mat4mel

Anybody know a good pediatric GI dr in Pennsylvania? We are in NE PA but can drive a few hours if we need to.

inmyhead, could you please tell me where you got those statistics-- my dd had both antigliadin igg and iga positive but all others were negative-- i did a lot of reading and it was over 95% chance of celiac with both of those positive. oh wow now i just read your email again and it says from your child's GI dr. that is very interesting-- i wonder what...

These menus sound great; I wanted to add that somebody mentioned Kraft's parmasan cheese and I almost 100% sure it has wheat flour in it (the kind you buy off the shelf in the green container). My dd can't have much dairy at all (little cheese here and there) AND no chocolate (usually has dairy anyway)... AND she is underweight, so I am having a hard...

I am a bit confused about genetic testing. I have one child (almost 3 yrs old) that I suspect has Celiac; she has been gluten-free for 9 months-- she is better gluten-free but has other issues (she is not completely better-- she is having more testing done soon). In the meantime I had my other kids tested and they both had positive IgG but negative IgA...

Renee, my dd's story is very similar. Around the age of 2 she had loose frequent stools exactly as you described. She also had positive igg and iga at her ped's office but he did not run the endomysial antibodies. We couldn't get into the ped gi dr for a few months, and decied to go ahead and put her on a gluten-free diet. her poops improved a great deal...

Renee, Yes, fatty stools is a major symptom in kids with celiac. My 2 1/2 yr old dd had frequent greasy (and mucusy sometimes too) looking stools until gluten-free diet. So your child is on a gluten-free diet? Is that helping at all? Mel

I totally know where you are! I have a 2 1/2 yr old, who also has low IgA and neg ttg. Did they also run the anti-gliadin antibodies? That might help, maybe not though with the low IgA. Anyway, I keep going back and forth on the endoscopy issue. Seriously-- one day I will be okay doing the gluten challenge and biopsy, and then one day I am set on just...

To the OP-- I totally know how you feel.. My 2 1/2 yr old was having horrible bowel movements and not gaining weight well (she is still small at 23 lbs) and in April, the GI dr appt was scheduled for July!! I was thinking the same thing.. shouldn't this be an emergency? Argh! Your story rang a bell with me, because my husband AND his brother, as children...

Craving milk like that (and drinking such a large amount) sounds to me like an allergy. Like someone else said, some people actually crave the thing they are allergic to. I would definetely cut out the cow milk for a couple of weeks and see if that makes a difference-- in fact, cut out all dairy and see. Mel

Be sure to get copies of the test results. Sometimes dr's will say negative when they are only mildly positive (sounds crazy, but it happens). Mel

Sorry I haven't replied sooner. My dd had diarrhea for 4 months before going gluten-free/CF. She has been gluten-free/CF for 4 months now. She does not play with play doh or glue. Sometimes she colors with crayola crayons, but I am pretty sure those are gluten-free. Mel

I love Tinkyada.. I really don't think it's that much different from wheat pasta. The color is a little different. Be sure you are cooking it in a lot of water. Mel

Hi, From what I have read (and I'm not an expert) I think that the ttg IgA is *the* most accurate for Celiac's.. so it being a strong positive, I would say he definitely has Celiac. What about his biopsy-- they said it was not celiacs, but gluten allergy? How do they tell the difference? I am just curious because I am debating whether or not to do...

That's a good point. I thought already that I would make sure the bread had no dairy. But I didn't think about yeast. She tolerates eggs just fine. Pasta would be easy because they like rice pasta and the brand we buy seems so close to regular wheat pasta. But they don't eat much at a sitting whereas I know they would gobble up a whole sandwich. As...

Just out of curiosity-- why pasta and bulgar and not bread- because they have less gluten? I am curious how I should do the gluten challenge if I do-- build up slowly or just start giving them one sandwich a day?