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Jsingh

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jsingh

  1. Jsingh
    Thanks for the recommendation. I see it’s an Australian brand. Wonder if we can buy it here I the US?
  2. Jsingh
    Hi, After months of suspecting everything being gluten contaminated, I think it’s histamine intolerance mimicking some glutening symptoms. The biggest thing that settled it was my daughter’s neurological reaction fermented foods and probiotics general. I’ve tried this twice within a gap of six months. I do recognize now in addition to that avoca...
  3. Jsingh
    Hi, My six year old has been complaining of tingling in the legs off late. This used to be pretty common thing with her pre-diagnosis and a couple of weeks after the diagnosis as well. And now it is back again. I am not sure if it's a glutening symptom, or she could be deficient in something. I got her Pure Encapsulations' multivitamin capsule, which...
  4. Jsingh
    Hi, Just to add to the possible cross reaction or contamination sources- look into how you are reacting to the milk protein casein, or course avenin in oats, quinoa protein, and also possible gluten contamination in cooking oils. I care for my six year old daughter with Celiac, and it’s only after removing all oils from her diet has she felt b...
  5. Jsingh
    Hi, Yes, my daughter will Sometimes show such instant reactions- hiccuping, acid reflux. But other times it’s slow and builds up over days if the contaminants is use daily. Over three days or so it’ll be joint pain, nausea, intestinal spasm, etc. For her, glutening symptoms and their intensity vary.
  6. Jsingh
    Hi, My daughter has reacted to casein and the symptoms are unmissable- totally gluten symptoms. Joint pain, nausea, intestinal spasms. This has happened ten months after we went dairy free along with gluten free post diagnosis. I am certain she is reacting to casein. We never did oats for the same fear. Not even going to try the Certified one. It...
  7. Jsingh
    My daughter showed great improvement in the following weeks of total gluten-free. Then even slightest of contamination is so called gluten-free foods like honey, cooking oil, ketchup, maple syrup, etc. we are at a point now that we’ve stopped everything that comes out of a packet. EVERYTHING. In her case it’s either she is very super sensitive and might rem...
  8. Jsingh
    Hi, I am mother of a six year old who was organized a year ago when she was fine. to answer your question about removing gluten from your kitchen- it will be a mammoth task but your entire kitchen has to be free of gluten for her to be safe. Now I’ve learnt from this forum and others that different celiac patients show different level sensitivities t...
  9. Jsingh
    I just wanted to share that my daughter reacts to quinoa and corn, certified gluten-free. Who is to say if her threshold for handling contamination is lower than 10ppm or it's cross reaction. I never bothered with oats for the same reason.
  10. Jsingh
    Hi, Were you able to get a response from them? I have written to Nuts.com asking info. om how to they test, etc. I am awaiting a reply. And, my daughter is allergic to tree nuts, so we only buy their straightforward organic dried fruits sans any preservative/additives.
  11. Jsingh
    I second Nuts.com. Theirs seems to be good. My daughter can have their certified items without any problem. I don't even know how to process this!!
  12. Jsingh
    I have written to them about sharing details of the lab that does testing for them. That way I can at least know the contamination threshold the lab tests for. For I had written to GFCO in regards to another brand that GFCO told me they do not have the info on the testing threshold for contamination on individual brands. They let the companies set that for...
  13. Jsingh
    Sorry, I should have attached this one. Their email to my follow up.
  14. Jsingh
    Maybe I should write to GFCO as well with BONO's response, if what you say is the case. I wonder if GFCO has different requirements for imported products. Here is the email:
  15. Jsingh
    Thanks. I wonder if there are others who have reacted to GFCO certified oils. My daughter has to BONO brand. These people do not really test the oil before bottling. GFCO simply attests to their declaration of the bottling plant being a gluten free facility. I dunno if their are any oils which are actually tested for gluten contamination.
  16. Jsingh
    Hi, Thanks. I have written to la turangelle to check if GFCO certification means the actual testing of the olive oil before bottling. I've had bad experience with certified gluten-free, and upon contacting the brand I learnt they do not test for gluten, just let GFCO know that their facility is free of gluten hence the certification.
  17. Jsingh
    Hi, Yes, I tried to remove all oils and began cooking with Earth Balance' butter which we had already been using as spread. It seems like a hit or miss, for one tub seems to be gluten free and the other not. It's been crazy. She reacted to Ghee, which could either casein allergy, which she does have, or the ghee itself was glutened. The brand I...
  18. Jsingh
    I am asking for my six year old. It took us four months to figure out what was going on- a brand of extra virgin olive oil we were using for every meal. We changed the brand she instantly got better- from Gi to nephropathy to joint pain, to tinnitus to dry eyes. You name a symptom and she has it when glutened, so it's difficult to second guess when it's all...
  19. Jsingh
    My 5 year old daughter was diagnosed in January this year. Since we began gluten free diet, she has been symptom free (no tummy ache.). Only the first week of gluten free was the worst where she was in pain almost all day. No one can say gluten free withdrawal for a Celiac patient is not real. Anyway, I though I'd make some quinoa cookies, and lo and...
  20. Jsingh
    Hi Jessica, I could have written this myself, except I had no idea about Celiac disease before my daughter was diagnosed. If I did, I would have perhaps figure out when she was three, that’s when her asymptomatic began. yes, it is correct that new guidelines state that in case of children whose antibodies are ten times higher than normal, ...
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