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PA Painter

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by PA Painter

  1. PA Painter
    Yes, excessive neuropathy and a debilitating headache, spasms, cramps, tremors. Very much what you would expect from Parkinson or MS, only it coincides with the food and resolves 100% with a whole food AND gluten free diet. The gluten free diet was not enough on it's own I had to eliminate all processed food as well. They did the biopsy a year ago.
  2. PA Painter
    I've had the testing up to the biopsy. Once they confirm the intestine is not affected they cease pursuing further diagnosis, regardless of extra intestinal symptoms. They refuse to pursue anything non celiac. I react to: banana, avacado, fresh cabbage, yogurt, pecans, walnuts, xantham gum, and obviously wheat, barley, etc. Even so called "gluten...
  3. PA Painter
    These were certified gluten free. I have a list of about 12 or so foods that do this.
  4. PA Painter
    I have non celiac sensitivity. I used to eat oatmeal with no problem. It causes a three day nightmare just as if it were wheat now. I seem to be an extremely sensitive case though.
  5. PA Painter
    That somes it up. It is worth mentioning GliadinX does not reduce symptoms for me at all. I also react to banana, avacado, cabbage, Oatmeal, and pecans among other things. If anyone else out there is like me, I had to eliminate gluten and all processed food before I could start to heal. I wish I had know this a long time ago. Thanks for the acknowledgement...
  6. PA Painter
    Hi Celiac has been ruled out with a biopsy. I am so sensitive that I cannot eat most processed food. One bite sends me into three to five days of a disabling shoulder, neck, headache, stabbing & burning toes, ankles, knuckles, and wrists. I finally discovered that a whole food and gluten free approach has given much needed relief after years of agony...
  7. PA Painter
    Thank you for being so informative. Hopefully we get some good research soon. The NIH should be all over this, among other things.
  8. PA Painter
    Right now the only symptom I have is peripheral neuropathy and extreme fatigue. I am on an extra vigilant no bs chicken and veggies diet and feel fantastic except I can get enough sleep have stabbing/burning pains in my feet/toes. My doctor said it's impossible to have neuropathy from NCGS. He is an intern.
  9. PA Painter
    They said no celiac. I still can't eat gluten it messes me up. I am having severe neuropathy. I tried whey protein isolate again after the results and got a nasty neuropathy flare that is now on day 5 from a fourth of a serving. My doctor refuses to acknowledge gluten sensitivity or it's symptoms. He asserts that I am healthy. I don't understand why whey...
  10. PA Painter
    The endoscopy was due to the GERD. They said my esophagus is eroded, my stomach is fine, no polyps, and 6 sample were taken from my colon for celiac biopsy. I had reached a plateau and would not get batter despite being gluten free. I had to give up dairy and begrudgingly coffee. The coffee was messing my nerves up seriously bad. It has been quite an adjustment...
  11. PA Painter
    Hello everyone! Reading some experiences here has been so helpful I feel responsible to share my own so far. I am pretty sure I have been having mild gluten and food related reactions my whole life. I could never figure out what was happening, didn't know what they were, didn't know what caused them, didn't know why I sporadically felt like poop for 3-5 days...
  12. PA Painter
    I was continuing to get a reaction from processed food. I had to change to nothing but one ingredient foods like chicken and vegetables. I am still working it out. I glutened myself with instant coffee believe it or not. After going to the elimination diet all weird sensations have eased off, until I glutened myself. The idea is to slow introduce foods to...
  13. PA Painter
    I get ill feelings from pretty much all of the processed "gluten free" food. The frozen diners are a big no go. The cookies are good but they get me sick too.
  14. PA Painter
    I'm on some what of an elimination diet right now. Yesterday I introduced a new instant coffee to my morning smoothie that lit me up. I am still hurting now but it's ebbing off. The brain fog, stiff shoulders, etc. All from 2 scoops of instant coffee in my smoothie. I switched back to Cafe Bostello this morning and no issues. This thing is hard to nail down...
  15. PA Painter
    Yes, I just glutened myself yesterday. My two middle toes and two pinky fingers are always burning with neuropathy. It is a horrible pain. I feel red hot spikes right now. NSAIDs don't hold a flame to nerve damage pain. It just started for me. I have upcoming procedures.
  16. PA Painter
    That's worth looking into. Thanks! I hope that's not it. I go through a lot of oat milk. The only thing new was my instant coffee. I switched to NesCafe's "Iced" version. It's supposed to dissolve easier so I would assume that it has been processed more than the regular instant coffee.
  17. PA Painter
    I have an endoscopy coming up. I discovered that I had celiac after sustaining some pretty nasty damage from GERD. I only ever got GERD and neurological symptoms. The prepackaged meals trigger me too unfortunately.
  18. PA Painter
    I am getting the rollar coaster ride too! I don't eat anything that should have gluten but I still get, neuropathy, joint pain, headaches, cramps and twitches. It has gotten to the point where all I eat it is grilled chicken and mixed veggies every day for diner. This morning all I had was an oat milk/ isolate whey/ instant coffee/ smoothie and I could hardly...
  19. PA Painter
    I wish. I can hardly eat.
  20. PA Painter
    Thank you!
  21. PA Painter
    Thank you for the reply. In a way I am relieved to finally know what is going on with the arthritis etc, but am a little freaked about all of the potential problems that could spawn from this. I have had family tell me I'm crazy which is BS. I appreciate the heads up on gene testing. I'd rather not eat gluten ever again
  22. PA Painter
    I'm new too. I'm still only 6 weeks into my first gluten free attempt. My Mother just feed me cornbread and insisted it was gluten free. After I ate I checked and sure enough it was made with wheat flower. I'm not taking it personal but I will be preparing my own meals from here on out because I already feel better than I have in 20 years.
  23. PA Painter
    I have been experiencing extreme , GERD, lactose intolerance, arthritis, weird rashes, constant itchy skin for well over 10 years. I thought it was post traumatic arthritis. 3 months ago the GERD had gotten to where I could not swallow properly and was in constant burning agnony. None of the over the counter treatments worked. Out of desperation I tried a...
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