Peta

Took my 15 year old son to the doctor again today. He is still very low in iron and is awaiting a biopsy (hopefully in the next few months). He has had the HLA DQ2/DQ8 genotyping for Coeliac. The results were: HLA DQ2 Alleles DQA1 *05 Positive DQB1 *02 Positive HLA DQ8 Alleles DQa1 *0301 Positive DQB1 *0302 Positive ...

Thank you. I respect all opinions.

Thank you for your replies. I didn't realise that false negative results were so common? Thanks for the advice about asking for extra samples when they do the biopsy. I will certainly ask for that. I won't trial a gluten free diet as I want the biopsy done first. The Gluten-free diet is so restrictive that I don't want to just 'presume' he's Celiac...

Hi, I would really appreciate any opinions on this. My son is 15 years old. He is 6'2" but only 60kgs... he is very thin but eats plenty. HISTORY: We suspected Celiac a few years ago. In 2003 the doctor ran a gene test for HLA-DQ2 (DQA1*05/DQB1*02) or DQ8 (DQA1*0301/DQB1*0302. It came back all positive for all four. Considering his symptoms (nausea...

Rumbles, Thankyou for taking the time to answer my post. I feel the more informed I am when we approach all of these tests the more I will understand about the results. I will certainly make note of your advice as I have heard of that before. Add to my list... dental problems (teeth growing above teeth...and bits breaking off!?) I feel satisifed...

Hi to all. I just want to run a few things by you all and see what you think. My 11 year old son has suffered GERD since he was born...he has tried many things and was referred to a specialist 4-5 years ago who did a biopsy for celiac whilst testing for GERD. The test was clear. Fast forward 4 years and his GERD remains... plus he has a new problem...

I, like you, did not understand why everybody suspected of Celiac did not have a gene test taken automatically. I thought surely this would removed the need to be periodically tested for some people (those without the genes)? But after visiting a specialist I now have a better understanding why the gene test is not standard. My local GP referred my son...

Yes, she used that word in amongst all the talking she did? Do you know anything about it? Peta

Hi All, Took my son for his appointment with the specialist. She assured me that my son does NOT have celiac, and proceeded to check for other causes for his symptoms. She was a specialist and is very informed on celiac. She said that although he may develop celiac at some later stage (or may not) that he definitely did not have it at present. She...

My son's tTg (which I presume is Tissue Transglutaminase IgG and IgA) was <20. The normal range was <20 so he appears normal there too! Yet she still said he needs a biopsy. Our local doctor pointed to the gene results on the screen and said "it looks like he is celiac" so in other words, not really sure she knows what she is looking for. I am...

I don't think even the doctor knows if they are borderline because other than '<20' there were no other figures printed, so we only know they were under 20 (which is normal) His blood test shows low white cell count, low lymphocytes and a low ferritin level. The doctor may have taken these into consideration but from what she said I think she is...

Just curious. My 10yr old son had the Celiac Panel done (5 tests). The normal range stated <20...... my sons results on these test was <20 but did not give the actual figures. Are the figures relevant if they are considered in normal range... how would I know if he was IgA deficient (or would this have shown up in the other parts of the test...

Thanks. Knowledge is power, and the more I know the more I want to know. Peta.

I did have a ridiculously long post written but then deleted it because I realise that I would be better off just asking the questions I needed to know (instead of a life story ).... 10 yr old boys FERRITIN level 19 (normal range 7-150). Although he is classed in 'normal range' could he still be considered Anemic? His white cell count and lymphocytes...

I feel this is such an ongoing drama... but when I read the amount of time it took some of you to get a diagnosis I feel it perhaps isn't so long afterall. My 10 yr old son is awaiting a biopsy, which was ordered by his doctor who announced 'It looks like your son does have celiac'. After asking for a copy of his blood test and celiac panel I realised...