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nickra

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Everything posted by nickra

  1. nickra
    Hello! My consultant could tell from looking during the biopsy that I didnt have ceoliac. I think sometimes it can be totally obvious one way or another - but in most cases they need to check with the biopsies. he still did the biopsies to make sure obviosly (I didnt go through all that for him to guess!!!!) I saw an endoscopy on the telly (city...
  2. nickra
    glad your result was normal - i see my consultant again in august so time to get on with stuff until i get results cheers nickra
  3. nickra
    did you sleep much after it? the nurse told me to lay down and that i would fall asleep soon 10 minutes later i was sat up watching tellky because i was bored and another 20 mins later i rang for the nurse and asked if i could go home maybe i am a freak patient ps - i drooled, gagged, spat, wriggled and basically totally freaked out - i dread to...
  4. nickra
    hmmm, i can see why you might think its in my head - as you were put out completely i think we obviously had very different experiences. i wasnt given a choice about it - but they did tell me that some people need more sedation than others. however i know for sure it is not in my head. OK - please accept my excuses to anyone who is a wee bit squeemish...
  5. nickra
    hi i had my endoscopy/biopsy this morning. its obvious that each person can find it quite different to another. i was sedated but i remembered every bit of what happened and i did not sleep at all afterwards. i can feel where they took the biopsies from - which is kind of wierd as today has gone on - i am forgetting more and more about the procedure...
  6. nickra
    hi thanks for everyones help on these pages my biopsy is tomorrow and im so nervous - ive read different accounts on here, some people saying it was not nice, but most saying it was painless and no problem i hope mine is the latter!!! well, i guess theres only one way to find out, i just want to get it over and done with. cheers everyone
  7. nickra
    thanks all for the help and advice, my doctor is being reasonable about it - he has not ruled out coeliac and will do the biopsy to check - but he is going to do lots of other tests as well because he is convinced it is something i picked up while travelling. what he is saying makes sense and i did get very sick while in Bali, but having had the positive...
  8. nickra
    Hello! Just wondered if anyone knows if it is possible to have a false positive blood test? My GP tested me positive for coeliac, but when i saw a specialist to arrange a biopsy he said he doesnt think it is coeliac. he said it may have been a bug i caught while i was travelling in indonesia 2 years ago...he also said i am too healthy to be coeliac...
  9. nickra
    Hi, Thanks so much for that info - I really found it helpful and will look into the things you suggested. Cheers
  10. nickra
    lol i find that because i have such a quick reaction to gluten i have to eat really fast because once i feel poorly i dont want to eat anymore and i have to throw away the food and then a few hours later im starvin again! if i eat too slowly i get sick before i even finish the meal - what a bugger that is???
  11. nickra
    Hello, Have read a bit about bone and joint problems relating to celiac disease, does anyone know more about this? I have severe back, shoulder, leg problems that cant really be explained. i was wondering if it is just another sympton or am i guilty of thinking i have everything i read???
  12. nickra
    lol - are you havin a laff? i think im the oppositte - my belly is always hungry, although at times when i have been really sick, my body has just repelled all thoughts of food, which is kind of wierd sometimes, but always makes me feel so much better! nicky
  13. nickra
    Alexolua: lol - I know what you mean, it is kind of twisted that the doc is telling me to eat stuff that is bad for me! I try to see it like i have the best of both worlds - for now i get to eat everything and anything i like (and believe me i am really going for it with some of my fave stuff) and then in the future i get to be all healthy and...
  14. nickra
    Hello, I'm waiting for my biopsy and my doctor advised me not to start the gluten free diet until after the test. I have already had a positive blood test, but want to make sure. It's a nightmare situation, knowing that cutting out gluten will probably make me better, yet not being able to do it. To make it worse I got a letter from the hospital this...
  15. nickra
    Emmy, It's so nice to hear someone being so supportive, I don't even tell people about my condition for fear of bad reactions! As regards to how long it takes to get sick, I know within half an hour - sometimes before ive finished the offending meal I know that it has been bad for me. It is a real pain because I cannot come off gluten yet as i am waiting...
  16. nickra
    wow - something for me to look forward to (as well as being well of course) i'm still on gluten until i have my biopsy, I'm not looking forward to coping with the diet, but it will be nice to get rid of those black rings! fingers crossed x
  17. nickra
    Hi, I am waiting for my biospy/endoscopy at the mo and as i live in the uk i was wondering if anyone knows if the procedure is different over here. my doctor hasnt really explained it thoroughly yet, but i got the impression that i will be awake throughout the process - with perhaps a local anesthetic, but not a general one. i really dont like the...
  18. nickra
    1. female 2. white - english 3. have been ill since age 13 on and off 4. have only just been diagnosed - so nothing to compare 5. doctor-diagnosed 2004 6. have had positive blood test and am waiting for biopsy 7. still eating gluten until biopsy test comes through 8. have previously been diagnosed with IBS - but could have been celiac disease in disguise...
  19. nickra
    Hello, thanks sadiesmomma thank you for making me smile too often i have sat reading this forum in floods of tears - it was nice to read a very "human" story! good luck in your endeavour...
  20. nickra
    i have no idea what may have caused your problem this morning as i am new to all this, but i can give a big hug! (((((HUG)))))) all the best and i hope you find out what food is troubling you nickra
  21. nickra
    Hya Its good to hear ytou have someone close to you who cares. but i was wondering why he wants to blame himself for your illness? Does he think something he has done made it happen? Maybe try surfing the website with him so he can see where celiac disease comes from and how many people have it for years before being diagnosed. it might be that ytou...
  22. nickra
    Hi I am new to the gluten-free diet. I thought I would post for any UK poeple out there! I am currently working my way through Tescos "Free from" range. Some things are good - like the crackers, but some are not so good -like the bread rolls. but i think i will just have to get used to them! i went to somerfields and although they dont have...
  23. nickra
    Thanks for your advice Shirley, My doctor was quite honest with me and said she didnt know much about it - in fact she said i was the first person she has had come back positive from the blood test. so i will give her a ring on monday and tell her i dont want to affect the biopsy by going gluten free too soon. not looking forward to cutting out dairy...
  24. nickra
    wow - i am so glad to have found this thread on the forum - after reading about so many people who are under weight due to celiac disease i was starting to think i had been mis-diagnosed. i am a bit (well, maybe a bit more than a bit if i am truthful!) overweight and have always had weight/diet/digestive problems. i was dx celiac disease only 3 days...
  25. nickra
    Thanks everyone for the advice. I think it was one of my house mates responses that put me off - i was feeling really down having only just been told i had celiac disease that day and he basically told me that doctors are full of rubbish and not to take any notice. - but he has no idea of the suffering i have been going through to make me go to the doc...
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