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mom-to-claire

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  1. Yes she has been on colchicine since October and her fever attacks or "flare" have been pretty much non existent since then. She's had 3-4 minor fevers less than 24 hours which is a HUGE difference. She is doing great. And even since going back on gluten she seems to have more of an appetite, her mood seems different in a good way and there are no negative...
  2. Thank you for your reply. I must correct something though....FMF is not an auto immune disease it is an auto inflammatory disease which is quite different. She has been seen a few times by an immunologist and they are satisfied she does not suffer from any auto immune disease (with the exception of possibly celiac I guess). I'll have to read the link...
  3. I posted something similar in the babies and kids section but wanted to come here too. My 3 year old daughter has suffered from various things in her short life and while we were struggling to figure out what her problems were and find a diagnosis, I put her on a gluten free diet without getting her tested first. She was only 10 months old when we did...
  4. bump.... Anyone?????
  5. I have a very long story about my daughter but I'll spare you the details. She has been gluten free since she was 10 months old...she just turned 3 a couple weeks ago. She has never had a diagnosis of celiac which is why we are doing this challenge. She has multiple medical issues that have all pointed to a period fever syndrome (after many, many, many...
  6. Have you tried the pizza yet??? I sent an email to them asking about their procedures to avoid CC and am now willing to try it but haven't had the opportunity yet. We live north of Toronto and our local Pizza Pizza isn't part of the pilot.
  7. Hi, I'm not sure I'll be much help but your post sounded a bit like my life a year ago. My daughter first had a severe reaction to rice cereal at 5.5 months old. It was her first solid food. Within about 3 feedings she was vomiting so much that only yellow bile was coming up. We did try it a few more times but basically gave up and she was only getting...
  8. I was just sent the gluten free menu in Word format and I can send it to anyone if they send me a PM. or if you just post your email
  9. We are sure my DD has a gluten intolerance but not sure if it is Celiac or not and probably will never know as I'm not about to challenge her any time soon. She is doing well in terms of her mood, sleep etc being gluten free but is still not growing. We saw a pediatric GI recently and he does not think she has Celiac due to the fact that she was anemic...
  10. I have a question about stickers and bandages or anything really with a "glue". I've been reading the site and other sites to find out if the self adhesive stickers that kids love to play with are gluten-free. My one year old daughter is in daycare and they do some "crafts" once in awhile. Today, I went to get her and her teacher said "Oh Claire loved...
  11. I was wondering if anyone is taking Palafer Iron Therapy Suspension - cherry flavour. My one year old daughter was prescribed it today and when I called GlaxoSmithKline they gave me some lame information about the fact they don't "add" gluten but can't guarantee the product is gluten free because they get their raw materials from other sources! What kind...
  12. my DD just started daycare this week. She is an infant so she doesn't know the difference. I was certain she had a gluten intolerance but now I think it might be more but don't know where to turn. She barely eats anything (and it is all gluten free and now we are trying lactose free) and is miserable all the time again. I tried to go gluten-free myself...
  13. My daughter is almost one and has been on a gluten free diet since the end of October. First 6 weeks were great. Total change in personality, weight gain etc. Then a plateau. I decided that I should go gluten-free as well since we are still BF. Within a few days she was miserable again. It has been almost 2 weeks since I went gluten-free and she's back...
  14. I'm do not have Celiac but my one year daughter might. I'm still so overwhelmed with everything and the unknown. She has other health issues but we don't have any concrete answers. We are in Stouffville, Ontario (north of Toronto, near Markham!)
  15. One of my daughters has had testing for intolerances, and she tested intolerant to sugar and wheat. One of my son-in-laws tested intolerant to sugar as well. He gets terrible eczema all over from sugar, plus he gets stomach upsets from it as well, and I hear that as a kid, he refused to eat candy, because it made him feel completely out of control. How...
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