dana-g

My allergy test for wheat came back negative, but if I so much as put a little dab of a product containing hydrolized wheat protein on my hand, I get a terrible rash, burning and itching. This has happened with four different products. Now, it could be something else that's causing the reaction...I will have to read the labels and cross-reference. Considering...

My 11-year-old daughter was biopsied only because I was dx'd with celiac disease. She had NO symptoms, elevated bloodwork. Her gut, however, was a mess. Think I should let her eat gluten? Didn't think so! Stick with the doctor's advice--how lucky you are to have a doctor who actually dx'd you in the first place! Dana

Glen I read that article too, about the ten most underdiagnosed diseases. celiac disease was high on the list. I'm sure it got a fair amount of people thinking, since Reader's Digest has a wide readership. It was a bit vague, but people are very likely to use thier computers to find more info--that's what I did! Dana, Gloriously gluten-free

The only reason I'm going back to him is to give him the NIH Consensus; he's NOT my doctor anymore! I thought it would be irresponsible for me not to give him the information he so desperately needs. What he does with it is up to him. Dana, Gloriously gluten-free

I'll try and keep this short I will start by saying I am totally symptom-free from celiac disease since going gluten-free seven months ago! One of the very lucky ones, and I know it. I saw my first GI after I had been gluten-free for six weeks. He was certain I had celiac disease. He didn't see a point in doing a biopsy since I was off gluten already...

Deanna, I like your "two cents", and I think it's great that we're discussing co-dependency here. Being dx'd with celiac disease is a huge emotional upheaval for a lot of us; likewise the years leading up to it have often been an emotional roller coaster. I know my illness affected my marriage and my relationship with my children. I think it's fantastic...

Anna--My grandparents are from Eastern Europe, and I really miss pierogis! I won't even attempt a gluten-free version. Some things just don't translate very well. And I also have a daughter named Anna. She's 11, and has celiac disease, too. I've had to keep a very positive attitude toward my disease for her sake. I also have food allergies, and frequently...

Wheatgrass is off-limits because it is very easily contaminated by seeds. I would imagine other gluten-cantaining "grasses" would have the same problem.

celiac3270, this was a very good idea--I've enjoyed reading all the postings so far. I was going to wait until all my tests results were in next week, but I'm just going to go for it! I have a good news/bad news story. My new GI decided, just this week, that my diet-dx'd celiac disease, is not celiac disease at all, but likely a severe allergy to wheat...

Susan, I would think your allergist could tell you if you are doing anything harmful to yourself by eating wheat if you are allergic to it even though it doesn't produce any symptoms (lucky you!) Otherwise, have a Twinkie on me! Nice to hear somebody has gotten a reprieve! Dana, Gloriously gluten-free

jools--Check out celiacchicks.com. They are based in Brooklyn and they have get- togethers and a great website. Dana, gloriously gluten-free

I don't know if cigarette paper specifically contains gluten, but wheat starch is used in paper-making. How that would affect a celiac, since you aren't ingesting it, is the big question. Can you get that much gluten from some wheat starch between your lips? One more good reason to quit smoking! (I had to say that! Although the nicotene patches probably...

I just googled "corn allergy" recently because something's been giving me allergy symptoms, and my interpretation is that if you have an allergy, it would generally show up after ingesting a moderate amount of allergen. If you're like me and make a GIANT bowl of popcorn and refuse to share it with anyone, and ignore the fact that your gut is probably more...

Ezrab (I like that name!) I just found that corn allergy post and it wasn't you, but you may want to do the diary anyway--it really helps give you some clarity. I remember feeling really fuzzy in the head when I was getting the gluten out! Good luck.

Ezrab 12, are these new symptoms, or the same ones you had when you were eating gluten? Did they just not go away? Casein is a protein found in milk. Are you having any gastro symptoms? If so, you may want to avoid dairy while your gut is healing; often, celiacs find that helpful for a while. Are you the one who also posted about the possible corn allergy...