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Jodie2DQ2

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Everything posted by Jodie2DQ2

  1. Hi, I just pulled my generic testing from Prometheus...here is what is says. HLA DQ allelic variants associated with celiac disease detected. Homozygous DQB1*0201 ( DQA1*05-DQB1*0201 and DQA1*05-DQB1*0201) Then it says due to this I have a 5 fold risk of developing celiac and a more severe. Jodie
  2. Thanks for the welcome! This has been quite a learning process and I am sooo sensitive that I am really careful before anything goes in my mouth! This is great to have other people to talk with. I do not feel so alone! Jodie
  3. HI, my name is Jodie and I am from Idaho. I have been getting alot of information from this site and want to say thanks. My story is alot like some people on here. I had not joined due to really wondering if celiac is what I have. Before last summer I had a history of dental problems,then came the acid reflux and then 3 miscarriages. It was not until I completely changed my diet to whole wheat everything to lower my cholesterol. The GI Dr. kept saying more fiber..more water and the sicker I got. Then I decided to quit smoking and things went from bad to worse. After a colonoscopy and endoscopy(no biopsies were done.) I could not even get out of bed. I got the usual looks from the doctors, told I needed a psychiatrist etc. I never even knew of Celiac disease. I was losing 10lbs a month and the Dr's knew nothing. So I went to a naturalpath Dr. who just put me on an elimination diet and through messing up did she tell me to get tested for celiac. By the time I got in I was not going to eat it for a test. But the Gi Dr. said if it was celiac it would still show up in the blood for up to a year.It all came back negative. It absolutely burned when I ate Gluten. The allergist did genetic testing which came back double DQ2. It really has been a nightmare with the GI doctors here who clearly say it is not Celiac but can not explain to me why it burns my stomach only when I eat something with gluten. I also have a 2 1/2 year old who had been sick every 2 weeks after he was on regular food. He has been off gluten for 3 months and this is the longest he has not been sick.So I am better but still having issues. But I have to say I would not be where I am today with the information from here. Thank you!
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