nicolespeanut

My husband and I had it and brought the kids to be looked at and the Dr said all looked fine so they didn't do the test but sure enough, a week later my daughter complained of a scratchy throat and again I brought the kids -- two year old was fine but my girls (6 and 4) had it. You mention your son is immunosuppressed and are these spots typical of his disease...

Has he been exposed to strep? You describe a red throat, swollen tonsils and white spots which sound exactly like what we just went through last month with a strep infection. Maybe others have different ideas but I would want to rule out strep.

Had a positive titer first ANA test, negative ANA next test. All other test ruled out Lupus. Dr. didn't think UV light should bother me and I was just curious to know if it bothers people with DH.

I am just curious if anyone notices a reaction with UV light? I do not have DH (linear IgA bullous dermatosis) but the diseases are so similar just wondering if Dh sufferers react to sun. Thanks! Nicole

I do the same thing! I never (unless absolutely necessary) scrub my skin with soap. Usually just the necessary areas. The shampoo is really nice. When I get a second I will post the name.

The biopsy of the blisters showed Linear IgA bullous dermatosis. I thought it would be DH but nope (Derm thought it pemphigus so I am lucky). I guess before immunoflourescence, they thought both were the same disease. IgA is deposited differently on the basement membrane zone in the diseases, granular in DH and linear in LAD. Supposedly some with LAD...

Thanks Sarah, I have not gone gluten-free yet. I am really having trouble getting on the wagon as my doctors think no(allergist, gastro, primary care), my husband thinks no(thinks it is too stressful and no reason), enterolab says absolutely (both gene and gluten/casein sensitivity) and I have an autoimmune disease and thyroid disease both of which can...

New to all of this and I am wondering if anyone out there feels that our bodies will eventually heal and gluten can once again be tolerated. Please don't laugh if this is an obvious no but I am very curious to know if there are ways to heal the body and stop the response of gluten as an invader. I hear about success with other allergies and wonder what...

I just read that it is a hard spring wheat with a high gluten content. I guess it is enough gluten for me to feel ill immediately unlike semolina which does not. Crazy.

I forgot to mention the change of weather thing-- I've gotten that one too. It is really dry in my house but I still get it in the humidity. I also have it all year round. I don't think it is the weather. Perhaps a chemical sensitivity. People tell me to use Dove but that makes me itch like mad. Who knows? I'll let you know how this rice protein shampoo...

I have suffered from a racing pulse after eating for many years now. My husband thinks I think too much about what is going on inside. I am wondering if anyone else suffers from this too. I have asked my dr and my allergist and they both say it has nothing to do with food (so I guess it is only in my head?).

For many years I have suffered from terrible stomach aches after eating certain meals and last summer pinpointed that the cause is Durum Semolina. I can have one bite of the stuff and shortly afterwards I will have the worst stomach pains. I can eat regular pasta with no obvious problems. Whole wheat pasta is also a problem but perhaps this too is made...

I too get this reaction with water as well as from shaving. Do you get it in the ocean? My skin really reacts to the salt water. I am usually itchy after a shower. I am trying a rice protein soap (no wheat or gluten)-- it is actually a shampoo but I have been using it as a soap too and I haven't been itchy the last few showers. The other night I used...