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About sherylj

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  1. hey,,I'm talking to myself!!!!!!! ha,,,nothing new. I didn't even need to ask the question,,my daughter is dealing with this just great. She made up a small card detailing her allergies, including the celiac. I guess I should give her more credit. I was not sure she would take the diagnosis seriously but she is already researching and becoming more knowledgeable than I am!
  2. My daughter is newly diagnosed (positive biopsy) and while familiar with gluten-free diet (which I have been on) she will have a challenge as she is doing a study abroad in Tours. any gluten-free friendly restaurants,,grocery stores which stock gluten-free products? Thanks for reading, Sheryl
  3. I agree it isn't worth the risk,,,modified food starch could be wheat. I wouldn' even for sure trust any response I got from a customer service representative. There are brands of deli meats that are okay. Just read the labels every time.
  4. . As I see it you could go back on gluten and ask for another test. Emphasize your dr. didn't give you correct instructions if there is an insurance issue. Or just go with your instincts and stay gluten free. I am new and can't even tell you my IgA, IgG, so I still have to educate myself. During my biopsy the dr. told my husband he didn't "see" any celiac. Once the biopsy was examined under the microscope the damage was visible. I ate wheat for a whole week since my husband said,,"The dr. said he didn't see celiac damage." I was not awake to question the dr. Anyway I was so relieved to get the actual diagnosis. The dr. was apologetic when he called with the actual results. Guess dr. have a learning curve as well.
  5. only thing I can add: Instead of buying new cookie sheets I just line the cookie sheet with aluminum foil..
  6. I am really glad to add this to the list of restaurants that will make everyone in my family happy!! My husband realy misses eating out and I am slowly adding places I feel safe.
  7. This site is a great resource: Just don't make the mistake I did (at Panera Bread). At the end of the lengthly list of ingredients there is a list of "allergens". Look closely, example in the sides look at poultry gravy. The last list of "allergens" doesn't list wheat but if you read the INGREDIENTS. you see MODIFIED FOOD STARCH. Whoever analyzes their ingredient lists isn't knowledgeable. When the clerk is impatiently waiting for you to order and points to the allergens listed at the end,,DON'T RUSH. take the time to read the ingredients for those hidden glutens..Panera wasn't good for me!! And the gravy at Boston Market would be wonderful but for the hidden gluten. My whole weekend, was a series of hidden gluten after another. I accidently bought a new brand of chicken broth,,,(it had wheat , and I didn't notice until to late. There were numerous other mistakes so I was feeling yucky by Saturday night.
  8. Where is this gluten-free bakery in midwest???
  9. I'm from MIchigan,,,and I guess I'm going to have to go to Ohio or Chicago for cheesecake!! good thing??? I have relatives close to Columbus,,,,so hey wonder what they are doing next weekend!!
  10. r at CHeesecake Factory, the chef will come to your table and talk with you aboout substituting rice for pasta in various dishes. Also, their Godiva Cheesecake is gluten-free--and amazing! oh,,,I really need to find a cheesecake factory!!!
  11. My main symptoms were gas, bloating and awful burning sensation in upper left abd. right under my ribcage which I thought was reflux for years (it has disappeared since I went gluten-free). I had nausea that came more and more frequently then the vomiting started and increased. Most of my symptoms were not "classic". I would encourage you check out th possibility of celiac.
  12. Tinkyada Pasta,,,make it into Maco and Cheese,, Or add Ragu and Parmesan. She might like it with Plain butter,,,or cut up the hotdogs and put into the pasta with ketchup. Kids are sometimes not ready to experiment. Just introduce one new food every once in a while and you will find out what she likes. Don't forget a few crunchy veg...small slices of carrot sticks etc... And a few grapes or apple slices..My kids used to eat apple slices with peanut butter. I found small servings were best so not to overwhelme them with new foods. The tinkyada pasta cooks up easily,,,and refrigerates and reheats well. It has become a staple for me as I have pledged gluten-free.
  13. Dear Kittyme. From what I have read celiac can lower ones immune system,,esp. in a younger child. I am currently reading "Celiac Disease" A hidden epidemic. Some of it is over my head There is a chapter on dealing with celiac in younger children which gives some common sense guidelines. The rest of the book is an interesting mix of information. If my brain fog would clear I might be able to read and comprehend more of it. My days of being a mother of young children are over but I recall the frustrations of dealing with illness and just the sometimes overwhelming feeling of trying to do everything "right". So keep working on the gluten-free diet, enjoy the good moment inbetween the problem days. Are her weight and growth pattern within norms?? How is her appetite? I like my ped. in Plymouth, MI Child Health Associates. Even though my youngest is 18 they are still seeing her for her low weight issues . They have responded very well to my questions. Sheryl
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