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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About CtheCeliac

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  1. Oops. Mixed Up Doritos

    My daughter's doing okay. She didn't eat many Doritos. In fact, I ate my serving Friday and most of hers. Thank goodness it was me rather than her!
  2. Man, what was I thinking! I goofed and ate Doritos Nacho Cheese. A friend offered them to me, and I was so hungry I forgot it was not the Nacho Cheese, but Cool Ranch and a few of the other Doritos flavors that are gluten-free. My dd with celiac had them also! That was Wednesday. Then Friday afternoon I was eating more Doritos Nacho Cheese from the leftovers she gave me and happened to flip the bag over to see the word "Wheat" glaring at me. What! How could I have been so careless; I'm usually so careful! Did Doritos Nacho Cheese used to be gluten-free? Now it's Saturday, and my stomach is in knots; I've been exiled to another room in the house due to the noxious fumes escaping from my body. I dread how my dd will feel! I usually have reactions faster than this. I ate from Chili's gluten-free menu today, and I don't think that was the problem. I've never had a problem with Chili's gluten-free menu. Does it sometimes take one day or more to start having noticeable reactions? Anyway, I'm dreading what the next few weeks will bring! I guess it's time to rest up.
  3. Do you think having your child help prepare meals helps? My newly-diagnosed 5-yr.-old loves helping cook. She gets so caught up in the mixing and measuring, and we talk about what parts of our body the foods and vitamins help. I'm hoping that these preparations now may help, but who's to know what each child will go through! She still loves "junk" as she calls it!
  4. Pizza Monster

    I need to try some of the pizza crust recipes some of you shared. I must say Namaste pizza mix is my favorite because it has seasonings mixed in, and it is so fast to prepare. Bob's Red Mill is okay if you add in some seasonings. For sauce, I like Great Value brand (make sure it's labeled Gluten-Free). Hormel pepperoni should be labled gluten-free. Kudos to all of you who make crust from scratch.
  5. Tip Top Poultry

    Thanks for your reply. That's helpful information! I've become extremely cautious lately and have had to go back to the basics. We got a different chicken just in case.
  6. "losing Wieght" Eating More

    Of course, the first question everyone asks on this forum is are you sure you're 100% gluten-free?
  7. Correllation Between Celiac And Acne

    When I go through phases without logging on to this forum, it seems I slip here and there and am not as diligent as I need to be about my diet, nor am I as inspired in the positive (life-saving) changes I've experienced from the needed diet change. The first six weeks on the diet were incredible----I gained 10 pounds, and my skin cleared up. I no longer had extremely dry skin. I had so many symptoms I'd simply learned to live with.
  8. Yes, I got the initial exzema response from a physician, too. One advantage I have (and my brother, who's a Celiac, too) is now that we've been gluten-free for over a year, we can tell when we've been glutened if we get a small outbreak. That's usually his first reaction.
  9. I'm usually so careful about what kind of chicken or poultry I pick up at the store, but I was in a rush due to the storms in the area. So I bought a Tip Top brand hen for Mother's Day tomorrow. I read the back but not the front. At home, I realized it is injected with up to a 15% of a solution containing: water, salt, sugar, flavoring (No artificial flavorings, minimally processed). Of course, it's the weekend, so I can't contact the company. Should I give the hen away or cook it tomorrow?
  10. Like you, I was so excited to learn it was gluten-free and used it over ribs in the slow cooker two times. Subtle reactions both times, so I've stopped using it for a few months. Hmm.
  11. Love Everyday Minerals! They're natural, yet have great coverage!
  12. I tested positive on the bloodwork but did not have the gold standard (the biopsy). The biopsy was scheduled for six weeks after the bloodwork. I was so miserable that I didn't want to wait for the biopsy to go off glutens. Within four weeks I gained 10 pounds, all gastro symptoms had ceased, and I no longer had skin outbreaks. I called the gastro office to cancel the appointment; I asked to speak to the nurse. I told the nurse my situation and she said to keep doing what I was doing. I asked for a reference for a dietitian; she said I'd be better off getting my information online. Then the week the biopsy appointment had originally been scheduled, there was a glitch in the system and I was called for a reminder. I told the person my situation. I came under intense scrutiny: "How do you know it's gluten? It could be something else. You still need the appointment." My reply: "You could not pay me to go back on gluten for the biopsy test." A year prior to this, my brother had been to numerous doctors, and finally one doctor suggested trying a wheat-free diet, so my brother went wheat-free and gluten-lite. He had DH extremely bad and it cleared up other than minor outbreaks; he also began gaining weight. He never had the bloodwork or biopsy. It wasn't until I went gluten-free that he went 100% gluten-free; he noticed remarkable changes. (Sometimes we've had symptoms so long we don't realize it's not normal to be fatigued or have certain stool or gastro issues.) His physician recognizes he has celiac disease due to the major changes he's seen since my brother changed his diet. I agree it's hard sometimes when you don't have the validation of testing. You could either go 100% gluten-free, go back on glutens to test, or go back on glutens to realize how bad it is that you don't need tests to confirm.
  13. Girl Scout Cookie Sales

    Thanks for sharing your range of replies. Perhaps part of the issue is reminding ourselves that a hidden source that made so many of us sick is okay for others if in moderation. We've learned discipline, so this issue should be no different. (Maybe we'd just rather spend our energies promoting awareness of an issue that likely affects at least 10% of the population.) The other leader and a volunteer parent will handle most of the responsibility; I'll put dad in charge of helping daughter with sales and distribution (he liked selling Boy Scout popcorn); and encourage donations for those with diabetes, gluten issues, or those who simply choose to eat healthy. Aren't we thankful that our diet can encourage us to eat healthier!
  14. I have been gluten-free for 11 months and am getting nervous about the emphasis (and borderline obsession) with cookie sales for GS. I feel like I'm managing my diet fine, but the thought of managing and sending my daughter to sell and distribute cookies is stressing me out. For one, I've designated the other leader and another parent to organize the sales, etc. But I just don't want to be around the cookies, and I'm still concerned my daughter may have a sensitivity or intolerance. Her first bloodwork was fine, but I understand sometimes that's true of a first testing on a child. I've been told by a family member to "get over" my issue with the cookies, but it feels like my child and I will be promoting something (safe for most other people) that was leading to my illness a year ago (and probably earlier). I know that sounds so extreme; I keep regular non-gluten-free food and snacks in the house for the family. They're mostly stuck with gluten-free at dinner. Aside from the cookie sales, I believe in what GS does and their goals.
  15. The Financial Aspect

    I'm sure your extra limitations make the the gluten-free diet even more challenging. I've been on the gluten-free diet 11 months. At first, the costs were overwhelming to me, (especially when despite my poor health and positive bloodwork, my doctor said if the biopsy was positive the diet would be expensive). Hey, I'm saving money by not buying so much Immodium AD and maybe on other future medical costs, such as possible osteoperosis or other problems. Now I'm finally finding some ways to cut food expenses, but, like you, still struggle with the costs of some items. I've cut back on how many specialty foods I buy from the health store. A recent favorite is making my own chicken broth and adding leftover shredded chicken; navy beans; a few tablespoons of gluten-free flour; cumin; finely chopped carrots, peppers, and onion; diced green chilies; and rice for soup. Top with crushed tortilla chips. Soups are usually fairly cost-effective. (I saw a recipe today for soup with tomatoes, cabbage, juice, onions, and salsa.) Anybody tried to freeze soups you've made? I also starting gardening again this year. The cooked gluten-free breakfast foods go a long ways for the cost. My brother and I have looked for gluten-free food specials and buy in bulk, then split costs. He joined a co-op at a health food store where he can get discounts certain times of the month. My best savings have been from going to a bent-n-dent store or overstock store (watch too many dents and expiration dates).