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susiek

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  1. Thanks, Nancy. I did the gluten free diet for a week and really did feel better. Then the sheer weight of it made me think, "I'm negative...I don't need to be gluten free." But after nearly a week on gluten, I'm going back off it! lol For some strange reason, the diarrhea and stomach cramps have been worse than this week than right before I went off. But...
  2. My doctor called and told me everything tested in the normal range. Here are the results. I'm typing them directly from the lab report she faxed me. Everything also says "see comments" and I cannot find a comments page. Here are the results: IgA=303 (normal range: 68-378) Endomysial Abs: Negative Gliadin IgG=23.1 (negative range: < or - 25...
  3. My doctor called today with the results of my blood work. Everything for gluten intolerance came back within normal ranges. She's mailing a copy of the results. I am, however, still severly anemic. So she gave me a referral to a GI specialist because she said obviously something is going on. An ulcer...colitis... I went gluten free right after the blood...
  4. This is a great thread, people! I've been gluten free for one week now. I have been ready to throw in the towel 6 or 7 times...a day!!! Thankfully, my husband is super supportive. In fact, he's remembering to read labels sometimes when I forget. I did mention my concern about what happens if my tests come back negative (blood drawn last Friday, doc says...
  5. Thanks everyone for being so supportive! Could I get glutened from either Dr. Pepper (in a bottle) or I Can Believe It's Not Butter Light? I've eaten at home today and these are the only two things I can think of that could have done it! I thought I was being so careful! But I got the D immediately after drinking the Dr. P--which, has always seemed to have...
  6. Thanks for all the support, guys! Today has been better since I stayed home and prepared my own lunch and dinner. However, dtill ended up with D and this non-stop feeling that something is stuck in my throat. This has been happening on and off for awhile, but today it's really annoying! It's like something on the top of my throat on the back is in there!...
  7. Today I almost went ballistic on my very precious cat when he went after my turkey! lol I was preparing to eat it on a corn tortilla for breakfast and he was getting a little close. I was picturing myself almost as a werewolf...sporting pointy teeth and growling menacing. Then I went to lunch, choosing Chili's because I read they had a gluten-free menu...
  8. I've been gluten free since Friday. Oh, there have been some gluten-ings! But mostly doing ok and feeling fine. Still exhausted. Mostly I am worried about the ever-present heartburn and the feeling that I have something stuck in my throat. One day I thought it was the fairly awful dry cluten-free cookie I tried. But it seems to happen a lot. I am not eating...
  9. A friend has GERD and a hiatal hernia and watermelon is on her list of foods to avoid or limit! I can't imagine why because it seems like a pretty bland food to me. But it must be something because one night she ate a bunch and got sick...
  10. Remember, I've only been gluten free since Mid Friday. I think Friday night was a wash because of all the blood they drew (they took 5 vials!) and a change in meds. The biggest change is the absence of diarrhea. I was having D after most meals. I've had it twice since. Once because I think I got majorly glutened or at least cannot eat a pound of Italian...
  11. I had the labs done through my doctor. It was a hospital lab. My dictor seems pretty well-informed about celiac, but I was concerned about the lab once I read the other comment! I went gluten-free on Friday after my doctor's visit and the blood draw. I was eating gluten prior to the test, pretty intensely for the past few weeks. I took the list of ...
  12. My BP isn't being controlled right now. And I am taking 2 meds--one doubled from the sole medicine I was previously taking. When I went on Friday it was still 160/100. It was at this appointment that my doctor and I discussed celiac disease and I had blood drawn for the screening. We also discussed the chance that my meds aren't being absorbed and aren't...
  13. I read on another forum here that someone was saying that there are about 6 places in the US that can properly diagnose celiac disease through the blood test. I just had copious amounts of blood drawn and now am doubting I'll even get an accurate reading! My lab didn't even know what vials to use...much less what the tests were for! lol I'm getting...
  14. I just went gluten free Friday afternoon after the blood was drawn for my blood tests. And the food labels are freaking me out! lol Do you trust the food labels when they list allergens other than wheat to be gluten free? I've found a doy sauce with soy as an allergen, but not wheat. All the others I looked at had both listed. Am I taking a chance trusting...
  15. I went to my doctor's visit on Friday, prepare to be a little demanding. I took the list of tests in the celiac panel, as well as some articles I had found through links here. All that angst was for nothing since my doctor was pretty knowledgable about gluten intolerance/celiac. She said that had she known my family history earlier, she would have had...
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