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strawberrygm

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by strawberrygm

  1. strawberrygm
    i am in west tennessee, 1 hour from florence alabama. decatur isnt much further.
  2. strawberrygm
    hello there! i am new to being a celiac parent too! we can learn together! my dd is 9. i also have a 2 1/2 yr old and a 6 month old. last year i sold the daycare that i owned, and i had a celiac student i cared for. click on my user name, find the posts started by me from back then for a few ideas on what NOT to do when dealing with teachers, daycare...
  3. strawberrygm
    ok my ex husband has already ticked me off he has talked to some doc that bowls with him that supposedly works at st jude who tells him celiac is no big deal and that it is ok for her to have gluten, just in moderation. so i just told dd that her dad has talked to a doc who specializes in cancer, not celiac, and that while her daddy trusts him and he may...
  4. strawberrygm
    we finally got the results of dd's second set of bloodwork back. the total IGA went down from 56 to 46, and the test that is supposed to be at least 20 to be normal, hers is 0.4. i cant remember the abbreviations. i will find out tomorrow if they want us to hold off on the diet until an endoscopy is performed or not. however, i figure i should go ahead...
  5. strawberrygm
    see they told me that it looked like she DID have celiac, and that we are running this second blood work to confirm it. this is from a pediatric gastro at vanderbilt childrens in nashville.
  6. strawberrygm
    The following is the results of dd's first round of tests. Care to translate?? We are still waiting on the second round results. 04/14/08 15:40 [ ***Duplicate Order Cancelled*** The "Tissue Transglutaminase Antibody ♦ (tTG), IgA" was ordered separately, in duplication of the screening ♦ test included in the more comprehensive "Tissue Transglutaminase ♦ A...
  7. strawberrygm
    My dd is waiting on test results. She is 9. Her first IGA level was 56. We are waiting on the second round of bloodwork. The docs dont want me to start her on the diet yet b/c if i get her off of it, it will skew the test results. Yet today I had to pick her up at 1030am, doubled over with stomach pain. When I sent her in to school, she was happy...
  8. strawberrygm
    her CF test was done at LeBonheur in Memphis, appx 8 yrs ago. I am not sure what method they use. I did not like the staff or docs we dealt with there. We now use Vanderbilt Childrens in Nashville. Our docs from Vandy faxed orders to our local hospital for bloodwork, they want to redo it to confirm celiac diagnosis. Our hosp doesnt read that test,...
  9. strawberrygm
    see that freaks me out too because when dd was 2, they tested her 3 times to get a negative result on cystic fibrosis. they used the sweat test, the first 2 were right at the breaking point, the 3rd one they called negative. she is 9 now, is it possible that we would have gone this long with out finding out?
  10. strawberrygm
    i am not sure.
  11. strawberrygm
    The nurse called me this afternoon. She said my dd's IGA level is 56 and that normal is 68 to 300something. They want to retest her blood again to confirm. And then they will scope. What was everyone elses levels?
  12. strawberrygm
    the ones that have * beside them are out of normal range according to the site
  13. strawberrygm
    oh ok. well heck i dont know. he told me they were testing her for celiacs. what i posted is all that was shown on the site. i wonder if they didnt post them, or what he is planning? i know i have to call him tomorrow to give him an update on how she has felt all week. thanks for trying! i will keep you all updated! do you know what any of these results...
  14. strawberrygm
    My dd has been tested for celiacs. I have the lab results of tests ran over the past few weeks pasted below. What do they look for regarding celiacs? Do these look positive or negative to you? Anything jump out at you? Thanks so much!! 04/14/08 16:16 UABasicCOLOR: YELLOW CHARACTER: CLEAR Specific Gravity UA: 1.008* PH Urine: 8.5* Glucose...
  15. strawberrygm
    My daughter is 9 yrs old. She has had ulcers since 5 yrs old, anxiety, and stress. She is 4 ft 7, weighs 65lbs. She has been having severe unexplained tummy pain for 6 weeks now. Constipation started the last 2 weeks, now cleared with miralax. She has been tested for appendicitis, uti's, kidney infections, etc. Yesterday bloodwork was drawn to test...
  16. strawberrygm
    what a sweet response thank you for that i was expecting to get flamed on here, but i just had to get it off my chest it is so disheartening that here i was trying so hard to learn more and for it not to be appreciated, let alone turned away and be accused of not caring, i just can not and will not take that i am sure i did push her "mom guilt' buttons...
  17. strawberrygm
    well girls, it all just blew up i called the mom to talk with her b/c her daughter isnt here today the mom had mentioned that the local pediatrician was going to have a meeting for her and her hubby and her inlaws explaining celiacs and asked if i would come i had told her heck yes i would come, my whole staff would come, and we would even host the meeting...
  18. strawberrygm
    awww, i do wish i were closer to you ladies so that i could care for your children.!! i am located in savannah tennessee i posted my website on my homepage i will keep posting here as i have more questions and more updates.... thank you all so much for your help!!
  19. strawberrygm
    does your child's school require that you provide a doctors note for proof of diagnosis, along with other important information?
  20. strawberrygm
    I am not here to flame anyone, so dont worry about that. I am here to get advice and suggestions and thoughts. I am here to play nice. I totally understand how this is and should be a touchy subject for all of you, and i am certainly in no way going to try and make it seem as though i dont care or that i dont want to help. I certainly did not mean...
  21. strawberrygm
    another question: what if the child gets "glutened"? say by soap or paint or anything.... how long will she have reaction for? how long do the effects last?
  22. strawberrygm
    Thank you for saying this, the mom seems to think i should be an expert on celiac and know just as much as she does and never have to ask a question i know she is stressed and frustrated...but gosh, i am trying.... ya know?
  23. strawberrygm
    well thats just crappy b/c we have name brand play-doh b/c the other is just so nasty and gets too hard too fast. the paint is school supply washable paint the child is a thumb sucker too i dont mean to sound stupid...but...is there gluten or wheat in playgound dirt? she will suck her thumb after playing outside while standing in line to wash her...
  24. strawberrygm
    Yes, tables are cleaned with soap and water and then sanitized with bleach and water before and after every meal. Hands are washed (adults and children) before and after every meal. Yes we do use play-doh. Yes we do use paint. Never realized those could be an issue. Is it b/c a crumb of food could get into the paint or play-do or is there something actually...
  25. strawberrygm
    hello everyone! this is my first visit and my first post here. i own a childcare center, and i have a student who has celiac. she has been with me over a year now, her mom got the diagnosis in august. i would like to know what you as moms do in regards to your child and what/how they eat when they are at preschool/daycare/babysitter/public school/etc...
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