Susan Kelby

Well, I started my daughter on a restricted diet Friday, and today WE HAD A GOOD DAY !!!!!! The first in WEEKS !!!!!! Oh, please let this not be a fluke !!! She is missing her Cheez-its, but agrees that having fun instead of fighting is definitely an improvement. I think I will still have her tested through Enterolab, in case she doesn't have all the...

If you go to www.k12.com and click on K12 Options, you will be able to put in your state to see if there is a charter public school that you can enroll in and receive K12 for free. Susan

I'm so glad you this hasn't been your experience, Nicole - I wish it wasn't mine ! But, unfortunately, this is what I have seen. There are very few children who are have been taught to be respectful and kind - the majority have been left to raise themselves while their parents drink and pursue members of the opposite sex. As far as teachers go, my...

I started homeschooling my daughter last year when she started 3rd Grade. She wasn't acting out in school, but said she was bored, and when we had her tested, we could see why. The school is small, and our best choice seemed to be homeschooling - actually, it was my daughter's choice. We are very lucky here in Ohio - we get the awesome K12 curriculum for...

We started the diet today - I'm putting her on the same diet I follow: no gluten, casein, soy, yeast or eggs. So now we're in the same boat. Tomorrow she has to sit through a pizza party, poor kid. The bright spot is we'll be sitting at the "weird food table" with other kids who are avoiding gluten and casein also. Now, what about sugar ? My daughter...

I've read alot about how great Disney is for celiacs, but I need to avoid gluten, casein, soy, yeast and eggs. Has anyone with multiple sensitivities been to Disney ? Can you give me any advice ? Thanks ! Susan

Hi there. I've been recently diagnosed with Gluten Sensitivity (and casein and soy and yeast and eggs) and it has got me thinking about how alot of problems in my past were caused or aggravated by my diet. Now I'm starting to wonder if gluten could be causing some problems in my daughter - I'm carrying two copies of the gluten sensitivity gene, so she's...

Thank you all for your comments. I had blood drawn yesterday, but unfortunately my doctor only ordered IgA and IgG. We tried to contact him to get EMA and ARA, but he had already gone home. The lab tech was great and drew extra blood so that IF we can get him to order the other tests and IF the only lab they send out to will perform them, we're all set...

Thank you so much - this is exactly what I was wondering. I'm not terribly concerned with what doctors think - I like my current doctor, but he's not God and I've had my share of losers and incompetants. I am still trying to get through to my doctor for the blood tests; as I've said, I like him and I'm sure he will order the tests. And since I just stopped...

I'm just getting started with testing, and I've read oodles on the forums yesterday and this morning - thank you all for sharing so much info ! From what I've read, Enterolab testing seems to be the most definative, since blood tests can miss early damage, and endoscopy/biopsies are a hit-or-miss whether or not they sample where you actually have damage...

What I was thinking of doing was to greatly reduce gluten, but still eat a little every day until I have the blood tests or Endo lab test. It doesn't sound like the endoscopy is worth it. It sounds like it only takes an iota of gluten to cause problems, and since it's so hard to completely eliminate it anyway, it would be easy to just cut down until the...

thanks for the response. I guess I'm not all that hung up on having an official diagnosis - and I'm not excited about testing. And I don't like the idea of keeping on eating the gluten and risking another hellish day like today !!!!!! The only thing is that if I do end up with celiac, then I'm going to worry about my daughter. She is nine, and her only...

Hi there. I've been reading the forums all day, and don't want to waste your time with dumb questions, but thought I'd go ahead anyway. I had a heck of an attack this morning, and thought it just might be celiac. I'd appreciate your opinion: I've had digestive problems for 20 years - typically, a run to the bathroom about 20 minutes after a meal. I...