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Chamel

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    Chamel
    Chamel reacted to trents in Celiac Disease and My Brain and Muscles   
    I would also add that the B vitamins are water soluble so there is no concern with overdosing on them. Excess is just urinated out. Make sure all your vitamins and supplements are gluten free. Costco is a good place to find vitamins and supplements at a reasonable price and reasonable quality. Many or most of their vitamins and supplements are gluten free and will say so on the packaging.
  2. Like
    Chamel
    Chamel reacted to ling27 in Celiac Disease and My Brain and Muscles   
    Thank you for welcoming me. Yes I have been diagnosed with celiac disease.  Due to the damage it caused I have to live alone because I am over stimulated by noise.  It's not the life I want but it is finally a life, I can live with the coping skills I have learned.  I cannot drive, but live across from the store and the medical center for my PC is just around the bend.  I thought I would share just a few things I have done to see if it can help someone else out there.  I take tumeric for swelling and soak my feet in epsom salts two times a week.  Like I shared before this is just a tip of the iceberg, but due to my condition I cannot concentrate at long periods of time.  Thank you and yes I am totally gluten free, right down to my shampoo. I was actually up out of bed three days after going gluten-free.  Take care my friends, we are not alone, but it's a hard road and I understand. Later!
     
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    Chamel
    Chamel reacted to knitty kitty in Celiac Disease and My Brain and Muscles   
    One symptom of Thiamine deficiency is edema in the feet, ankles and legs.  Thiamine is Vitamin B1.  There are eight essential B vitamins that Celiac people have difficulty absorbing sufficient amounts of due to Celiac damage in the small intestine.  The B vitamins cannot be stored for long.  Thiamine runs out first, in as little as three days.  
    Has your physician checked for nutritional deficiencies? 
    When we remove gluten containing foods from our diets, we are also removing the vitamins added by the manufacturers.  Buy your own vitamins now.  Gluten free processed foods are not required to have vitamins added to them like gluten based products.  The Gluten free diet can be low in B vitamins. 
    I became deficient in B vitamins. My doctors said it was all in my head. They did not recognize vitamin deficiency symptoms.  I developed Thiamine deficiency.  It was difficult to think and to move about.  The fatigue was devastating.  I drooled and had difficulty talking.  Deficiency in Riboflavin Vitamin B2 caused migraines.  
    There's eight B vitamins.  They need to be taken together because they all work together.  I took extra Thiamine (Benfotiamine) as well as a B Complex supplement.  
    Talk to your doctor and nutritionist about supplementing with essential vitamins and minerals while healing.  Celiac Disease causes malabsorption of nutrients.  Doctors don't think about vitamin deficiencies in Celiac, but it really happens.  
    Hope this helps!
  4. Like
    Scott Adams
    Chamel got a reaction from Scott Adams in Newly diagnosed celiac while pregnant - all advice appreciated   
    It sounds like you’re doing all the right things. In terms of general pregnancy nutrition… Build meals around protein. I recommend that my clients eat every 3-4 hours, a little something (even if it is a handful of nuts or a few bites of Greek yogurt). In pregnancy your body can enter a fasting state much more quickly, and eating often helps limit blood sugar swings. Have a bedtime snack, and keep something readily available to consume during the night if you’re wakeful. Lily Nichols’ book “Real Food for Pregnancy” is a gem (with gluten-free modifications of course).
    Blessings,
    Melissa
  5. Like
    Scott Adams
    Chamel got a reaction from Scott Adams in Newly diagnosed celiac while pregnant - all advice appreciated   
    Thankfully, pregnant patients with well-managed celiac disease do not generally have heightened risk for complications:
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9756025/
    “Undiagnosed celiac disease is associated with a higher risk of adverse pregnancy outcomes. Early celiac disease diagnosis and appropriate management with GFD may ameliorate these associations.”
    Good news for the pregnant mamas who are managing well!!
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