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debimashni

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by debimashni

  1. debimashni
    None of my children developed the KF rings (copper rings in the eyes). They use several tests to diagnose Wilsons including ceruloplasmin level, serum copper, 24hr urine copper and liver biopsy. My daughter had elevated liver enzymes and elevated bilirubin (20x normal) and was very yellow before she was diagnosed. We were very lucky that we live by...
  2. debimashni
    Two of my children have Wilson's Disease, and the rest carry the disease (I am also a carrier). It is a auto recessive genetic disease. My oldest daughter almost died from it...she went into liver failure. Wilsons disease requires treatment, it is fatal without treatment. Sometimes carriers of the Wilson's gene have slightly elevated copper levels,...
  3. debimashni
    I was diagnosed with Behcet's Disease in 2001. I was also diagnosed with Celiac Disease in 2003 and autoimmune hepatitis last November. I have Remicade IV treatments every 6 weeks...it helps with the pain, but my quality of life sure isn't what it used to be. Feel free to email me, if you would like more info. debismashni@aol.com
  4. debimashni
    I bought a deep fryer because my son was still sneaking out to KFC with his friends. He loves the gluten-free fried chicken nuggets that I make for him now. I soak the chicken in a mixture of buttermilk and beaten egg for an hour. Then I shake the nuggets in a mixture of cornmeal, sweet rice flour, salt, pepper and paprika. I put them in the deep...
  5. debimashni
    I also have muscle and bone pain....sometimes it is so bad it wakes me up at night. I also have Behcet's Disease, so I am not sure if it is the Celiac or the Behcet's. We have a hot tub that I sometimes use for the muscle pain...and if it is really bad, I sometimes take prednisone for a few days.
  6. debimashni
    I have been taking prednisone on an "as needed" basis for the flares I experience with Behcet's disease (I also take prograf daily and enbrel injections 2x/week. When I was diagnosed with celiac last spring, my biopsy showed "partially treated" celiac sprue, which I suspect was related to taking prednisone. As for taking prednisone, it works awesome,...
  7. debimashni
    Even though only two of us have celiac, we have very few gluten containing foods in our household. Anything that is baked here is gluten-free, and everybody here seems to enjoy the gluten free sweets. We didn't plan it that way, it just happened. Everyone just feels that they are helping us out by keeping gluten out of our household. Now when we go out...
  8. debimashni
    I have both celiac disease and behcet's disease, which is a rare autoimmune vascular disease that causes extreme fatigue, along with some other nasty problems. I guess I have a double whammy of that zombie feeling. Anyways, I wanted to mention that my rheumatologist who treats the behcets prescibed Ritalin LA for me for on the days that I have a hard time...
  9. debimashni
    Thank you Richard for the delphi forums website. I read many of the school related postings and found this webpage that has form letters for various school staff. This is the link if anyone else needs it. Open Original Shared Link I tried to talk Omar into attending a different school district this year, but he has been with the same group of kids...
  10. debimashni
    Thank you everyone for your responses. Omar's doctor is sending another letter to the school today and I am also emailing an article on celiac, along with a brief explanation of Omar's symptoms to each of his teachers, asking them to please be patient and understanding with him. I am also asking that a note be left for all subsitute teachers so that Omar...
  11. debimashni
    I am so frustrated with my son's school administrators' ignorance and lack of interest in his diagnosis of celiac disease. My 17 year old son, Omar, was diagnosed last spring with celiac disease after many years of illness including diarrhea, fatique, elevated liver enzymes and various other abnormal lab tests. Since he doesn't look like what the school...
  12. debimashni
    I have had very good luck making gluten free bread with a breadmaker. I purchased a Breadman Ultimate that has several options on it, including a dough only cycle that I use for pizza dough and buns. As far as recipes, I use several different recipes from the Gluten-free Gourmet cookbooks, Gluten Free 101 and the Gluten Free Kitchen. My family prefers...
  13. debimashni
    I was actually diagnosed with Celiac Disease after I was admitted to the hospital with liver enzymes (ALT & AST) in the 800s....normal is under 45. My doctors are not sure if the elevation was from the Celiac Disease, or caused by one of the immunosuppressant meds I take for Behcet's Disease (another autoimmune disease), or even from a virus. Luckily...
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