nanny marley

Thanks rmj when I first rang up it was we can't do it without , but I talked to a lovely lady and she sorted it all out for me, so it pays to be persistent , I would have had to decline if I hadn't been given the water option too , so yes I'm glad too 😌

Had my MRI today I didn't have to have the manitol with my allergy's , I just had a litre of water , they were great with my concerns , so let's see if anything comes of if will keep posted once I have results 👍

Had my MRI today I didn't have to have the manitol with my allergy's , I just had a litre of water , they were great with my concerns , so let's see if anything comes of if will keep posted once I have results 👍

Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏

Thanks for the list too makes me realise why I still get symptoms after cutting gluten , all that reading has just made sense to why I'm still struggling , thankyou Scott Adams very insightful , I've been baking to and there is xanthum gum in the flour , I understand now why I still have issues with that too, and ive had to cut dairy also , i had a terrible flare few months ago and my throat also was very irritable and I had sinuses issues all makes sence 👍

Thankyou yes I read up on it beforehand , because or my trapped nerve when I have a bowel flare up it's impossible to keep still  which I will have to do for the MRI ,and it's so painful , and I know if this is what I'm thinking it to be it will cause me terrible issues , sometimes I get to the point where I just want to diagnose myself and act accordingly, because I've been at this year's , and I clearly have all the symptoms , it's so frustrating when you have all this going in and still feel no further ahead 😳

Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳

Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who  told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗

Thankyou I will definitely have a look your very  insightful and a lot is making sence 👍

Thankyou I will definitely have a look your very  insightful and a lot is making sence 👍

Oh wow thankyou so much  for this information that's is very eye opening , you see I always say talk to the ones who have experienced ,  my analogy was always you can never feel the pain of a broken leg untill you have one, I'm so glad you reached out to me and will definitely look into all this advice ,  the docters don't listen one said to me have you been googling symptoms lol, nope there real I'm real and I'm suffering ! I've been on vitamin supplements on and off threw blood tests for over 15 years, yet they didn't question why it was always like that ? I do believe also that the deficiency needs looking at because I have frequent diarrhea and wat I'm loosing I'm probably not getting back, hence the symptoms your right are being caused and I'm feeling poorly threw it ,so thankyou again for this advice , I can't express in words how much I appreciate it , I have just developed a huge white patch on my neck also , she has given me nizorol shampoo to wash it and antifungal tablets , I've already tried the cream didn't work it's not itchy not red just a large skin depigmentation , I have olive skin so it stands out but that's just occured in the last few months too, and she said it could take two years to come back 🤷

It's been postponed due to my sciatic nerve being in high flaring mode I had a feeling I was worrying about something turns out because of the extent of the disk in my spine with the nerve how it's trapped its a risk my back specialist always told me to be very careful with that area so now it's 1st July  I'm glad I contacted the nurses with my worries 

Oh yes same here I've been called a weirdo and health aniexty nut even at first my own daughter's were making fun of me but now they have seen the results there's too doing the gluten and lactose free has they both now older have realised they have problems too and threw me ranting on and changing it's helped them to stop suffering early so you keep doing what your doing a true friend will always understand you and help you I couldn't dream of making someone eat something they can't my granddaughter has a bit allergy imagine he saying it's just a nut build your immunity people can be so self centred wen it comes to compromise around food your not crazy your a human being with a different need hold your head up for all the ones in the same boat and you look after yourself regardless of wat anyone says or thinks  a good saying I like the rainbow has many different colours that's why it's so beautiful so shine your colour 🤗

Hi thanks Scott I had a phone call from the docters they gave referred me to gastroenterology as a urgent appointment because of the inflammation the kidney test went from stage 2 to stage 3a within 11 month I had one in February too so it's quite a concern at the minute so that is being looked at too the celiac test came back negative but I have been gluten free for over a year so that needs redoing this has been going on a long time for me but I'm finally getting them to listen so hopefully will have some answers soon 🙏

Thanks for posting that Scott I will arm myself too I had a blood test today and a fecal test for calprotein I'm not expecting any positive results I've been gluten free for over 6 months but I will be back has Arnold says with that information 👍

Oh yes same here I've been called a weirdo and health aniexty nut even at first my own daughter's were making fun of me but now they have seen the results there's too doing the gluten and lactose free has they both now older have realised they have problems too and threw me ranting on and changing it's helped them to stop suffering early so you keep doing what your doing a true friend will always understand you and help you I couldn't dream of making someone eat something they can't my granddaughter has a bit allergy imagine he saying it's just a nut build your immunity people can be so self centred wen it comes to compromise around food your not crazy your a human being with a different need hold your head up for all the ones in the same boat and you look after yourself regardless of wat anyone says or thinks  a good saying I like the rainbow has many different colours that's why it's so beautiful so shine your colour 🤗

I too have blood tests booked a Wilson and was told it's ok that I've been gluten free since for over 6 months they have also put  me in for a fecal test for calprotein and a milk allergy has I had to  stop lactose too and a IBS blood test I didn't even know you could test for IBS ? I'm going Tuesday but since reading on here I'm thinking now why bother I've been suffering for that long has I can remember I've reached out to docters since I was in my 20s im now Immy 50s was told IBS and health aniexty was my problem what prompted me to go back again this time was the long list of problems I've also had which they also know about but never said any were connected I've had bad bouts that put me in bed for days I cut carbs out years ago and saw a difference but uneducated just thout see it must be a better way of eating didn't realise it was actually showing me to cut gluten out I've been back and forth to docters that much they have put me down has I have health aniexty causing it in a nut shell it's in my head yet over the years I've had sickness medication scans over my kidneys my liver my tummy for the pain flu like symptoms were put down to my bad rhinitis hair shredding was put down to stress vitamin d deficiency put down to food my 3 herniated discs degenerative and slight sclorocis believe it or not was my posture achy legs syndrome and bad blood circulation to my low mobility threw my back I can go on and on what they tryed to tell me I got that bad i realised it's maybe more than IBS and yes I do suffer aniexty but the way they have made me feel like it's all in my head is time to stop because cutting out gluten and lactose had been the best thing I have done I only went back because I was a little worried after struggling for so long if I had damaged my bowel i just hoped I would get help threw tests sorry for long post but you are not alone with the worry of the test results but if you know yourself then you be your docter and help yourself too but always push for help if   you have abdominal pain it could be other things too it took me 15 years to get a MRI for my back you can imagine my thouts Wen I got my results that it wasn't just my posture had I'd been told even unable to walk was my fault lol  so if you are struggling seek out help anyway you can and be consistent till you get answers 🤗