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kaylee

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kaylee

  1. kaylee
    Did the doctor specifically say there was damage to the villi on your son's biopsy? "Evidence of a food allergy" isn't quite as clear ... You have been seeing such good results on the gluten-free diet that that is already a strong indication that being gluten free is a good plan. There are tables available that show the probability of having celiac disease...
  2. kaylee
    No, I would never dream of saying "no birthday cake for you" - that's exactly the point! On monday there was a birthday party and my son had his little (gluten-free) green frog cupcake like everone else. The thing I'm thinking about is more about the transition from my controlling the diet altogether to his taking over and really "getting" it. As Nini...
  3. kaylee
    Hi Nini, how old is your daughter? I'm interested to know how the learning process went about staying away from gluten things. I have been explaining to my 2 1/2 year old basically from the start (as of 18 months) that certain things make him feel sick but others don't. He seemed to understand from a very early age as he just about never asked for anything...
  4. kaylee
    Hi again, thanks for your input, I appreciate it. Here's the weird thing: it turned out he had virtually no reaction. I am still scratching my head as it is the first time ever this has happened. He has reacted to gluten like clockwork always, up until Friday. He had the worst reaction he's ever had about 10 days ago, which is precisely why...
  5. kaylee
    Oh, I hadn't seen your latest message. I can relate to that too! It must feel good!! Keep up the great work! Kaylee
  6. kaylee
    Hi, Sitting here reading these posts is bringing my own experience with my son (now 2 1/2, and gluten-free for over a year now - wow, time flies!) back with a vengeance. I felt so alone at the time (no help from the pediatrician, unfortunately), and can remember so vividly those feelings of being beside myself with worry, knowing something was very wrong...
  7. kaylee
    Hi and thanks for your replies- I'm going to send my mother the links you provided. Also thanks Kaiti for the heads-up about the other thread. Lots of people are obviously dealing with symptom issues not to mention doctor issues. The two are clearly linked. Having a doctor who is uninformed can make it very hard for the patient to feel committed to...
  8. kaylee
    Hi, I just had a call from the daycare. Apparently my son has just eaten an entire mini croissant. I am trying to evacuate my feelings of anxiety before I go to pick him up. The reactionm should start in 1-3 hours from now. He hasn't eaten anything of the sort since he started the gluten-free diet over a year ago. Last time he had a gluten accident...
  9. kaylee
    Hi all, after a period of refusing to get tested because she "knew" she didn't have celiac disease, my mother has just been diagnosed. Her doctor has made the suggestion to her that since she has no symptoms (only osteoporosis, hypothyroidism, arthritis, chronic allergies and sinusitis, balance problems and chronic fatigue), she doesn't have to go gluten...
  10. kaylee
    Hi, my son has incredibly severe reactions to even the smallest traces of gluten and he has never had a reaction to any of the flours we buy regularly in Asian shops. Lucky you to have found potato starch there, I still haven't found a reasonably priced one (I don't have a clue why potato starch is so expensive - just because of low demand? Is there...
  11. kaylee
    Hi Andrew, figuring out exactly what to eat so you feel your best AND have enjoyment is not necessarily and easy thing to do! Apart from the other suggestions, I'll just mention that dairy products in general appear frequently to be not well tolerated by people with celiac disease, especially in the early stages of the new gluten-free diet when the...
  12. kaylee
    taweavmo3 - crying and clinging, not being able to go out ... that is exactly what we went through! Also, in terms of gluten accidents, I think that the longer my son is gluten free the worse his reactions to even the smallest amounts of gluten are getting. He reacts to a trace amount in the same way he used to react to a full serving (e.g. we had a...
  13. kaylee
    Hi, you are definitely not alone! The relation between acting out (mainly screaming) and physical state has been clearcut since my son was about 6 months old. He's now 2 1/2 and has been on the diet for just over a year. Jekyll and Hyde was exactly how I described his different sides to the gastroenterologist on our first visit. I am still amazed by...
  14. kaylee
    Wow! All this input is great! I had never heard of the fever/pain link, but it would certainly fit my son's situation. Thanks for the info. Aili - have you tried taking your daughter off dairy? With the extra details, her situation actually sounds quite different in several ways from my son's, but for what it's worth, we only saw a complete improvement...
  15. kaylee
    Hi, are you referring to stomach/intestinal pain? If so, although I have not had it myself, ever really, my young son has severe pain with ingestion of even trace amounts of gluten. The first time he ever put two words together was following a gluten accident, when he said "tummy hurt." Needless to say, that broke my heart. He literally writhes in...
  16. kaylee
    I went off gluten only because of my son's condition ... and then with the amazing, completely unexpected changes that came about for me, went back on gluten to do the testing and discovered I have celiac disease too. Anyway, the most astonishing thing for me was the disappearance of all the aches and pains I had had from as far back as I can remember...
  17. kaylee
    Aili, what you're describing is closer to what was going on with my son BEFORE he went gluten and dairy free - I mean, the regular bouts of screaming when lying down. Somehow that position did seem to be worse, and my guess is that it was something to do with reflux, maybe gluten triggered? He was way too young at the time to be able to give me any verbal...
  18. kaylee
    Hello to all, we had been doing remarkably well in terms of avoiding gluten accidents for quite some time, but last night my 2 1/2 year old woke up screaming and writhing in pain, and this lasted for two hours before he started to settle into a lower grade restlessness. This morning he had diarrhea for the first time in recent memory. I'm 99% sure that...
  19. kaylee
    Hi Laurie, I hope it works for your daughter! If vegetables are a problem - and with my son they go in and out of being one, depending on his mood or the phase of the moon or who knows what! - then as long as you can make them very finely shredded or otherwise hard to detect, then most should slip by ok. Sometimes he amazes me and only wants broccoli...
  20. kaylee
    Terri-Anne, hi! I am admirative beyond words of how you are already doing with 4 (four!!) children. Boggles my mind. I find it hard enough with one who has food problems! Someone already raised this point and I'll just add to it: do you have suspicions about other possible allergies/intolerances? In our case, our son, now 2 1/2, made a you-have-to...
  21. kaylee
    Hi, On the Cheerios front: I am very aware of the controversy surrounding oats and celiac disease and obviously everyone has to go with what they're comfortable with. That said, here's my anecdotal evidence. My 2 -and- almost -1/2- year- old son reacts severely (as in SEVERELY) to gluten but has had no problem whatsoever with Oatios. These obviously...
  22. kaylee
    Hi Chantalle, the short answer is no, I haven't spoken to the doctor - my son's pediatrician - about the EnteroLab results. The longer answer involves my reactions to being very unhappy with this doctor's non-involvement in helping us figure out what on earth was wrong with our son. By the time the idea of "official" blood testing came up, I had...
  23. kaylee
    Chantalle, just so you know, EnteroLab does work with Canadians. We're in Montreal and had the gene test done on our son through them. We hesitated about the other tests, but decided not to go that way for now because the gluten-free diet has been a real solution in itself and the gene test was to see if we could more or less rule out celiac disease...
  24. kaylee
    Hi Sue, my son isn't two yet but thought I'd pass along our experience nonetheless! His symptoms were not the classic diarrhea and tiredness, but several of the other main ones in children. The most obvious one was virtually constant bad mood with bouts of screaming (very distressing to say the least). He had a chronically distended belly, even after...
  25. kaylee
    Hi, with regard to why several blood tests are run, it is a case of the more the merrier. None of the tests catches 100% of celiac cases, so by using several tests that analyze different aspects of the disease there is an increased likelihood of detecting something if it is there to be detected. Although TTG is specific to celiac because it measures...
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