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txceliacmom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by txceliacmom

  1. txceliacmom
    Thank you both for your answers. It is good to know that not everyone comes back positive. It does make sense that most negatives won't visitif you get a negative result you're not going to spend much time here. This whole thing has been so frustrating. It seems my entire family is in denial about this disease and the issues it can cause. I just...
  2. txceliacmom
    So, how confident are you in entrolab tests? We have had such a hard finding a dr. with knowledge so had the tests...but most of my family is very skeptical. Thanks,
  3. txceliacmom
    Just saw something like this on another thread... Has anyone had their gastro symptoms go away during their teen years and if so, if and when did they come back. 2 years ago my daughter then 12 was having gastro issues. After seeing a lot of drs that knew nothing and a negative panel/biopsy I put her on a gluten-free diet and the problems went away...
  4. txceliacmom
    You are NOT way off base. The doctor can order a celiac panel. The problem is so many doctors are misinformed about this disease. They think it is rare when it really isn't. From what you have described your daughter has a lot of the symptoms. You might want to take her to a pedi gastro dr. who is knowledgable about celiac....otherwise they will probably...
  5. txceliacmom
    She has been gluten-free since October 2003 with just a few slip ups. If she would of had a firm diagnosis I wouldn't even consider thinking about letting her eat gluten. I understand the damage that it can cause even if she doesn't have symptoms. Basically I diagnosed my daughter so I guess it had me ( and her) doubting just a little bit. Celiac...
  6. txceliacmom
    Wow, I had never thought of that. She started having strong symtoms when she was 11. I think it was because she started intense training for soccer. This was towards the beginning of her adolecense....we're not quite thru it yet. I think she probably had mild symtoms for years....just nothing bad enough to really worry about. I've just found...
  7. txceliacmom
    Thanks, For the first 8-9 months of being gluten free she did have severe reactions when she had a slip. Stomach aches, head aches,,,,really felt crummy for at least 2 days after eating it. Her aunt (now deceased) used to eat gluten but in small amounts because she didn't have pain from it. I don't think the dr. (or she) realized at the time the...
  8. txceliacmom
    I need some opinions here please... First some history.... My husbands sister was diagnosed with celiac in the late 70s. My 12 year old daughter was having stomach problems last year. We went to a pedi gastro. They were basically of no help. We had a celiac panel that had one number slightly above range and an endoscopy which showed an ulcer at the...
  9. txceliacmom
    And think about it....if Jesus would have been born in the far east, we'd all have rice wafers for communion!!!!!!
  10. txceliacmom
    My daughter had a negative biospy and negative panel results. After an additional month of stomach pain we put her on a gluten free diet and within weeks she was better. She's been gluten-free since last october and is good unless we have a slip up. Biospies are not always accurate because sometimes the damage is spotty. If they don't take the samples...
  11. txceliacmom
    I know a 13 year old undiagnosed celiac disease that had neuropathy so bad they had to pull her out of school. It was so painful she couldn't even lay a sheet on her legs. The dr. kept say it was stress/in her head. They tested her a second time for celiac disease, came back positive and she went gluten-free. Her neuropathy improved within weeks of going...
  12. txceliacmom

    ARCHIVED Genetics

    txceliacmom replied to LisaRN's topic in Related Issues & Disorders

    My sister-in-law was diagnosed in the 70's, my daughter didn't get a formal dx but it's obvious that she has it based on improvement on a gluten-free diet and the reaction she has to gluten. My husband has soooo many signs but wants to eat his donuts so I am having a difficult time getting him to test. His mother just broke her ankle this past weekend,...
  13. txceliacmom
    I'm Methodist and we receive the bread and grape juice too. I talked with the pastor about and now they offer a corn tortilla to dip in the grape juice for my daughter. She said it doesn't taste that great but it is better than being sick...And I guess taste is not the real purpose of communion anyway.
  14. txceliacmom
    Hi LisaP, Good luck with your appointment tomorrow. I will say some prayers for you. Dr. Whitney was our first GI dr. She didn't diagnose my daughter with celiac disease but from my understanding there are several members of the North Dallas Rock group that she did diagnose. I will put your family and Dr. Whitney in my prayers tonight. Let me know...
  15. txceliacmom
    Do any of you with celiac also have degenerative disk disease(DDD)? Could this be related to celiac?
  16. txceliacmom
    Hi Red, My daughter was a bit depressed too at the beginning. Everytime she wanted to eat something she couldn't and she felt like she was the only one out there having to deal with this. She was frustrated. Once we started finding more items that she could have it got better. This past weekend she made some gluten-free tollhouse cookies that tasted...
  17. txceliacmom
    Hi Red, I would be concerned. Losing that much weight so quickly is not good. It does sound like there is something else going on too. Maybe he have issues with lactose too. I've read that some people with celiac have issues with lactose until their intestines heal. Or, maybe if he can still have some of his favorites, he might be more tempted...
  18. txceliacmom
    My daughters gi dr. wanted her to go to an allegist since she had improved on a gluten-free diet but her test were inconclusive. He said that there is a difference between a wheat allergy and celiac. If she only has a wheat allergy there is the possiblity that she can grow out of it. If it is celiac it is life time gluten free. We have not gone to the...
  19. txceliacmom
    My daughter was never formally diagnosed. Last summer/fall. she was having constant stomach pain for several months. I took her to a pedi gi that was resistant to running the panel (although her aunt was diagnosed with celiac in the 70s). Her panel had a few numbers that were elevated and she had a biospy that was negative so the first dr. said she...
  20. txceliacmom
    Hi Lisa, I take my 12 year old daughter to Dr. John Baker in Carrolton. Our first visit he spent at least 45 minutes (my daughter says an hour) answering my 100s of questions about celiac. My daughter's test and biospy were not performed by Dr. Baker and I'm not sure if he ever deals with Dr. Fine but he was very knowlegable about the subject and...
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