwich and asking:

"This is okay, right!? It's just ice cream!!"

:huh:

When I said (as a celiac), I can no longer can receive communion, I was asked in a hushed tone, "oh, is that because you were divorced?"

:lol:

Oh well, we were once dumba$ses about this gluten stuff, too.

researchmomma Contributor

Hilarious and yet, frustratingly annoying as well :lol:

Thanks for sharing, honey!

Yes, I have heard similar queries about bread, only it was "WHOLE WHEAT is wrong, but other bread is okay, right?"

another was:

someone, smiling at me, all excited, holding up an ice cream sandwich and asking:

"This is okay, right!? It's just ice cream!!"

:huh:

When I said (as a celiac), I can no longer can receive communion, a real Mensa candidate I know said in a hushed tone, "oh, is that because you were divorced?"

:lol:

Oh well, we were once dumba$ses about this gluten stuff, too.

That is funny Irish. Hey, our Priest made a point to get gluten-free host because so many of his parish are gluten free!

researchmomma Contributor

That's like my dad telling me I can eat crackers instead of bread. Since he's trying to eat less bread, he's been having low fat crackers or something. People just don't get it. Or they think you are just on a fad diet. I feel like only people that have Celiac get it.

The fad diet thing kills me. I heard that today "oh you are doing that too?"

IrishHeart Veteran

That is funny Irish. Hey, our Priest made a point to get gluten-free host because so many of his parish are gluten free!

Well, he is unusually progressive thinking. For a while, they dragged their collective feet about that, saying the recipe --the amount of gluten in it--could not be tampered with for religious reasons. I read some nuns were busy working on a recipe with low levels of gluten. Maybe it has come to pass.

My first thought was "you darn well better think of something"! The largest celiac populations in European countries---are also predominantly Catholic.

IrishHeart Veteran

The fad diet thing kills me. I heard that today "oh you are doing that too?"

Quick (sarcastic) reply is....."Hell yes, aren't YOU!!??" and then look at them with a tsk, tsk! and a :rolleyes: --- as if they are sooooo hopelessly "ten minutes ago" :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



researchmomma Contributor

Quick (sarcastic) reply is....."Hell yes, aren't YOU!!??" and then look at them with a tsk, tsk! and a :rolleyes: --- as if they are sooooo hopelessly "ten minutes ago" :lol:

That is good!

Poppi Enthusiast

Or my personal favourite which I have heard from everyone from family members to grocery store cashiers..."Ugh, I would kill myself if I couldn't have pasta/bread/croissants/cake."

Wow. You just said my life is not worth living. Think about that for a second.

Last time I got that comment from a cashier I responded with, "Well, I would kill myself if I had to bag groceries all day." I know that was rude but I couldn't help myself.

IrishHeart Veteran

Or my personal favourite which I have heard from everyone from family members to grocery store cashiers..."Ugh, I would kill myself if I couldn't have pasta/bread/croissants/cake."

Wow. You just said my life is not worth living. Think about that for a second.

Last time I got that comment from a cashier I responded with, "Well, I would kill myself if I had to bag groceries all day." I know that was rude but I couldn't help myself.

oh Snap! :lol: Great comeback!

Not rude--perhaps a lesson in civility he sorely needed. Good for you!!

I know some people "feel sorry" for me and my gluten-free life--but the irony is--my doc says our diet is healthier than anyone else's.

I feel sorry for the ones who SHOULD be gluten-free but won't do it (like my family and some friends). Someday soon, I am going to feel better than I have in my life.

They will still feel like crap.

eatmeat4good Enthusiast

Just another story of Stupid Things People Say to Celiacs-

My co-worker who knows I have Celiac served up cake for me...I said, no thank you. She said you can have some...there is no wheat in it...just sugar,flour,eggs,cocoa and butter. I said there is flour in it...she says yeah, but there is no wheat. I said um...Flour is wheat...she says...Oh My God!!...that means you can't have bread or pancakes or cookies or cake like EVER????

:) Rrrrright I said with a smile. :ph34r::blink:

pixiestargirl Newbie

One of my favourites is a recurring thing at work.

*while eating chips*

"You can eat chips???"

*while eating popcorn*

"You can eat popcorn????"

*while eating gluten free muffins*

"Are those gluten free???"

...no, I've just decided I really felt like torturing myself :rolleyes:

kareng Grand Master

Or my personal favourite which I have heard from everyone from family members to grocery store cashiers..."Ugh, I would kill myself if I couldn't have pasta/bread/croissants/cake."

Wow! I guess it would be a death sentence for you.... :huh:

come dance with me Enthusiast

Or my personal favourite which I have heard from everyone from family members to grocery store cashiers..."Ugh, I would kill myself if I couldn't have pasta/bread/croissants/cake."

Wow. You just said my life is not worth living. Think about that for a second.

Last time I got that comment from a cashier I responded with, "Well, I would kill myself if I had to bag groceries all day." I know that was rude but I couldn't help myself.

Did you tell them you can?

We just made a cake, and will ice it soon. We also have bread rolls to bake.

I will be making pancakes this week for Shrove Tuesday.

We also have apple turnovers, donuts, waffles, crepes, all sorts of yummy treats! Not only gluten free but also vegan :D

Adalaide Mentor

That is funny Irish. Hey, our Priest made a point to get gluten-free host because so many of his parish are gluten free!

For my religion, the sacrament is passed by Deacons. Our bishop assigned an entire section for celiacs because there are so many of us. The first Sunday back to church after my surgery I almost choked on the most awful cracker I've ever put in my mouth. I was like omg, I'm gonna burst into flames if I choke on this. :lol:

It's unbelievable how many people just say the dumbest things. I do try to be patient but I agree that the worst is the "I'd just kill myself." Thanks... you're a jerk.

lc1333 Apprentice

me at taco bell: gimme just a sec, i'm trying to figure out what i can eat...

girl behind the counter: oh, no problem, take your time

my sister in law: she just found out she has celiac disease, so she can't eat wheat

girl: oh, well she can have a soft taco with a tortilla, they're made out of flour, not wheat :blink:

me: yeah, but the flour is made out of wheat

girl: oh, really? that's interesting

my sister and i just look at each other...

IrishHeart Veteran

A member on here recounted a story of a co-worker who would taunt him by eating donuts, bagels, etc. in front of him and LAUGH and say

things like: "Too bad you can't have this. It's awesome. Too bad you have that celia-thing, huh? I feel sorry for you, man. wow, that sucks, dude"

And the poor guy was devastated. :(

I suggested the next time that jerkwad said something rude, he should smile and say:

"Hey, celiac is treatable. I'm going to get well. But I fear your ignorance is incurable. You'll always be an a$shat."

Strawberry-Jam Enthusiast

someone once told me that he would cut himself if he had celiac ("no offence, but...")

then I told him that I used to cut myself all the time before diagnosis, but after diagnosis I never did.

seriously, my ribs are covered in scars, as well as my upper arms.

anyway, a really awkward silence followed. I hope he learned something.

melikamaui Explorer

My favorite is "I would DIE if I couldn't eat (insert gluten-filled food here) again!". Really??? You would literally die? Like kill yourself...because you couldn't eat your favorite food anymore? What a pathetic, sad life you must lead. Yeah it sucks sometimes, but I have so much more to live for!

Avalon451 Apprentice

That is funny Irish. Hey, our Priest made a point to get gluten-free host because so many of his parish are gluten free!

We're Lutheran (not so picky about what the host is made of) and I ordered some Ener-G gluten-free wafers to use; we arranged with our pastor to put them in a little dish next to where we walk up to the front for communion so me, DH and DD could grab one on our way. He's totally cool with it. Today was the first day we tried it. The host totally tastes like a potato chip or corn chip.

I was reading about the Catholic host controversy; what's with that anyway? The Bible doesn't say in the original Hebrew or Aramaic that the grain used in the unleavened bread was necessarily wheat. Such a fuss.

Lisa Mentor

I was reading about the Catholic host controversy; what's with that anyway? The Bible doesn't say in the original Hebrew or Aramaic that the grain used in the unleavened bread was necessarily wheat. Such a fuss.

Yes, such a fuss.

psawyer Proficient

The debate about the Eucharist is a topic in and of itself that has been discussed many times before. It is not relevant to the topic here. Google Eucharist or Communion in the search bar to find prior discussions about that.

WinterSong Community Regular

Or my personal favourite which I have heard from everyone from family members to grocery store cashiers..."Ugh, I would kill myself if I couldn't have pasta/bread/croissants/cake."

Wow. You just said my life is not worth living. Think about that for a second.

Last time I got that comment from a cashier I responded with, "Well, I would kill myself if I had to bag groceries all day." I know that was rude but I couldn't help myself.

Haha. My first trip to Trader Joe's being gluten free, I told the cashier as she was scanning my Udi's bread that it's so great that they carry gluten free options. She said "Well, you know it's just a fad diet. So many people are doing it these days. It's ridiculous. No one really needs to be gluten free."

I said something like, "Well actually I was just diagnosed with Celiac Disease. So if I eat gluten I'll probably start throwing up and could get cancer and die."

She shut up after that. :-P

But yes, I've also gotten the "Oh man, if I had to be gluten free I'd just DIE." Come on people. Sigh....

IrishHeart Veteran

But yes, I've also gotten the "Oh man, if I had to be gluten free I'd just DIE." Come on people. Sigh....

I just say: "Well, I have Celiac Disease and when I was still eating gluten, I almost died." If they keep being snarky or say "that's not possible" or some other nonsense, then I show a pic of myself when I was chubby with lots of "oomph" to me. :lol: Then, I show them what I looked like when I hit bottom. I look like the walking dead. It's pretty bad. Someone told me I look like I have been in a prison camp. Major muscle and hair loss. Bones protruding. My eyes look vacant and hollow, just staring into space. I looked like I was 10 years older than I am.

Very effective for stopping that kind of talk. :lol:

IrishHeart Veteran

I am thinking these stories are both funny AND sad and that unfortunately, there are still so many misconceptions about Celiac and gluten.

We need to do more educating! :)

It serves no purpose for us to just get angry.

Some people just do not know what celiac or gluten IS--because no one ever explained it to them. If they do know, and then make fun of you or treat your cruelly, that's different. No excuse.

I take every opportunity to educate. But not everyone wants to hear it. :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - glucel replied to glucel's topic in Super Sensitive People
      18

      iron digestibility

    2. - knitty kitty replied to glucel's topic in Super Sensitive People
      18

      iron digestibility

    3. - glucel replied to glucel's topic in Super Sensitive People
      18

      iron digestibility

    4. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,004
    • Most Online (within 30 mins)
      10,442

    Bothy
    Newest Member
    Bothy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • glucel
      I ate sprouted buckwheat and hard boiled egg last night instead of cereal and got extra 1/2 hour sleep but more importantly feel better this morning. I do sleep in cycles that seems to rotate btwn 3 and 6 hrs but I will monitor next time I make a pot. Bwheat is a complete protein with good amounts of thiamin, magnesium, fiber and iron. High carb but much lower glycemic and much healthier than refined flour cereal.
    • knitty kitty
      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
×
×
  • Create New...