Momof2cuties

My DD, Ali, was diagnosed with celiac a couple of months ago and has been gluten-free and casein free since. She does fine at home, but if we leave the house to go ANYWHERE she manages to get sick!! I would think that if it was from something around the house (soaps, detergent, shampoo) it would be everyday. The church nursery is the absolute worst....

If anyone has any recommendations for a pedi GI in or around Omaha, Nebraska I'd be so thankful! We saw a new doc in town yesterday and he was AWEFUL! I figured if he was at Children's Hopsital he'd have to at least be willing to listen, but boy was I wrong.

Thank you so much for all of your help! It does help to hear from other parents who have waded through these waters before. I think we decided we're not going to change anything until we talk with her regular pediatrician and get a second opinion. We'll see what happens from there. At any rate we will most certainly wait until we're back from vacation...

Is there really a difference between a wheat allergy, gluten allergy/intollerance and Celiac Disease? My husband and I have been talking about what we want to do about Ali and we're thinking maybe she has an allergy and not truly Celiac. Thoughts?

Well, today was a very frustrating day...I took Allison to the Children's Hospital in Omaha today and I feel like we're back to square one. He said he doesn't think that Ali has Celiac (only based on the fact that her blood work wasn't positive). He tried to tell me that he thinks she's just small and that she's totally fine. So, now we've got the diagnosis...

My daughter is a suspected Celiac and now possibly has dairy/casein issues, too. Can anyone help give ideas for snacks and meals? It seems like everything gluten-free that I had found for her that she'd actually eat isn't CF. Please help!! We're going to see a nutritionist next week, but I just want to be sure she's getting what she needs. She's so tiny...

I can't figure out what's going on! It seems like Ali's symptoms are back, although not nearly to the full extent that they were before the gluten-free diet. I can get the rash to go away with some hydrocortisone cream, but it comes right back as soon as she poos again. When they have multiple sensitivies are the symptoms similar? Her pediatrician won...

Yeah!! Ali is growing!! She went in for a check-up a few days ago and gained 10 ounces in two weeks since being gluten-free...here's the really exciting thing...she woke up this morning with three new teeth!! She had a new one earlier in the week, too...so, that makes four teeth in a week! She's miserable and cranky, but she's proud owner of four brand...

Ok, so we've been going through all of the testing and struggles with trying to get a diagnosis for our 17 month old daughter. She's had blood work done, but it was inconclusive. We're now waiting for our appointment with the pedi GI in September to find out more. In the meantime our pediatrician recommended that we try the gluten-free diet and have had...

I'm with you!! It seems our kids are nearly identical. Allison hasn't gaine any weight in the past three months! She's almost 18 months and is still just 19lbs. Her blood test was also inconclusive, but we're assuming it's positive based on a family history of Celiac. We can't get in to see the pedi GI until the end of September, so we started the gluten...

I'm really confused and new to all of this. I really hope someone can help me! My 17 month old daughter was recently given a blood planel to test for Celiac due to severe GI symptoms for the past 6 months and contact dermititis on her face and bum. After seeing just about every pediatrician at our local clinic and being told five different possible causes...

Yes! I felt like I'd go through about a dozen wipes sometimes. The poor child was so tortured by the painful diaper changes that she won't go anywhere near her changing table. We have to change her on the floor. Poor kid! But, since being gluten-free her poos are much better. No more sandy appearnace, but they are still a little pale in color. We...

I got the call from the clinic this morning with my daughter's lab work. They said the normal range for IgA is 24-100 and that her value was 23. They said the test was inconclusive, but we're going to assume it's possitive. HELP!! What does that mean?!?! The woman was very quick and said she'd request a pedi GI consult and to follow up with Ali's regular...

Wow! I didn't realize that was normal for our little ones. Or at least part of the disease rather than normal. My daughter's poo has always been that way, too! I'm glad I'm not alone on that one.