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Joan (Maine)

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  1. There is wheat in both diapers and sanitary napkins. there is a video on u-tube that tells and shows how these products are made.

    Joan

    I am 40 something and I can tell you I get a rash every time I need to wear panty hose. The rash is where the elastic is at my waist band. Suppose there is some sort of gluten in the elastic of these garments? (Diapers and panty hose?)

  2.   dhd2000 said:
    Hi Itchy Meredith (love the name!)

    I was diagnosed with DH in May and have mostly cleared up at this point. I've found a few things that trigger an outbreak, other than the obvious. They are: advil, iodized salt and maltodextrin (like in flavored chips) I've read about the advil and salt so those didn't surprise me. But I got a few active blisters from eating two different kinds of barbeque flavored chips and the only thing I could trace it to was the maltodextrin. It's a bit confusing because I thought maltodextrin was a corn derived product. Who knows? So watch for those and maybe you'll finish clearing up as well. Good luck!

    Denise

    Favored chips cause my itchies to erupt as well. Chips that work best forme are the expensive health food store kind cooked in olive oil and lightly sea salted.

  3.   Janessa said:
    I have had very itchy skin for years that would itch so bad I would actually scratch it in my sleep and wake up with scabs. I never thought it was really related to anything until I went gluten free and it went completely away, and if I get glutened I get itchy again for about a week but I have never had a rash or bumps. Does anyone else get this? Is it DH if there is no rash?

    Yes, I itch without actually breaking out....with small amounts of gluten, dairy and/or iodine. as time goes on I react more quickly and to smaller amounts. My blisters have actually been small and mostly on my face and scalp....it took six months to get a dermatologist appt. so naturally I was clear when the appt. came around. The derm. did agree to try to see me on short notice if I accidently get ingest dairy, gluten or iodine and have an outbreak. I do itch with a small rash on my shins and upper back

  4.   Janessa said:
    I have had very itchy skin for years that would itch so bad I would actually scratch it in my sleep and wake up with scabs. I never thought it was really related to anything until I went gluten free and it went completely away, and if I get glutened I get itchy again for about a week but I have never had a rash or bumps. Does anyone else get this? Is it DH if there is no rash?
  5. Hi Lynn,

    I live north of you near Bangor would be happy to answer questions or share information.

    Joan

    Hi! Not sure if i am doing this right. But I am from Maine I am from the capitol area. I found out I had Celiac earlier this year. My grandmother suffered all her life with it, and my brother has it. Recently my Aunt tested positive.

  6. Kassandra,

    Yes, it can be on your scalp. I have DH in my hair....other places as well. I have been mostly gluten free for a year and gluten free for eight months. iodine (salt and seafood) sets my DH off....shoulders, face, shins and scalp. I experience intense itching.

    I am very careful with toiletries and soap which also helps. I still have problems with dairy as well.

    Sincerely,

    Joan

  7. My DH improves when I am not only gluten-free, but iodine controlled al that passes my lips..... seafood and dairy (iodine and lactose) are aggravators for me. I am vigilant about every morsel that passes my lips, makeup, personal care products.....even laundry detergents, etc.

    I have lichen sclerosis and hypothyroidism. when they say autoimmune diseases often occur in clusters, they aren't kidding...I have a raft of professionals....specialists are frustrating, expensive, and seemingly uninterested in the big picture.Alternative pracioners have been much more responsive even though they have not been covered by my insurance.

    Joan

  8. I'm wary of Aveeno....gluten??? Iodized salt will aggravate DH. For me dairy is also and irritant. I am hopeful that someday dairy can be back in my life after my intestines heal although I have gluten free for six months.

    Vanacreme at Walmart Pharmacy is wonderfully soothing and is formulated without many irritants...no precription although they may hav to overnight order it for you....it is not expensive. If you have Dermatitis Herpetiformis, you are probably sensitive to many chemicals and cleaning products.....be careful and cautious. I am VERY careful to screen my personal care products. Always pantiliners and other products are known to be irritating to many women.

    Joan

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