needtobebetter

Hello,

I do the exact same thing when i was living at my mums, my dad said its like theres a big mouse that comes out at night, theres all crum bs in the morning. The trouble is I go for anything sweet and (not as bad latley) anything with gluten. Then the next day i wake up feeling so ruff and dont sleep normally pouring with sweat in the night.

Ive been good the last 4 nights but Ive been so depressed as I ended up with something happening to my muscles on the right side I kept binging in the night. I was sticking to teh diet in the day maybe two days at the most then getting up.

Thinking of you. I am seeing a neurologist shortly i'll let you know what he says about it.

I am staying at my sisters at teh moment and some mornings Id come down and she couldnt believe id eaten stuff for kids packlunch. She also knew when i had by not only my massive belly but I m very bad tempered and depressed when i ve eaten it. Its embarrassing Ive even done it at a friends before.

take care

hugs

mandxx

Thanks im going to do the diet youve mentioned I am better with no carbs or even just pulses is a big differce but it is very boring. I need sauces and things to bring the food alive and cant have sugar etc and it gets so boring.

I also get bad herpes infections when i eat tomatoes just to add to the problems. I just am a different person when i stick to the diet mentaly and physicaly.

I'll get the supplements next time i am out Ive ordered the biosil today.

Jopefully the neurologist will be able to work out from my muscles whats going on maybe i have a different autoimmune which is causing candida, ive been told they all do. My uncle has Rheumatoid Arheritis and he has candida. he cant eat fats, sugar and he looks like a skeltinton but feels better on the diet!!!!

Thanks

Mandxx

Thanks every one xxx

I have definatley got a problem with sunflower oil and all oils I think the malabsorbtion makes sense I am going to get some linseed but not sure if the same things will happen. I do get bad painin my right side of back after ive eaten fatty food even salmon makes me feel sick its too rich and fatty..I told the doctor and he did ultra sound of my gallbladder and it was okay!!!?? But ive been on and offteh diet since my face drooped as so depressed about it.

The other thing is My period stopped and my estrogen low for a year. Before i saw pituitary specialist I stuck to diet for over a week and got a period!! and my estrogen was normal!!!!

So If iam malabsorbing fats will it get better the more i stick to the diet??? Ive just ordered Biosil to see if it helps.

The pain in my foot is my right side teh same side as all the muscle weakness. Its liek a sudden shooting pain in between my toes (the middle two toes) badly hurts I even panickes i have DVT or something..

Iam going to ask to be reffered to a celiac specialist.

So if i keep eating lots of oilive oil, mackeral my skin should get better???

I also get these little patches of exzma different parts of my body, which look like DH..I just dont want to put myself through the testing having to eat it again..

Thank you your input has made me feel a bit better. I was suicidal yesturday as i kept being told its my hormones due to no periods possible hypopituitary and then its all normal, I was hoping on hormone replacement it would all get better. Iam so consious of my skin looks old and it feels very uncomfortable. but diet makes sense.

I am currently eating

low carbs

Rice, potatoe, chick peas, kidney beans, meat, fish, vegteables

I get thrush when i eat fruit so i dont eat it as the sugar affects me due to the candida should I just eat it anyway?? my stomach bloats..I cant eat most sauces, cant have dairy, not sure about soya..cant have chalomile tea!!!

Bread, coffee, pasta, cheese, processed foods , alchaol...fruit an sugars make me very constipated but wheat causes explosive number twos..

I am much better with no carbs at all just veggies and the I can go to the tolilet regular and my tummy goes very flat..i did it yesturday and my stools came out the shape of my intestines i went about 4 times looked like stuff that had been stuck there for ages....

xxxxx

Hello Thanks..xx

I am 32 years old. I do have problems with fat as well though in particular sunflower oil.

When it happened last year I was pretty delirious aswell i think and went into my mums room and said help my face is falling off!!! MY dad had just left her and she knew I was in a state and i think she thought i was sleep walking or something and went back to sleep.

I felt like i couldnt breath so I jumped in my car and drove to a&E I could hardly see properly and wheni got there they found out I drove and just said to go and see the doctor, dismissed me!!! They tried to give me a pain killer but I was worried and wouldnt have it due to celiac and what had just happened.

I had a mRI and didnt show a stroke?!! My face is still the same and my arm and leg. I ve noticed my face droops more when I am tiered. When I eat wrong my body feels like it holds about 7lbs of water!!! Then I come off the diet and deflate!!!

I am really struggling with sleeping I never feel like Ive slept and my mouth is chewed to bits in the morning..

I understand about candida and have thought praps its not celiac and I have something else wrong whichis upsetting my balance and causing candia..

The other things I wondered is circulation could this cause thin skin loss of elastcity praps Ive got a totally different disease. I keep getting very sharp pains going up my foot on the right side and do worry taht I have something like that aswell.

I'll get some evening primrose but I have before and I am even sensitive to that!!! Anything to do with flowers even chalomile tea makes my stomach swell ...

Thanks awfully..xxxx

Hello thanks everyone..

I became sick 3 years ago with Distended belly, impaction/ chronich constipation, anxiety, thick rash like exzma base of spine. saw gastro apparently they did a blood test for celiac but I am not convinced. Said nothing wrong.

Advised to go and see homeopath and she said i had candida and to do the diet but she said i could eat ryvita and they made me feel ruff, so i stopped having them (contain gluten dont they). I did her diet for 8 months thinking i am getting better lost alot of weight and was mainly eating meat fish, veg and rice cakes and mineral and viatamins.

Then I went back to eating got ill and she said i have an underlying problem so i got sent of to have biopsy for celiac had to eat for 5 weeks . Only thing I can think of is I only ate a bowel of porrig and 4 slices of bread each day..maybe it wasnt enough after doingthe diet for so long/?!!

THen when it was negative i kept binging on chocolate etc was so depressed as so ill. Even when I went on the diet I had terrible fatigue, but maybe lacking in vitamins as i wasnt seeing the homeopath so stopped the supplements.

Then I had loads of drama with Dad leaving mum and fihgting etc..I tried a antidepressnat and I woke up early hours of the morning with like a panic attack my heart pounding, pressure headache and my face had dropped and my neck gon into spasum..I was cnstantly shaking for about two weeks, dioreah, lost about 1/2 stone was going straight through me.

I dont know what happened but I have weakness in my right face, bottom, neck spasm and tricep

My face gets worse when i am tiered i think.

So Since that happened I got so depressed about it all and now consious of my facial weakness aswell I nearly gave up!! I did have another 3 tests for celiac but I kept doing teh diet for a couple of days and then seeing my face and thinking whats the point and bingeing!!!

If i eat fruit I get very badly constipated. I d like to eat fruit as it would be so much easier to do the diet but I get sick of having an itchy ladies area and teh constipation.

Ive just been reading about biosil on here from someone else and it does say it stregthens collagen and sisicon is found in whole grains. I dont eat any!!!

Im so bored of eating rice the only one i like is basmatti so been eating that or I eat buckwheat pasta..I really miss bread but its packed with yeat..and sugar..

God I am so confused..

THanks everyone xxx

Hello,

Hope your all okay.

I still dont know whats wrong with me and still not convinced about a few things. Ive just come back from pituitary clinic as had no periods apart from one in a year and had low estrogen. My skin has lost elasticty and become thin and no moisture to it so they thought maybe I had a pituitry problem.. I ve got to see the doctor about my blood tests but reception said nothing marked as urgeunt so I'll see what he says.

I have been on and off diet and i am not doing it anymore I am just worried about vitamins due to the fruit.

I am also really down about my skin and wondered if it can be due to celiac or not enough silicon in diet as not eating wholegrains ??

Or i thought could celiac affect thyroid whilst your still eating it as ive had some tests where ive been off the diet and its been low thyroid.

Does any one else have multiple intolerances sunfloer seeds etc..

I also have eithe watsing or weakness on the right side my face, tricep and feels like half my bottom and my innder thigh. I am having trouble with my hips aswell I canmt lift my leg lateraly ....

My face looks droopyer when i am tiered so I am wondering about MG as thats linked with celiac ..

I dont know I am hoping this neurologist will be able to help me in london as its a Teaching hospital ..fingers crossed..

Ive noticed i have bad night sweats when i eat wrong aswell and patches of exzma

If anyone can help about the skin I am very down about the elasticty, ive never been fat biggest 9stone.

Thanks you for listening xxx

Hello..I feel so stupid..not even thought of it before..

I came on here over a year ago as ive had bad gastro probs, which never showed on blood test as celiac.

I accidently got on the diet as was doing candida diet, experienced problems with ryvita so when i heard about celiac was sent for testing. Was on thediet for 7 months withur ryvita, had to go back to eating for biopsy and followed a low carb diet and have always wondered if I may be had healed my to much on the diet, for a small amount of gluten!!

At the very begining I had a thick herpes looking rash at the base of my spine, about teh size of my hand but I do suffer from herpes and just thought it was that.

I have distention of my belly, impacted feaces, hung overfeeling, muscle weakness / wasting facial droop, crepe paper looking skin (at 32yrs) tmj, muscle spasum for a year in my neck Wry neck, fatigue, constant weeing, saggy skin on of a sudden..lots more..

After I had the biopsy and they said no i was told to eat again so I did got ill of course sokept thinking it was the candida not celiac, so sometimes had things with gluten in.

I had a further 2 tests by blood which were negative.

Ive recently started getting these small patches on my skin one on my chest, bottom and leg but not both sides??/

Ive looked at photos and it does look like it - it is itchy aswell sort of looks likea cross between exma and herpes..

Can you have DH just on one side of the body thought it mirrored the other side from what Ive read ...

So, Iam going to ask the doctor on Tuesday just seems a bit weird!!

I keep trying the diet and have to do candida diet aswell but I still have other symptoms, which I am having my hormones tested for on tuesday..

I get big puffy face, constipated, bad fatigue / brain fog, cold, also heat intolerance sweat all over my body in the heat, constant weeing as soon as I drink water and the palms of my hands frequently shrivel uplike ive been in the bath for hours and then dry out and then finley faky skin ...feels horrible and my skin feels so fragile..

BUT..LOL..

I also seem to get hyper symptoms nervous energy where I run around doing thing but dont do anything properly, anxiety, talk a bit weird things come out funny, thin skin, muscle weakness, cant relax, rls, TMJ..and other stuff ..

Last year I had a mad attack where my heart was pounding, my skin was all clamy, headache, face weakness, neck wry, arm and leg weakness, frequent dioreah..it was the next night after taking prozac..which i have stopped the same weekend. I went a bit manic,was shaking all thetime and dropping things for about two weeks after..

It wasnt a stroke I had a brain scan..I think I am going hypo to hyper sometimes or something...

Thanks for listening..any advice on DH would be great, came on here last year but didnt even read about dh til i have this weird rash thing..

Mand:)

Hello guys hope your all okay...its mand..xx

Okay, now I am still not counting out celiac as I have strange rashes or patches of dry itchy skin in little clusters which looks like herpes on my body in different places , chest, back, leg..looks like exma but more like herpes - does taht sound like DH to you??

The secnd thing is -wheni do the diet I have a whole other load of stuff that happens which teh doctors think is my hormones..

So my belly feels a bit better with the candida and celiac diet but then I get:

Big puffy face (moon Face)

Weight Gain

Constant weeing after every glass of water

Heat intolerances - my wholebody sweats if only a bit warm

Palms of hands keep shriveling up likebeenin a pool for hours and tthen the skin goes very tight and flakes -this happens at teh same time as the weeing...(Possibly to do with Aldorsterone or DI)

Bad fatigue during the day

Night time anxiety - insomnia, waking up to wee all the time

Excersise intolerance

Dr hair

Dry skin

Muscle tne very poor

change in fat distribution in my body

What I wanted to ask was is any one a celiac and hypothyroid? If so, does teh celiac diet cure the thyroid? is teh thyroid just a spin off from celiac???

I am having allmy hormones tested next week and I want to make sure I am doing things right. If I am on celiac diet will my thyroid or hormone problem show if Iam doing the celiac diet??

I know if iam doing the diet Ihave thyroid symptoms or hormone symptoms...I think this is why I dont ever feel better. They have said possibly hypopituitry..so I just dont knwo what to think anymore..

But if this rash is DH - Iamgoing tuesday to docs and Iam going to insist have it biopsied to confirm if Ihave DH!!!

Thanks guys..I am just confused as wheni saw neurologist the first time I had no reflexes and I was off the diet, but next time I did and I was on the diet!!!so, maybe the diet effects me neurologically..

Sorry hope your all okay missed you loads..Ive been on hormone sites trying to work out what else is happening, also Iam helping people on a thyroid site at teh moment with Diet and excersise as I was a trainer before all this. It helps keep my mind focused on something else....so been quite busy inbetween being ill..

xxxxxxxxxxMand

Thank you!!!!!

I guess I need to try just peanuts and see if its the peanuts...if not it could be the rapeseed oil..i know sugar isnt good but it doesnt make me nauseous like the PB has..my whole day has been wiped out ...

I just want to fast forward to tomorrow..

Mandx

Hi ya..

Just wondered if any one has problems with peanut butter?? I had a few spoonfuls and I feel so nauseous and hungover feeling feel awful...Id been doing pretty well and thought a couple of spoon fuls wont hurt..

It only contains: nuts, sugar, rapeseed oil

I dont understand..but I do seem to get this nausea with fat...do you think it sounds like liver/ gallbladder problem..I dont get this nausea as bad if I eat gluten..its different symptoms..

Hope your having nice day everyone!!

Mandy

Hello ..Thanks Rice Guy..

It has been awful and I am worse than ever thats for sure..

I am not taking any supplements apart from cod liver oil ..I got so down and doctor kept saying your viatmins are fine..i dont think so though..my stools have lots of foods in them all the time..

Ive also noticed that certain foods give me bad nausea..peanuts, chocolate so iam wondering if I have gallbladder / liver problems as I cant have oils either ..well I cant have sunflower oil, hemp oil..I am starting from scratch again from now so have brought some linseed but dont know how I will tolerate linseed..

I get this other thing thats really getting me down where my palms of my hands shrivel like ive been in a pool, they go all wrinkly and then dry out so my hands are tight and then the skin flakes off..I am sure its dehydration but I do drink water so I dont understand..

Ive also seen oral surgeon said I have TMJ..he also said my skin has atrophied..he was looking at cushings but couldnt get tests as not his dept. Basically southend hospital have cocked up some where and now I have complications ..or may be this celiac has triggered Parry Romberg..trust me to get something so awful..

I ve also seen the only bells palsy specialist in the uk who does reconstruction and he said its not bells palsy and the oral guy said its not bells its muscle weakness..and now I am in teh process of being sent to Parry Romberg Specialist ..its very rare..maybe thats why they keep thobbing me off coz they dont blimming know whats wrong..some consultants have just said we dont know!!..

When i saw neuro the 1st time i had no reflexes when i saw her the next time i did BUT I was not on diet the first time and I was on diet the second time..so maybe the diet will help with the muscle weakness???

My bum has gone flat i think thats wasting???

Thanks for the tip Ive made a note and i am going to make a note and get them I just havent got alot of money as been signed off ..

Nice to hear from you any input would be great thanks...Iam sure we know more than the doctors!!!!!!

x Mand

Hello ..

I was on here over a year ago trying to get diagnosed for celiac and I am still struggling as was diagnosed not celiac carried on eating and fell apart..

Mine started about 2 years ago massive distention, impacted feaces, heartburn, nauseous, flu feeling, seizure, atrophie side of nose ..anxiety..

I had a blood test at the begining apparently, which was negative and they just wrote me off with IBS and I knew I didnt have IBS..so I got in a state complained to hospital and was advised to see a homeopath as I got much worse after an operation two years ago with loads of antibiotics. I was told taht I could have candida so I went, she said I had a bad case stuck me on a diet pretty much celiac apart from ryvitas..

I didnt know about celiac but knew when i had ryvitas my stomache would start..so at the end of 8 months homepath said right you can introduce foods now..I got ill again...someone mentioned celiac so I went back to doctors. He told me I would have to eat normal for 5 weeks. So I did..but I was doing low carb so only had porrige in the am and sandwich at lunch time maybe i didnt eat enough????

Turned out I wasnt celiac from biposy but I cant eat:

Wheat, Rye, Vinegar, Fruit, Sauces, Pasta, Sunflower Oil, Chocolate, Peanuts, Dairy..Alchahol..

It is so celiac the amount of things I cant eat apart from the sugar but I was advised that if celiac you would get candida until tummy is healed...??

Any way so I carried on eating normally as I was told I was too thin (apart from massive belly) I had muscle wasting ..I fell apart..I started getting this dark line down my right side of cheek..I was suicidal by this time Id had enough

Then I was so sick of being ill one weekend I came home took an antidepressant and felt strange, there had been alot of stress at home as dad left my mum so she was very upset and shut us all out...they had a fight and she came running in my room at 3am screaming which scared the life out of me..

next evening I woke up at about 3am with a really bad pressure headache and in my nose and my right side of face felt strange..I went out to my car to have a cigarette and noticed my face looked weird ..it did freak me out as I was on the antidepressants which made me feel weird anyway..I asked my mum to help I said my face is falling off ..she just went back to sleep!!!

My heart was pounding couldnt stop going to the toilet and lost half a stone very quickly ...

My Right side of face is flat and drooping, my neck is locked in a spasum rigid, my tri cep has muscke weakness or wasting I dont know..and back of my right bottom and hamstring and my right calf...

The feeling in my right arm and leg is: When ive tried to do a small bike ride when not sick..the area that is flat really hurts after a few minutes on level 1 like it fatigues straight away..and my neck looks twisted and ligaments are very taught ..its all teh same and its been a year..but I am sure my leg feels worse when i ve eaten wrong..and i feel like my body swells with water..

I went to a doctor on teh monday and he was a different one he said you could still be celiac stop those tablets they have maize starch in them ..(Thought that was okay)..

Since then Ive bee on and off the diet as so depressed and Ive had 3 blood tests and one biopsy all say no celiac Ive had dietitains making me try and eat normal..

Could celiac cause right sided muscle weakness ?? I also have wasting of right side of nose, around my eye and in my right hand...

Things have got pretty bad as I am struggling with the diet as not just celiac but fruit, fats, dairy so I started to think no celiac..but may be I have but with candida...and does anyone have a problem with cooking oil????

My right breast tissue is also wasting and my skin in general has shriveled like Iam dehydrated..no moisture to it looks a bit like crepe paper and iam only 32..but if malabsorption maybe its affecting my skin???

I ve now got teh MP involved and they are sending me to a teaching hospital ..they also think I could have a few things going on from complications from something thats been missed in the begining..

They also think I have Parry - Romberg Syndrome ..which is one side of face and neck and limb wasting fat, muscle and bone which also causes seizures..

I have a speckeled patten ana 1:80 which is autoimmune..Ive read that other diseases are also affected with gluten maybe its not celiac..I dont know ..

Parry Romberg is very very rare..and has been said its an autoimmune disease so maybe eating gluten has truiggered it ...

Thanks for listening just wondered what you thought..I am just struggloing to do celiac diet as well as

no fruit (I get impacted) sugar, yeast, vinigar, alchaol, sunflower seeds, oils hemp/sunflower/olive oil ..its so hard as all celiac foods are packed with sugar sunflower oil etc..all i have to eat is rice potatoe and meat and veg..

THANKS GUYS XXXXXXXXXXXXXXXXXX

Hope you are all well sorry not been on and said Hi ..I ended up in Basildon mental health as so ill and know one was helping me ...but I am not going to give up Iam just so upset when i see my self as I look so different like its aged me and a droopy face and now I cant even excersise anymore..

xx

You do sound like you could be one of us. I hope you are going to give the diet a good try. It sounds like you have neurological impact and it can take a long time for some of us to get enough damage to show up on a biopsy. The biopsies can also be hit and miss and it sounds like your doctors may kill you while you wait for a positive one. Do give the diet a good strict try, the only tests being on the diet will effect is the ones for celiac itself. You don't need a doctors permission to do the diet. And the results you see from it can be diagnostic in themselves. They sure were for me and my family.

THANK YOU...

Thanks guys ..i know i prob sound silly i should just stick to it anyway..its the depression kicking in i dont think and just eat..and forgett how ill i am after..

hope your all well..

xx

Hi,

Dont know if anyone remembers me I was on here some time ago..

I fell ill two years ago had seizures, distention, fungal infections, sick all the time..

I went to a homeopath who said i had candida did her diet felty better but when came off diet was ill...

My docto wanted to test me for celiac so i had to eat for 5 weeks to do teh biopsy..was very ill and during taht time my skin started changing..had no moisture to it, pale, very dry and my cheeks wheni smiled were like crepe paper..I also have decreased elastcity in my skin ( iam only 31)..

After the biosy they sid no you havent got it, so a nurse at my department told me to keep eating it i was malnourished so i did i was so ill..I got extremley depressed and anxious as id had enough of it all..

Then I decided to try and antidepressant as i was in a sucicidal state..i took it on the friday felt very strange and was eating wrong so felt very ill..and on the sunday i dont really remeber what happened..but I had some sort of brain injury..my right side face dropped, wry neck, right sided muscl weakness and wasting..lost quit a bit of weight as well..and was on another planet..didnt know what was going on..

Ive now got a new doctor because the last wasnt helping me and wouldnt refer me where specialists wanted me to go (london hosp).

My new doctor thinks i have some syndrome neurologicla..but i went to a ciropractioner and he said you have either had a stroke or somesort of neuroliogcal disease....so iam waiting for a brain scan (happened 7 months ago) its taken so long as i went into depression and wasnt me if taht makes sense..i am trying to hold myself together because I did nearly go mad..

Even now I do the diet tw days then get down and have a peice of bread I did it last night and today swollen belly, feel like i jhave a hangover, constipated, nauseous..

Question: Do you think that may be I am malabsorbing which is effecting my skin..as the changes in my skin happened when i went back to eating normal??

I also saw another doctor who said just because it was negative biopsy iots not 100% he thinks that the antidepressants could of caused a reaction as the had maize starch in them ..??

I feel better when i have no carbs.

I also found out i have PCOS..which is autopimmune diseasee and I have blood sugar problems i think ..I put on weight very easily with carbs..and if i eat e.g. rice cakes I have massive fatigue within half hour..I think insulin is linked with pcos so taht could also be plyiong a part..

If it is malaborbtion ..if i stick to the diet can skin go back to normal once its lost some elastcity ..and if i have muscle wasting (ciropractioner said i have) would this cause slihgtly saggy skin..

I just dont know what to do about anything any more..its bad enough with the food bit but now I have a whole new problem..I have had a couple of people who think i have MG disease..which involves sudden paralysis, weakness muscle wasting etc..

Thanks for listening

If you can advice it would be very nice of you coz I feel like giving up at th moment xx

hi ya ..

following on from last message hope your all well and keepm ing your chins up..x

I decided to pay to see neuro private had to borrow some money but i think it was worth it..she was loevely..

I explained everything allergies ..facial droop, shriveled skin..dsitention in tummy, paralisis, loss of sensation right side of body, tingle in face...seizure..constipation..bla bla..

She tested me and said that i have no refllexes something is wrong but from what i have explained she thinks she knows what it is and wants me to have tests and physio asap ..but wouldnt tell me.. she doesnt think i have celiac but I have been ill and

i have problems with foods for s long i dont want to dive back in to eating it again..

she said that i will get better and that the doctor must send her refereal letter asap. she was quite sharp about the doctor which was later on understandable. i ve been going for two years and they have just labelled me ibs depressed person with bit of bells palsy..they wont refer me nhs any more but i knew i had to see neuro about what had just happened as it was serious..

when i got to ppointment i had forgotten my letter from doc..they said dont worry we will get it faxed over..so after id seen her i opened the letter and it was basically calling me a depressed patients who had no real reason to go just bells pulsy..when really by what she says its alot more serious..

she said she thinks i ve got a syndrome..the only thing i can find is Guilli barre syndrome...sounds just like it ...but why ...and does any one know if this connects to celiac disease...

i know it an autimmune and wondered if any one has both

xxxx

I agree with Doll. Also want to add that if you are malnourished and dehydrated, you should NOT be drinking coffee. I know, you'll end up with caffeine withdrawal, but caffeine dehydrates you. There is also evidence that it contributes to bipolar disorder, and a diabetic friend of mine told me that her endocrinologist says it messes up blood sugar levels as well.

People don't have face strokes. A stroke affects the brain, which then can affect one side, including neck and arm, and even legs. Did they rule out stroke in your case?

I hope you feel better soon.

Hi,

thank you...

They wont listen anymore to me and parents only listening to doctor. Doctor said bells palsy another said its not bels palsy..but my face is paralisised one side still not like it was but hollow one side and still bit wonky but my eye didnt doop like bels palsy which is why I really think its a stroke. I aslo read that you cant wrinkle forehead with bels palsy and I can. When I went to A&E they wouldnt listen they said bels palsy but head felt like it was exploding and my heart was pounding..I couldnt stop opening my bowels either lost so much weight and my skin has gone very strange. I tried to go gym to help circulation but even with very light weight felt like Id put my right arm out of joint.

Ive got no support and I am scared as I know I have something really wrong with me ..Ive just been to see accupuncture lady going back this afternoon she thinks Ive had a stroke and is going to treat me she said she will take case history and will write to my doctor if she thinks its a stroke. Hopefully this will help as I am worried I will get another one.

I still cant eat all the foods but may be its not celiac maybe I have yeast infection due to another illness..I am very worried about my skin I look so illand feel like no one is helping me as been dotors so much they just dont listen any more..

thanks for your support so you dont think celiac has cause dehydration in my skin ??

xxxxx mand

Hi ya all..

I did the gluten challenge back in May and was negatove on biopsy so dietian at work (hospital said right your malnourised lets get some food in you. so carried on eating gluten felt ill but thought may be its just malnourished???

Then my skin on my face changed big time when I smile it has fine lines all over some one has told me its massive dehydration since...

any way my family have been very nasty as whilst eating it all I was very depressed again..mum said go on antidepressants tried them felt wierd (maize starch in them)??? any way on the second night on tablets my mum woke me at 3 am said your sisters covered in blood police are bringing her in...I jumped up out of bed was alseep..anhd when looked in mirror my face was lop sided and my neck taught my heart was pounding and couldnt stop going to the loo..number 2s..

I lost about 3/4 a stone..white as a gost..i went doctors next day he said may be bels palsy..but since then Ive noticed I am weaker on right side and my neck really hurts..he said get of tablets as they have maize starch in them you could be cleiac..??? I said dont you start thought I wasnt ..

My hair has been like straw, my skin is so badly dehydrated cant put make up on as it sits in the creases...and my face is slightly lopsided...please if any one can help Id appreciate it..

I had endocrine appointment and thyroid slightly low..so not done any thing about that..

I got back on diet 3 days ago started feeling a bit better hair felt better..but today I feel very fatigued ..heart burn, constipated, dry hair again and skin..big black circles and down..

The only thing I have done different is:

I had fry light oilve oil spray which has E number, litchen, alchahol, olive oile, emplusifier..but says gluten free????

I had gluten free fafel patties which contain yellow peas, garlic, tumeric, salt, herbs and spices but is made by gluten free brand??

Been drinking nescafe fine blend mild coffee???

Sweenters

Brought some vitamins and minerals but the vit c is a liquid made from pure vit c acid ( I do have agressive candida to)????

Ive done something wrong to make me feel like this today and I dont know what ..

Doctors arent helping as they are sick of me and I am sure my face is a stroke mild one as it shouldnt affect your arm and neck!!!....

Ive got dermotology next week so hoping they will help me as parents are trying to throw me out as sick of me being ill..

does any one else suffer dehydrated facial skin really getting me down and the drop in my face...

hope your all okay xxx

Hi ya...Congrats glad you are well ...

Ive ben ill for 14 month snow not knowing whats happening to me been treated for candida massive yeast infection...

Symptoms: Massive bloat with food, eat wheat gluten, dairy get canker sores, shaking, sick, bloated and constipation....

My prob is I have had so many tests I think th e docs think I am nuts...but I am not ....

How long did it take you to get rid of your bloat on the salad diet ???

PLease let me know would really appreciate it xx

Mand

You, guys....

Here is the thing. All my life I had a little here, a little there. I always knew there was something wrong with me , but I could not pinpoint the problem. I was always bloated, swollen in the mornings, cold hands and feet, no energy, cramps (severe), always pale, my hair fall out always (irritaiting, or rather depressing )etc, etc. Lately I started having this numb feeling in my legs and no sex drive ( I am not 30 yet!!) What a nice picture. Needless to say, I would never in a right mind to go to a doctor. Just don't trust them. Period. I had my fair share of them. A week ago I started my salad diet which always made me feel better. So here I am eating my salads and started feeling much better and than after a few days I ate a salad with bread and felt like throwing up. Strange. And than it heat me - could I be possible bread-wheat sensitive? Isn't bread have that thing called gluten? What is gluten, anyway? May be I just making things up? Just out of curiousity I went to the book store and I opened a book on gluten and OH MY GOD!!! I had almost every single symptom!!!! I ran to the health store and likely it had a gluten free section (lucky me) - I stayed on gluten free diet for a week and ALL of my symptoms are GONE. This feels so good but also weird becasue I had all these symptoms all my life and eventually they became a part of my personality, and when they are gone, what do you do

I have never had my belly so small in my entire life. I have never woken up in the morning not swollen. My hair now like to stay on my head Sex drive is coming back?? looks like, or rather feels like it

This all happend just a week ago and I just had to share it with somebody. Normally I am a calm person but being so changed in a good way just makes me type type type

Well, just wanted to share the good news with people who understand this whole gluten thing, because others just don't get it.

You, guys....

Here is the thing. All my life I had a little here, a little there. I always knew there was something wrong with me , but I could not pinpoint the problem. I was always bloated, swollen in the mornings, cold hands and feet, no energy, cramps (severe), always pale, my hair fall out always (irritaiting, or rather depressing )etc, etc. Lately I started having this numb feeling in my legs and no sex drive ( I am not 30 yet!!) What a nice picture. Needless to say, I would never in a right mind to go to a doctor. Just don't trust them. Period. I had my fair share of them. A week ago I started my salad diet which always made me feel better. So here I am eating my salads and started feeling much better and than after a few days I ate a salad with bread and felt like throwing up. Strange. And than it heat me - could I be possible bread-wheat sensitive? Isn't bread have that thing called gluten? What is gluten, anyway? May be I just making things up? Just out of curiousity I went to the book store and I opened a book on gluten and OH MY GOD!!! I had almost every single symptom!!!! I ran to the health store and likely it had a gluten free section (lucky me) - I stayed on gluten free diet for a week and ALL of my symptoms are GONE. This feels so good but also weird becasue I had all these symptoms all my life and eventually they became a part of my personality, and when they are gone, what do you do

I have never had my belly so small in my entire life. I have never woken up in the morning not swollen. My hair now like to stay on my head Sex drive is coming back?? looks like, or rather feels like it

This all happend just a week ago and I just had to share it with somebody. Normally I am a calm person but being so changed in a good way just makes me type type type

Well, just wanted to share the good news with people who understand this whole gluten thing, because others just don't get it.