up-late

Thanks everyone , it's means a lot to me to have some support. I went to a new GP and got some bloods for thyroid, iron and vitamin levels and she's sent me for a bone scan next week (she got it for me on medicare without the confirmed diagnosis so I'm happy about that) even though she didn't come up with much she did take the time to explain the diagnostic...

I don't have him anymore, I had considered the dust and had my allergies tested for it. He was on a pellet diet not seed so there was no wheat (although it did have barley and oats in it). The symptoms I have ATM are different to when I get glutened.

My kidneys should be OK, I get them looked at regularly, had the scans, x-rays, bloods etc (I have a genetic kidney defect that causes me to get a lot of stones) I have a bit of scaring on one but they're functioning fine, my GM died of kidney failure and mum is diabetic so they were the first things my family looked at when I got sick. Osteoperosis is on...

I think it could be my thyroid, mum just told me tonight her and my GM have thyroid disease, I've had tests previously and as usual the doc is an idiot, they do things like order tests then when they come back they don't know what they mean, so they call the lab and don't want to admit they don't know what the lab is talking about. I spent 4 hrs up the hospital...

Thanks flourgirl, it's really frustrating I'm just so fed up. I've been on the diet in its strickest sense a little over a year. I cut out the obvious gluten before the allergy clinic to see if it did anything and saw a big improvement, I was so sick I couldn't wait any longer. I asked the doc to send me there after a psychologist insisted, I've been doing...

I'm about at the end of my rope, doc is hopless, all the docs here are hopeless, allergy clinic didn't do coeliac test pre elimination diet so now they want me to do a gluten challenge to tell me what i already know and am already doing, how did these idots get a licence. Youngest son just got back bloods, he has anemia, waiting for his coeliac test to come...

My antibodies were negative (not suprising since I'm gluten free) My genotyping was apparently positive HLA DR/DQ Genotyping for coeliac disease HLA-DR 3, 15 DRB1 03, 15 HLA-DQ 2, 6 HLA-DQA1 01, 05 HLA-DQB1 02, 06 CONCLUSSION GENOTYPE SUSCEPTABLE FOR...

I had bloods done and when the results came back I was negative for the antibody test but positive for the gene test. My GP doesn't know what this means and told me he'd have to get back to me on it. I've been gluten free for some time and the allergy doc told me the antibody test gives a false negative if I'm not eating gluten. Also my imediate family...

About 18 years ago was when I had the worst of my symptoms (just after I had my eldest son, yes it's been going on this long and a stack of misdiagnosis in the mean time where the treatment made me worse eg: "irritable bowel, eat more high fibre cerials") I don't ever want to get that sick again. I don't know if I posted on it before but I lost 4 stone in...

Well I finally got to the allergy clinic after several doctors refusing to send me and wanting to blame it on anything from depression to irritable bowel to chronic fatigue (I thought they were meant to eliminate all the other potential physical causes first ) One sent me for bloods some of which came back positive and then told me she didn't know what they...

Well I got about half of it sort just going gluten free, then I felt fine and thought I could start eating it again and you guessed it I got sick. After speaking to a doc familiar with food intollerance/allergy I was sent off to the allergy clinic where they've put me on the elimination diet. I've been on it for the last few months and they have given me...

Whew, I'd been looking for an alternative to sandwiches so I thought I'd try sushi rolls but with meat and veg instead of the raw fish, I got the gluten free soy sauce (doesn't taste very nice) I just wanted to be sure the rest of the ingredients were ok. Thanks

Now I know why I'm sick from it some of the time not others. Beware in pubs, most are honest but I used to work in one that topped up with the cheap stuff.

I have trouble with Flagyl which ironically the doc gave me when I went there with stomach pain.

Is glutenous rice a problem or is it just a name mix up? What about rice vinegar? The ingredients said it's mostly gluten from rice?