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kaylee

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kaylee

  1. kaylee
    Hi, Your daughter is clearly in good hands with such an attentive mom. I know that doesn't help the situation, but it needs to be said! I don't know enough to be able to tell you if a firm diagnosis is possible at such a young age, so I won't go there at all. I'll just add my experience, which was that my son was VERY irritable from very early on...
  2. kaylee
    My little guy clearly had headaches although he was too young to say so (went gluten free at 16 months). He used to rub his hands across the top of his head and forward and make long blinks that were not normal. This hasn't happened once since he has been gluten free! Best, Kaylee
  3. kaylee
    Laura, I have no idea whether this could be the case for you, but with my son the longer he has been on the gluten-free diet, the smaller the amount of gluten accidentally ingested it takes to have a reaction. Actually, not only does it take less in quantity (because now just trace amounts are enough) to cause a severe reaction, but his reactions are...
  4. kaylee
    Hi and welcome, I can relate to the Bread Issue! Bread has always been a big part of my enjoyment of food, too, and finding a really good replacement, gluten free, looks like it's going to be a bit of a challenge. Still, I have good hopes about finding something even if it takes a while and a lot of experimentation. What I have found so far is that...
  5. kaylee
    I am currently in the process of weaning my 19-month-old toddler with celiac. He, too, as in the previous post, was incredibly irritable almost from birth. And, unlike what kept being said, he did NOT grow out of it. Looking back, two things stand out: first, the lack of help from the pediatrician was quite extraordinary, really. I went to her a number...
  6. kaylee
    So, here is the waffle recipe I am using. It's a recipe I found I cannot remember where that I changed around. It was originally based on amaranth flour, which I have never actually used. Point being, you could obviously transform it further to suit your needs and tastes. It could undoubtedly be used for pancakes, too (maybe adding more liquid). Waffles...
  7. kaylee
    browsing around, i saw that your daughter cannot in fact have almonds. I have a good gluten/dairy/egg/soy/peanut free recipe for waffles which I can post later. I had never made a waffle in my life until we discovered celiac and I realized I was going to have to change a lot of my assumptions about eating. So, one thing I did was to purchase a waffle...
  8. kaylee
    Hi, my son is also off dairy and soy and can only have egg yolk not the whites, so I really know where you're coming from and can relate to the desire to be able to give your child treats that won't be harmful. What about tree nuts for your daughter? Can she have almonds, for example? If yes, then I have a couple of nice (not absolutely fabulous...
  9. kaylee
    Hi againn, I'm not familiar with the blood test results you have but agree that they don't look like the ones for results for the celiac blood panel. A friendly suggestion, since you seem to want to be clear about whether or not you have celiac disease, is to get yourself tested straight away before being on your gluten free diet much longer (and...
  10. kaylee
    Hi Craig, I would have to go with what's already been said and wonder why if you know you're allergic to certain things and are having such digestive distress you wouldn't try a bit - or even a lot - longer to see results with removing them from your diet. You didn't mention whether the supplements you are taking are helping much ... you also didn't...
  11. kaylee
    Hi all, just feel like saying out loud in print that we got the gene test results back yesterday evening and our son does indeed have the main celiac gene. Rats. I had just about persuaded myself he was going to have a short lived sensitivity to wheat that he would outgrow soon enough. But, with his symptoms, his almost unbelievable transformation on...
  12. kaylee
    wow, thanks for the recipe! So far I haven't invested in an actual cookbook. I guess that's been part of my way of just easing myself into this new way of life ... I will give this recipe a try as soon as I get myself organized enough to get the new flour. I hope it works out, as I have been finding the regular gluten-free bread I make too rich with...
  13. kaylee
    I haven't seen the book you mentioned but it looks like it would be worth checking out. I sniffed around a bit to find out about the 4 flour mix, and see it uses sorghum and garfava flours - both which I have never actually seen. That doesn't mean I can't figure out how to get hold of them. I am hoping my son will grow out of the egg white and dairy...
  14. kaylee
    I join with the others in their encouragement. Also, I'm sure you've double checked everything - but just in case, and since it can be so very easy to forget to check the one thing you use the most routinely - did you make sure the vitamins are gluten free? I was really shocked the first time we had a gluten accident with our son due to a regular medication...
  15. kaylee
    A number of people I know swear by evening primrose oil, which is taken as a dietary supplement. I'm not sure about how appropriate it would be for a small child, and if appropriate what dose should be used for dry skin problems. Still, it doesn't hurt to try and find out. I will poke around and see or maybe someone else knows. Best, Kaylee
  16. kaylee
    Kayleen, First, are you being followed by someone who is helpful to you (doctor, nurse, nutritionist, naturopath etc)? Reading about your current experiences makes me hope you have gotten or are getting some one-on-one help. In addition to the above suggestions about cooking your foods well and needing to experiment to see what works for you as we...
  17. kaylee
    Yes - the more input the better! And, the more I read the more it appears that there is no one description of someone with celiac disease. That must also be why there are such varying suggestions from the technical and medical professions about how much gluten is sufficient for valid test results. Like you, Jala, my husband had decided to do 5 weeks (which...
  18. kaylee
    Thanks for your replies! It hadn't even crossed my mind that the almonds could be interfering in the rising process. Halving the recipe is a good idea (why didn't I think of that??) What are your thoughts on soy flour or potato flakes for replacing the dry milk? Now that I think of it for that matter, what exactly ARE potato flakes? kaylee
  19. kaylee
    Hi, I think everyone must wonder about this question - it's such a seemingly simple treatment for often a whole host of problems. And, in reading previous answers to this question as mentioned above it quickly becomes evident that the gluten-free diet treatment works almost immediate wonders for some people, takes a lot longer for others, and is only...
  20. kaylee
    Hi Jen, if your son is very small, pale, has tooth enamel loss and painful gas then looking into celiac disease is indeed a good idea as the others have suggested. Could I also add as a suggestion that you could put the time before the ped. visit to good use by keeping a food diary? Make notes on absolutely everything your son eats and also on anything...
  21. kaylee

    ARCHIVED Links

    kaylee replied to kaylee's topic in Board/Forum Technical Help

    Thanks for your replies! LisaB - Thanks for taking the time for a walk-through. That is thoughtful and appreciated. Kaylee
  22. kaylee
    Hi all, I am hoping someone will be able to help with my bread baking problem. I am about to give up my attempts for now as I am, as we speak, in the middle of producing yet another failed loaf! I made a number of really good loaves following one of Bette Hagman's basic recipes. The thing is, my son can have neither egg whites nor the dry milk powder...
  23. kaylee

    ARCHIVED Links

    kaylee posted a topic in Board/Forum Technical Help

    Hi, this is probably very straightforward, but my technical skills are woefully behind the times ... I've noticed that a number of people include links to information elsewhere on the web. I would be grateful to learn how to do this as I also have come across information from time to time that I think others might find interesting but haven't known...
  24. kaylee
    Terence, You mentioned that you saw a big change in symptoms when you switched from Synthroid to Levoxyl. My understanding is that Synthroid IS gluten free, no? SInce I also take it daily I am interested in that question, but also in what exactly you experienced in the way of symptom change with Levoxyl. Thanks. Kaylee
  25. kaylee
    Hi everyone, I have already written in about my son, and now it's for my husband that I have questions (questions about me will undoubtedly come soon!) My husband is going to get himself tested for celiac because after we all went gluten-free due to our son's need, he, my husband, was amazed to find how much better he felt after a week or so. His chronic...
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