srokie

Ok here's the info Dr. Saviano gave me about soy in September of 2006. I told you I would tell you the SECOND I got my hands on it and I kept my word. Open Original Shared Link Here are some notes I wrote the day she talked to me about soy: Soy = 06 gene Liver takes gliadin and treats it like wheat. T-cells drop like a rock. Prolamine with a fraction...

No I haven't read your posts and no I'm not going to; this is just FYI because you may recall I'd give you info the second I got my hands on it and I keep my word. Someone said gluten is only dangerous if ingested... Here is a doctor saying it is dangerous if it is inhaled. I am making no comparisons to anything I have previously said so don't go yelling...

You know what, forget you guys. Use all the flour you want. Obviously nothing I say is good enough for any of you. I met a few people on here who I will keep in contact with, but as for the rest of you, you obviously could care less about getting help unless some MD supershot tells you all the info. This is my last post, thanks for shutting me down again...

I was told by that celiac friend of mine that it was Charmin and Bounty, and when I asked for clarification, she said it's anything made by Kimberly-Clark. She is extremely sensitive and wouldn't tell me something like that unless she was having a reaction to it.

It is too true, and I wouldn't have posted it if I weren't sure. I know you are all skeptical, but I'm trying to help you. Why would a newsletter that and EXTREMELY sensitive celiac I know gets completely make up their info? This girl was feeling bad for a couple of months until she discovered the Kimberly-Clark fact, and hasn't had a problem since....

I don't know if this topic has been addressed or not yet, since it's not "new research" (and it's not from Dr. Saviano, haha) - I got this information from a celiac at my college, who got it from a celiac newsletter or magazine.. or something... Anyway, any toilet paper and paper towels made by Kimberly-Clark are dusted with flour to make them more absorbent...

Just an update - My mom has a roommate who is a doctor, and he demanded answers about this soy issue. Dr. Saviano gave me info to give to him, and after asking him where it is in his room and ransacking it, I can't find it. He gets back from his winter break on the 20th... I will share the info when I get my hands on it.

That made me crack up Amen!

This is really sweet; many thanks to all of you. I didn't start posting when I was diagnosed because I was just too sick. I barely had the energy / willpower to get through each day with the difficult new diet on top of everything else. Now that I'm feeling better I have the energy after work to see who else is out there suffering with me. I am extremely...

Thank you Deb - can't wait to read these when I'm off work!

I absolutely agree! Unless it says (from corn) after it, I refuse to eat it. Labels are not reliable. Planters dusts their nuts with wheat to keep them from being oily, and they just pay a fine not to put it on the label. They've been given a time limit but I see no help in sight. ... Stupid honey roasted peanuts I used to eat like every DAY!!

There's a girl at my college with celiac... and I'm almost positive she sees Dr. Rudert because the name sounds extremely familiar. And this girl has never talked about soy being a problem. Soo basically we're down to 3 options: 1) my doctor misunderstood my question and the soy thing only applies to a specific gene of celiac (i think mine is 0305...

Yeah, I'm sorry I made that so unclear. I didn't mean to convey the message that all celiacs can have butter... I just meant that soy and casein both have prolamines I know a celiac who can't have casein or whey, so she's out of options as far as dairy.

I am also forwarding these on to Dr. Saviano. The last time I asked her questions it took a good month for a response, just to give you a head's up.

Thanks for the recommendation!