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Non Coeliac Gone Gf-strange Symptoms

nikki-uk

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nikki-uk Enthusiast
nikki-uk
Posted

I don't know if this is in the right place-bare with me.

My husband was dx with celiac disease 9 months ago.

My youngest child has recently been dx with dyslexia with severe behavioral/emotional dfficulties.He's been expelled from school.

There are quite a few links out there with dyslexia and other problems improving on the gluten-free diet.Thought I'd try him on it as we've nothing to loose.

To encourage my son into this I told him'If you do it,I'll do it'(gluten-free diet)

We are 3 weeks in,no noticable signs of improvement for my son as yet.

However I noticed weird things start happening to my body(this is so weird!)

First of all,within a week of going gluten-free the ezcema I have had on my face ,and scalp has completely cleared.My skin hasn't been this clear for years.

Also I have always suffered from constipation ,now (gluten-free)I'm a once a day girl(from a once a week if you're lucky.)

I seem to be eating a larger quantity of food but I've lost 8 pounds without trying.

All sounds great,but when I go to my friends house once a week,we always eat chicken and salad in a pitta bread.Not a problem you'd think as I'm not a coeliac.

Here's where it gets weird.The first week after the pitta bread I ended up in bed for 2 days with a migraine & vomiting.Just a coincidence?

The second week after the pitta bread,I woke up the next day with a banging headache and can only describe the feeling as akin to a monster hangover,but I didn't drink any alcohol.

Week 3 after the pitta bread,I woke this morning with these symptoms:

Headache,nausea

'Hungover' but had no alcohol

Racing heart

Massively sore tongue,eyes stinging.

The most scariest thing was 2 hours after the bread I came over red hot,sweating profusely,with nausea ,and the strangest 'tingling in my tongue and hands'

Now what's this all about?I don't know if it's the wheat or the gluten,allergy or intolerance.Never expected this to happen.My hands are still trembly and I want to sleep for a week.

Help!

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Humans in general don't take well to wheat. So, it isn't too crazy that you saw health improvements. You could have an allergy or problems with gluten.

Going back on gluten will be harsh for your system, like you described. Just because you went without it and it is hard on humans systems.

Carriefaith Enthusiast
Carriefaith
Posted
There are quite a few links out there with dyslexia and other problems improving on the gluten-free diet.
Really? would you mind posting them, I am very interested in this since celiac runs in my moms side of the family and her niece (my cousin) has dyslexia. Has the diet helped your sons dyslexia?

Anyway... back on topic.

I think you could have a sensitivity to wheat/gluten, an allergy wheat/gluten, or possibly celiac based on your symtoms and reactions. Have you been tested for celiac or wheat allergy?

nikki-uk Enthusiast
nikki-uk
Posted
  • Author

I'll try and post a linkOpen Original Shared Link

Open Original Shared Link

Open Original Shared Link

As I say,no visible signs of improvement yet,but we'll try anything,cos boy is that boy hard to handle!

Docs won't test him for celiac disease as he has no bowel symptoms,so I'd be refused if I were to ask for one.(nhs system in uk doesn't allow you to choose your doctor)He'd think I was paranoid 'wanna be Coeliac!'(LOL)

Maybe I'll start with skin prick allergy testing,see how much it costs ....

Carriefaith Enthusiast
Carriefaith
Posted

Thanks!

Docs won't test him for celiac disease as he has no bowel symptoms,so I'd be refused if I were to ask for one.(nhs system in uk doesn't allow you to choose your doctor)He'd think I was paranoid 'wanna be Coeliac!'(LOL)
That's too bad :( he should understand that you just want to help your son. Of course you don't want him to have celiac disease. You just want to help him get better.

I don't understand how some of these people become doctors. They are smart but some of them have no people skills and they don't think outside the box. "Well if my outdated textbook doesn't have it then it's not true".

Don't get me wrong here... I know there are many wonderful doctors :) My doctors are in the wonderful category compared to some of the stories I have heard.

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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