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Worse Before It Gets Better?

7yrslater

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7yrslater Rookie
7yrslater
Posted

So we've just started trying a gluten free diet on Wednesday--of course the lovely child cheated on the very first day!-- but other than one slip we've been very careful about everything. About halfway through the morning I noticed, for the first time, she was not itching non-stop. She hadn't even noticed but said, hey, yeah! Tonight we go to a movie and part way through she's close to scratching her jaw off. And now she's rubbing herself all over to scratch. Sooo...does this kind of switch to gluten-free get worse before it gets better? I have researched everything she's eaten today thinking maybe something had something in it but came up with nothing. :(

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Takala Enthusiast
Takala
Posted

Well, she could either be getting cross contaminated, or she has additional allergies or food intolerances, or it is a combination of both.

Also, with these reactions, they are not "cut-and-dried" for all people, they don't start up and then stop immediately. They may take several days to get over. AND, this is the worst part, especially if you have used something wonky in making a batch of food, you may keep getting the culprit several times before you figure it out.

I am on the verge of starting to pack soap in my purse again, because I get such skin reactions from some commercial "antibacterial" soaps in public rest rooms. And I have gotten this residue on a jacket sleeve cuff accidentally, have worn the jacket a few days later, and have come home with red rash rings around my wrists, and then I have to take off my jewelry/bracelet/watch and wash all of that, too. :blink: Fortunately it is a contact type of allergy that goes away quickly if I get it cleaned off fast. This isn't really a gluten reaction, but an additional thing I have had a problem with for nearly 40 years since soap manufacturers first thought to ruin soap by putting this triclocarban cr*p in it. Just going to the restroom, then absentmindedly touching my face if I have not rinsed my hands like a fanatic, can set off some acne, too. Bleah. Now, if I did not know the difference between my reactions, I might be mistaking one for another.

The learning curve continues for all of us.

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    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
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      By Wheatwacked · Posted

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      By trents · Posted

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    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

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