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Worse Before It Gets Better?

7yrslater

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7yrslater Rookie
7yrslater
Posted

So we've just started trying a gluten free diet on Wednesday--of course the lovely child cheated on the very first day!-- but other than one slip we've been very careful about everything. About halfway through the morning I noticed, for the first time, she was not itching non-stop. She hadn't even noticed but said, hey, yeah! Tonight we go to a movie and part way through she's close to scratching her jaw off. And now she's rubbing herself all over to scratch. Sooo...does this kind of switch to gluten-free get worse before it gets better? I have researched everything she's eaten today thinking maybe something had something in it but came up with nothing. :(

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Takala Enthusiast
Takala
Posted

Well, she could either be getting cross contaminated, or she has additional allergies or food intolerances, or it is a combination of both.

Also, with these reactions, they are not "cut-and-dried" for all people, they don't start up and then stop immediately. They may take several days to get over. AND, this is the worst part, especially if you have used something wonky in making a batch of food, you may keep getting the culprit several times before you figure it out.

I am on the verge of starting to pack soap in my purse again, because I get such skin reactions from some commercial "antibacterial" soaps in public rest rooms. And I have gotten this residue on a jacket sleeve cuff accidentally, have worn the jacket a few days later, and have come home with red rash rings around my wrists, and then I have to take off my jewelry/bracelet/watch and wash all of that, too. :blink: Fortunately it is a contact type of allergy that goes away quickly if I get it cleaned off fast. This isn't really a gluten reaction, but an additional thing I have had a problem with for nearly 40 years since soap manufacturers first thought to ruin soap by putting this triclocarban cr*p in it. Just going to the restroom, then absentmindedly touching my face if I have not rinsed my hands like a fanatic, can set off some acne, too. Bleah. Now, if I did not know the difference between my reactions, I might be mistaking one for another.

The learning curve continues for all of us.

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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