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Celiac & IBS?


jdizzle

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jdizzle Apprentice

Near the beginning of this year I discovered I had a gluten intolerance, I didn't get tested so don't know if it's Celiac or just intolerance, but after quitting, a trace amount of gluten made me really ill for a week.

The nightly diarrhea ended when I stopped eating gluten, but I still didn't feel great. I quit Lactose which helped, when I made the connection that I was intolerant to that too. After feeling awful for so long, I did feel a lot better, but nowhere near full of life or normal. Since about four weeks ago, I've had acid reflux and bloating all the time (and a really itchy neck).

My doctor gave me a list of low fodmap foods to stick to, and if I adhere to it strictly, my symptoms are alleviated somewhat, but I've found that my body is becoming less and less tolerant of the fodmap foods that are forbidden. Before I could drink caffeinated drinks and eat chocolate and be fine, today I had a couple of gluten and dairy free cookies and a small swig of caffeinated beverage, and my acid reflux has been horrible since then til now! I puked in my mouth after the beverage. I'm really confused by all this! Did I have IBS all along? or did Gluten intolerance lead to lactose intolerance, which lead to IBS? Right now I always have vomit in the back of my throat, bloating, itchy neck and constipation and I'm really concerned about why what I can eat seems to be getting a smaller and smaller list :C Any ideas what's going on here? I just want to feel normal!


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Near the beginning of this year I discovered I had a gluten intolerance, I didn't get tested so don't know if it's Celiac or just intolerance, but after quitting, a trace amount of gluten made me really ill for a week.

The nightly diarrhea ended when I stopped eating gluten, but I still didn't feel great. I quit Lactose which helped, when I made the connection that I was intolerant to that too. After feeling awful for so long, I did feel a lot better, but nowhere near full of life or normal. Since about four weeks ago, I've had acid reflux and bloating all the time (and a really itchy neck).

My doctor gave me a list of low fodmap foods to stick to, and if I adhere to it strictly, my symptoms are alleviated somewhat, but I've found that my body is becoming less and less tolerant of the fodmap foods that are forbidden. Before I could drink caffeinated drinks and eat chocolate and be fine, today I had a couple of gluten and dairy free cookies and a small swig of caffeinated beverage, and my acid reflux has been horrible since then til now! I puked in my mouth after the beverage. I'm really confused by all this! Did I have IBS all along? or did Gluten intolerance lead to lactose intolerance, which lead to IBS? Right now I always have vomit in the back of my throat, bloating, itchy neck and constipation and I'm really concerned about why what I can eat seems to be getting a smaller and smaller list :C Any ideas what's going on here? I just want to feel normal!

You may have Celiac? If there's damage to your small intestine you may have a hard time digesting lactose?

The starches/grains in gluten-free foods can be difficult to digest. It's best if you stick to whole foods like fruits, veggies, meats/seafood, nuts and seeds.

If you're becoming intolerant to more and more foods it could be that your intestine has inflamation and is just not happy right now, but it could also be a sign of a small intestine bacterial overgrowth(SIBO). Your Dr. can test for that.

You may need digestive enzymes? Probiotics are vital to a damaged intestine. If you want to persue a SIBO test, don't take the probiotics for 10 days before testing for an accurate result.

Best wishes to you. I know it's miserable to feel so yucky.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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