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susiek

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Everything posted by susiek

  1. susiek
    Thanks, Nancy. I did the gluten free diet for a week and really did feel better. Then the sheer weight of it made me think, "I'm negative...I don't need to be gluten free." But after nearly a week on gluten, I'm going back off it! lol For some strange reason, the diarrhea and stomach cramps have been worse than this week than right before I went off. But...
  2. susiek
    My doctor called and told me everything tested in the normal range. Here are the results. I'm typing them directly from the lab report she faxed me. Everything also says "see comments" and I cannot find a comments page. Here are the results: IgA=303 (normal range: 68-378) Endomysial Abs: Negative Gliadin IgG=23.1 (negative range: < or - 25...
  3. susiek
    My doctor called today with the results of my blood work. Everything for gluten intolerance came back within normal ranges. She's mailing a copy of the results. I am, however, still severly anemic. So she gave me a referral to a GI specialist because she said obviously something is going on. An ulcer...colitis... I went gluten free right after the blood...
  4. susiek
    This is a great thread, people! I've been gluten free for one week now. I have been ready to throw in the towel 6 or 7 times...a day!!! Thankfully, my husband is super supportive. In fact, he's remembering to read labels sometimes when I forget. I did mention my concern about what happens if my tests come back negative (blood drawn last Friday, doc says...
  5. susiek
    Thanks everyone for being so supportive! Could I get glutened from either Dr. Pepper (in a bottle) or I Can Believe It's Not Butter Light? I've eaten at home today and these are the only two things I can think of that could have done it! I thought I was being so careful! But I got the D immediately after drinking the Dr. P--which, has always seemed to have...
  6. susiek
    Thanks for all the support, guys! Today has been better since I stayed home and prepared my own lunch and dinner. However, dtill ended up with D and this non-stop feeling that something is stuck in my throat. This has been happening on and off for awhile, but today it's really annoying! It's like something on the top of my throat on the back is in there!...
  7. susiek
    Today I almost went ballistic on my very precious cat when he went after my turkey! lol I was preparing to eat it on a corn tortilla for breakfast and he was getting a little close. I was picturing myself almost as a werewolf...sporting pointy teeth and growling menacing. Then I went to lunch, choosing Chili's because I read they had a gluten-free menu...
  8. susiek
    I've been gluten free since Friday. Oh, there have been some gluten-ings! But mostly doing ok and feeling fine. Still exhausted. Mostly I am worried about the ever-present heartburn and the feeling that I have something stuck in my throat. One day I thought it was the fairly awful dry cluten-free cookie I tried. But it seems to happen a lot. I am not eating...
  9. susiek
    A friend has GERD and a hiatal hernia and watermelon is on her list of foods to avoid or limit! I can't imagine why because it seems like a pretty bland food to me. But it must be something because one night she ate a bunch and got sick...
  10. susiek
    Remember, I've only been gluten free since Mid Friday. I think Friday night was a wash because of all the blood they drew (they took 5 vials!) and a change in meds. The biggest change is the absence of diarrhea. I was having D after most meals. I've had it twice since. Once because I think I got majorly glutened or at least cannot eat a pound of Italian...
  11. susiek
    I had the labs done through my doctor. It was a hospital lab. My dictor seems pretty well-informed about celiac, but I was concerned about the lab once I read the other comment! I went gluten-free on Friday after my doctor's visit and the blood draw. I was eating gluten prior to the test, pretty intensely for the past few weeks. I took the list of ...
  12. susiek
    My BP isn't being controlled right now. And I am taking 2 meds--one doubled from the sole medicine I was previously taking. When I went on Friday it was still 160/100. It was at this appointment that my doctor and I discussed celiac disease and I had blood drawn for the screening. We also discussed the chance that my meds aren't being absorbed and aren't...
  13. susiek
    I read on another forum here that someone was saying that there are about 6 places in the US that can properly diagnose celiac disease through the blood test. I just had copious amounts of blood drawn and now am doubting I'll even get an accurate reading! My lab didn't even know what vials to use...much less what the tests were for! lol I'm getting...
  14. susiek
    I just went gluten free Friday afternoon after the blood was drawn for my blood tests. And the food labels are freaking me out! lol Do you trust the food labels when they list allergens other than wheat to be gluten free? I've found a doy sauce with soy as an allergen, but not wheat. All the others I looked at had both listed. Am I taking a chance trusting...
  15. susiek
    I went to my doctor's visit on Friday, prepare to be a little demanding. I took the list of tests in the celiac panel, as well as some articles I had found through links here. All that angst was for nothing since my doctor was pretty knowledgable about gluten intolerance/celiac. She said that had she known my family history earlier, she would have had...
  16. susiek
    I had five vials drawn on Friday. Four for the celiac and one for the CBC to check my anemia. Honestly, I used to have a blood-drawing phobia and it is so easy now. They poke me once and just put on new vials. My 7 yo son went in with me because he wanted to see how it was done. Don't freak out. It'll be okay! BTW, I used to faint multiple times when...
  17. susiek
    I found some soy sauce at Target that doesn't list wheat in the "contains" section. It only lists soy. Does this mean that nothing is wheat based? I bought it...but am leery since this was the only soy sauce on the shelf that didn't list wheat as an ingredient. FYI, the ingrdeients are: water, hydrolyzed corn and soy protein, salt, corn syrup, caramel...
  18. susiek
    About the accidents and the extra panties...a long time ago--about 13-14 years ago this happened to me. I was on my work lunch break and had to go back commando. I told my then-husband about it and he was disgusted. I think it was one of the things that led to our divorce. Silly, I know. But just one of those things that he was completely grossed out by....
  19. susiek
    <<<If celiacs caused symptoms immediately and great pain and discomfort followed within a matter of days, driving you to the hospital, people would have a lot more sympathy.>>> Luckily, this last bout of something was so bad for me that Dh was begging me to go to the ER. I refused. And the fact that it has gone on for so long is a clue...
  20. susiek
    Yesterday I was telling my neighbor about my upcoming doctors appointment. She's always sharing her health woes (back, diabetes, lungs, etc.) so I felt comfortable sharing some of the gluten stuff. She immediately says, "oh, but in a few months you'll feel better and be able to eat it again." I explain that you can never eat gluten. Ever. I honestly don't...
  21. susiek
    I have so many of the celiac/gluten intolerance symptoms that I am certain I have something. My brother is gluten intolerant. And my family health history is full of autoimmune diseases (lupus, scleroderma, rheumatoid). But I'm worried I have something else! The weight loss is freaking me out. I am overweight (seriously overweight!) and right now the...
  22. susiek
    Prinsessa that was nice of your mom's friend. I am already dreading the holidays. My brother (gluten intolerant and gluten free) says he's actually had to leave gatherings and drive to a store to get something he can eat. That sounds like way too much work! What I'm really worried about is that all my holiday favorites have gluten--dressing, stuffing,...
  23. susiek
    I am seriously overweight and no longer active. I haven't gone gluten free yet--waiting for doctor's appointment on Friday. Then I'm off the grain! lol I previously was very active--doing jazzercise several times a week--and lost some weight. Over the past two years I gave up the jazzercise--I was bored--and gained everything back. Then I got super sick...
  24. susiek

    ARCHIVED Exercise

    susiek posted a topic in Coping with Celiac Disease

    Right now I am inactive because I am so freakin' exhausted. For the past 6-9 months, working out has been painful and tiring. Then when I got very sick in May I stopped everything. Except the occasional walk around the neighborhood with the dog(s). I'm still eating gluten because I don't see the doctor until Friday. What I'm wondering is if exercising...
  25. susiek
    When I firt told my husband I thought I might have celiac disease (I'm getting blood tests on Friday when I tell my doctor I want them! lol), I swear his eyes glazed over when I talked about it. Suddenly, he comes home from work and tells me a co-worker has a friend who nearly died from the malabsorption because of celiac. Now he's taking me seriously. Finding...
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