concerned-mom061

Well, thanks to you all. We are all so happy to have her back. It took her a while to get back to her old self....but once she did she came back with flying colors. And, yes, I have been told about the bone marrow transplant, but they have really cut back on that for many patients have contracted a form of leukemia. But, thanks for letting me know. ...

I am of Irish decent. My mother had ared tent to her hair....and several of her sisters have red hair. My daughter is the first known case in the family.....and she has a red tint to her hair......but after her diagnosis..many of my mom's sisters are being tested, for they all have the symptoms. My mother died at 41 of natural causes.....but in the end she...

Hello...I'm sorry to hear about your problem. Celiac disease can be very stressful. And, not everyone has the same symptoms or reacts the same way. My little girl started having symptoms at birth...then she got little better b/t 4-6 months...then got really bad at 8 months. She battled with all kinds of problems ranging from severe diarhea, constipation,...

I haven't heard from Cindy....I sure hope all is well w/her. It is a big relief. We have really enjoyed jsut being at home w/her. It's still really hard to know what she can and cannot have. We have been limited to so little. It's hard to know what is safe and what is not. But, we are making real improvement with it all.

I agree...and that is what everyone has been telling me. I do want to place a suit against her mainly so that she can never do what she did to us to anyone else. I often fear what might happen to the next child she takes away. However, right now I do not have the time that is needed to go forward with the lawsuit. I have to get everything w/Kylie to...

Hello...I haven't had a alot of time to get on here as of late..so I wanted to check in and give an update. Just to make sure everyone remembers....I am the mother from Georgia who was accused of MSBP by a doctor. My little girl was taken from me for 30 days, but I won in the end. First, I wanted to thank you all again for all the wonderful and kind things...

Thanks a bunch Andrea!! You guys are great! As I told Andrea...sorry I haven't posted in a while. I've been really busy w/Kylie and my little brothers, they are 12, and I am raising them. Kylie somehow caught the hand, foot, and mouth disease, and I have never seen her so miserable. She's been running a high fever, and wouldn't take anything by mouth...

Well, is a scope really the only way to tell? Is there not some other non-invasive way? I'll do anything in this world to help her, but I hate to put her through all that if there is something else we can do. I understand that you are not telling me to do it, and that you're not a big fan of it....I'm just asking if there is another way.

I don't think I want her to go through another scope. She's had one done several times, but always for a different reason. She has a really good GI doctor in Macon. He was her doctor from the beginning, and then we got sent to Augusta when she was 4 months old. That's where the crazy doctor that tried to accuse me of causing her problems is from. Now we are...

Wow...I just researched it, and that's scary. Either one could be it in a nutshell. I have never heard of either disorder. I am definitely going to bring it up to her doctor. They did a biopsy on every part of her GI tract except for her esophagus. Thanks for bringing this to my attention. And to everyone else who wrote....thank you for your support and...

Hello. Sorry it took me so long to respond. Kylie has been keeping me busy. The night before last she kept me up all night crying....which is really not like her. Then, at about 4 am she had a stool that was black and green. She had 4 more after that the same color. We went to the doctor yesterday morning, and she lost 4 ounces since we went on Monday. They...

No, my little bros are past that stage. She isn't exposed to much. Also, I know it's nothing from around here b/c when they had her in foster care for those 30 days, it got worse. The rash spread to her whole body..it was even in her ears. Though, I did get to see her twicw a week. She came home from the hospital w/the rash that bad. Yeah, Tanya seems...

You made some really good points and suggestions. I really appreciate it...and again, I'm truly sorry about what you and your children are going through. Yeah, I have learned the hard way about foods. She doesn't get anything now except for formula. As for the rest of us...we haven't went gluten-free yet. I raise my 12 year old twin brothers who both...

Yeah, I understand what you are saying. I have often thought that the gagging thing had to be some kind of disorder b/c m along w/lots of other members of my family, have a very sensitive gag reflex. I can barely swallow a pill w/out throwing up, and if I eat or drink anything that has a bad taste, I get really sick. As far as her not having strong taste...