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whattodo

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Everything posted by whattodo

  1. whattodo

    Happy birthday and may God bless you today!

  2. whattodo
    I have been prescribed VSL#3 from my dietician and i noticed it says there are trace amounts of gluten in it. I just want to know how many people take VSL#3 in the states, and whether thay have any problems with it. Apparently there is no difference between the uk one and the us one other than the flavoring. I emailed the manufacturer over here in the...
  3. whattodo
    Yes Steve, i had a bone density test and it was fine.
  4. whattodo
    I have noticed that on my left hand side, one of my middle ribs protrudes further out than the other right. I am trying work out what could be causing this. I want to rule out problems with my stomach if possible. My stomach did tend to get bloated when eating gluten but reduced alot now i am off it. I wonder if this bloating could be pushing the rib out...
  5. whattodo
    I rang the company who make VSL#3 over here and they said yes there are traces amount of gluten in VSL#3 and it is made in the exact same way as the ones in America. The difference is that the regulations regarding packaging over here are much stronger that that it america and therefore have to state even trace amounts. He also said if they have trace amounts...
  6. whattodo
    It is over here in UK so possibly made by a different company
  7. whattodo
    It states on mine "this product contains traces of gluten, soy, lactose and skimmed dehydrated milk. It states this on the packaging and the inset leaflet. Did you ring Actial Farmaceuticals Ltd It states it in the website aswell http://www.vsl3.co.uk/index.php?option=com...6&Itemid=29 Dont know what to do?
  8. whattodo
    Hi everyone, I have had a prescription from my doctor for some VSL#3 Probiotic food supplement. I got this to try and help with my candida and get me some good bacteria after a course of antibiotics. My question is, is it safe for celiacs to take, i read in the leaflet it has traces of gluten in it. Thanks, Jason
  9. whattodo
    Yes i have, i saw him yesturday with all those symptoms. I said i should try and go through the next 6 weeks. He assured me my symptoms would go when i stop gluten. i am monitoring them and believe me if they get any worse i am going to stop
  10. whattodo
    I already have, they wanted to make it for 3 months. i got them down to 2 months
  11. whattodo
    Sorry the above title should say "6 weeks till my second biopsy"
  12. whattodo
    Hi everyone, Its been a few months and thought i would update you all on my progress, or lack of. Well the last time i was on, i had just had my negative result for Celiac, but did have inflammation of the duodenal tube. They left it like that for a couple of weeks before i got a letter from the hospital requesting i go back on gluten for 2 months...
  13. whattodo
    Can anyone suggest any good protein powder supplements that are gluten free? Thanks
  14. whattodo
    Hi chris, thanks for the response. When i had the MRI scan done it was done on the nhs. The neurosurgeon i am seeing tomorrow is being done private. I dont mind things happening to me below the neck, but things above the neck i do not want to mess with. Why did the neurologist suggest that he test your cerebrospinal fluid, did he mention if it was celiac...
  15. whattodo
    Is there a link between Celiac Disease and Cerebrospinal fluid? I am seeing a neurosurgeon tomorrow night but dont have a clue what the problem is. My doctor didnt have a clue neither, he just said that an area in the brain is larger than it should be. Perhaps inflamed. he refered to this area as the place where the brain fluid is found and then used to...
  16. whattodo
    Well as many of you know i have been having problems with my stomach for a while now. I have had all the tests done that are possible and nothing points to celiac disease. Out of all the tests the only sign of something not quite right is the fact that my duodenum tube is slightly inflamed. I have not eaten gluten for about 5 weeks now and nothing...
  17. whattodo
    CarlaB, i have diverticular disease which at my age uncommon. Diverticular Disease is cause by constipation and pressure built up in the bowel. This could be my first guess. My second guess would be the fact that a few months back i had helical Bacter and had the strong dose of antibiotics. Other than these two i am unsure of why i have candida. I will go...
  18. whattodo
    Would lyme disease show some sort of irregularity in my blood count? Just asking because mine are fine. Is there a test kit you can get online to send off for?
  19. whattodo
    Have a look at this illustration i found, it hurts just below where it says thumb sprain Open Original Shared Link
  20. whattodo
    Thanks CarlaB As you can tell i am getting very frustrated and when i heard that someone if the office has had this, it just made me think of posting it. Especially with the face symptoms i have. Like i have said before i have only been off gluten for a month and maybe not given it long enough.
  21. whattodo
    I am just wondering if it is possible for lyme disease to spread from person to person. The reason why i ask is that i have just found out that someone i work close with has had lyme disease and got it a month before my symptoms started. I have not seem any visable signs of tick bites but have symptoms like, headaches, tiredness, numb face and sore joints...
  22. whattodo
    Anyone else had an inflamed duodenal tube and negative biopsy?
  23. whattodo
    I went to see the specialist last night to get my results of my biopsy. She says that it was negative for celiac disease. Although my duodenal tube did show some inflammation she is not linking the two. I mentioned to her that i was off gluten for a while before the test and only went on gluten for a week before the biopsy. She said that if i had celiac...
  24. whattodo
    Tell me about it, the NHS is such a waste of time, like i said i had to wait 9 months and still not got an answer. Hopefully it wont be long now they found a starting point. My symptoms are: Sore upper left stomach (under left rib, like a balloon is there)" Numb Face* Pins and Needles only in bed in my arms ( they dont go numb tho)* Brain Fog (Feeling...
  25. whattodo
    Hi Chris, The pain I have is in the exact same place as you describe. It is just under the top left rib. I have had it for about 9 months now. I have had all the blood tests done and they were fine. I had a ct scan of my stomach and a couple of cameras down the throat. The first of all thought i had a ulser of the stomach but after the biopsy they found...
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