beyondbabs23

@Wheatwacked I am a little frustrated with my doctor and the way things have went. I also have been suffering with severe acid reflux and nausea since my EGD, called the office to let them know and haven’t even gotten a call back for that, let alone anything else. 

When I return home after this job assignment, I will look for a better Gastro to build a repor with, as of course this happens out of town.

Im also frustrated because I’m 26, this is all new to me. I feel like they are treating this as a  run of the mill diagnosis to them, when it isn’t to me! It just isn’t being handled with much grace

@trents Thankfully I haven’t given up Gluten yet fully due to just having my biopsy and have been savoring it until I’m told to let it go, lol. 

Yeah very much so it seems the symptoms overlap, as you said from what I’ve been reading. I was having sigmoid pain and strange bowel movement issues. but the doctor told me all Celiacs have upper stomach pain, vomiting, and those are the only Hallmark symptoms, which I don’t believe in the slightest. 

I’ll keep pushing ! I did a food intolerance test 2 years ago so I knew I was intolerant to gluten and wheat, but never was tested for Celiac despite that. So NCGS is very possible, I’m not sure if that would elevate IgG like mine or not, but worth asking about ! 

@trents Thank you so much for ALL of this info and really breaking it down for me. As I said, I’m sorry for my ignorance or any misinterpretation of tests ran, my doctor has explained none of this to me. They actually told me “You don’t have the typical symptoms for Celiac or IBD, we are just completing the protocol from the ER” and the Celiac test came back with antibodies. 

I did mean the Celiac was positive, but the CRP, ESR, and fecal calprotectin were negative which is what prompted them to do the EGD, since they originally told me it was just IBS, and the other testing ruled out IBD, along with a CT scan from the ER showing no inflammation. 

I am going to keep pushing to get in contact with my doctor, it is very frustrating to just receive a letter without any follow up or explanations. And Google is a scary thing, statins IgG without IgA can mean other terrible things liver diseases, etc. 

I would also like to speak with them regarding the NCGS and if I need to repeat the Celiac Panel or endoscopy in the future. 

Thank you again.  

Hello! 

I am new to this so forgive my ignorance.

I was given a GI referral after what seemed like diverticulitis and an ER visit. They ran a Celiac blood test, ESR, CRP and fecal calprotectin test. All were negative but they state Celiac was positive and needed EGD. They never called but mailed me a letter stating my biopsy was negative for Celiac and H. Pylori. I cannot get my doctor to contact me back. 

So i figured until then this might be a safe space. I haven’t went completely gluten-free yet, because if my biopsy and nobody telling me otherwise. However from my blood tests I’m confused. 

I was reading that most people have IgA positive. I am not only IgA and EMA negative, I am only IgG positive, is that still indicative of Celiac or something worse? Any help is appreciated! 

My results were as follows:

Deamidated Gliadin Abs, IgA = 8

Deamidated Gliadin Abs, IgG = 41 H

tTG IgA = <2

tTG IgG = 10 H

Endomysial Antibody IgA = Negative 

Immunoglobulin A Qn, Serum = 250