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Worse Before It Gets Better?

7yrslater

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7yrslater Rookie
7yrslater
Posted

So we've just started trying a gluten free diet on Wednesday--of course the lovely child cheated on the very first day!-- but other than one slip we've been very careful about everything. About halfway through the morning I noticed, for the first time, she was not itching non-stop. She hadn't even noticed but said, hey, yeah! Tonight we go to a movie and part way through she's close to scratching her jaw off. And now she's rubbing herself all over to scratch. Sooo...does this kind of switch to gluten-free get worse before it gets better? I have researched everything she's eaten today thinking maybe something had something in it but came up with nothing. :(

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Takala Enthusiast
Takala
Posted

Well, she could either be getting cross contaminated, or she has additional allergies or food intolerances, or it is a combination of both.

Also, with these reactions, they are not "cut-and-dried" for all people, they don't start up and then stop immediately. They may take several days to get over. AND, this is the worst part, especially if you have used something wonky in making a batch of food, you may keep getting the culprit several times before you figure it out.

I am on the verge of starting to pack soap in my purse again, because I get such skin reactions from some commercial "antibacterial" soaps in public rest rooms. And I have gotten this residue on a jacket sleeve cuff accidentally, have worn the jacket a few days later, and have come home with red rash rings around my wrists, and then I have to take off my jewelry/bracelet/watch and wash all of that, too. :blink: Fortunately it is a contact type of allergy that goes away quickly if I get it cleaned off fast. This isn't really a gluten reaction, but an additional thing I have had a problem with for nearly 40 years since soap manufacturers first thought to ruin soap by putting this triclocarban cr*p in it. Just going to the restroom, then absentmindedly touching my face if I have not rinsed my hands like a fanatic, can set off some acne, too. Bleah. Now, if I did not know the difference between my reactions, I might be mistaking one for another.

The learning curve continues for all of us.

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    • Iam
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
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      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
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      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
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