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Enterolab Results Are In, Gene Testing? Candida, Chest, Throat Pain Many Other Issues.

bekkaz

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bekkaz Apprentice
bekkaz
Posted

Well after several months of major sickness, I received my Enterolab results today, stating I am Gluten intolerant. I have been MAJOR sick, please see below. I am wondering if I should do the DNA testing now, especially worried about possiblity for my 3 year old.

Gluten Sensitivity Stool Test

Fecal Anti-gliadin IgA 53 Units (Normal Range is less than 10 Units) Talking with Enterolab they felt this could even potentially be higher for me but since I am having so many immune type problems they said the immune stops with the IGA, or they feel someone with all of my symptoms could be up in the 200+ range.

I have had a 25 lb weight loss in the past 2 months

Endoscopy showed inflammation of stomach and erosive gastritis

I had my Gallbladder removed 2.5 weeks ago, it wasn't functioning, upon removal they found it had been chronically inflammed

I have had a constant feeling something is stuck in my throat (they don't have a clue what's causing this) Along with this comes major chest pain in the middle of my chest (again no clue why)

Continunous high white blood count for the past 2+ years, (they don't know why)

My C-Reactive Protein was 3x higher than it should be on my last test

My fecal lactoferrin showed positive for inflammation

I keep getting tonsil stones in my throat and have bad breath

They just found a Yeast/Fungal overgrowth in my intestine for the second time and have me on a 2 week does of antifungals

Dizziness/Passing Out/Vertigo/Ear Ringing

TMJ

Anxiety/Depression

Nausea/Vomiting

Diaherra/Constipation

Bloating

Vitamin D Deficient

Major back pain - feeling like my spine is starting to curve. I am only 34!

Migraine history

Positive IGE Skin Prick testing to Soy, Corn, Chicken

I have been on PPI's for stomach acid

I have also been exposed to Toxic Mold in my house, which I believe is now all remidiatied....however I am wondering if this brought all of these symptoms out.

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mushroom Proficient
mushroom
Posted

Are you still eating gluten? I know you stopped at one point prior to a blood testing for a couple of weeks but was that your only gluten free trial?

About all I can suggest at this point is to do the diet, if you are not doing it already. Your list of symptoms sounds like a celiac/gluten intolerant shopping list for sure. My personal feeling is it's time to stop shopping around for a diagnosis and see if gluten free works. And a good diet trial is 3-6 months.

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    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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