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kbdy

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Everything posted by kbdy

  1. kbdy
    Is it harder for them to fight the illness? Dd has a kidney infection & is in the hosp. It almost seems as if it's harder for her to fight it right now. Could this be b/c of Celiac? She's had 3 rounds of IV antibiotics & is not recovering as fast as we thought she would
  2. kbdy
    We found that book at the library & it was great! My dd brought it to her preschool & they had a great time reading about it & discussing it. It really helped the kids understand what dd has & why. Not sure how old your child is, but we brought gluten-free food boxes for her preschools "grocery store" & it was fun for dd to have to...
  3. kbdy
    Thank you!! Thank you!! Have they had expos before? I've never heard of it in IL.
  4. kbdy
    My dd vomits violently when she has gluten. We found this the hard way when she accidentally ate gluten. She actually started vomiting in her sleep & then it continued for about 8 hours She's been gluten-free for about 16mths now, so I don't know if that's way she had such a severe reaction or not.
  5. kbdy
    Vicky, Thank you for that well thought out response. I honestly didn't even think about the cross contamination issue! And all those toys that they will be playing with later. I think that I am more than fair with what dd deals with. She is not able to participate in many areas in that room. They will have a bin of flour or oatmeal out in the room...
  6. kbdy
    Do you happen to know if there's a group in NW IL? I've tried contacting R.O.C.K. in Rockford, but I don't know if they still exist b/c I can't get in touch with anyone. TIA!
  7. kbdy
    Since the holidays coming up there are lots of festivities in school that involve food. Many of these things she obviously cannot have. So for T-day her class is having a cereal mixture for their festival. They are going to share in the mixing & passing out to each of their classmates & then eat their created feast. I asked the teacher if...
  8. kbdy
    I never thought about getting her blood checked again! We haven't had that checked since her initial blood test that came back positive. That's a much better thing to do!
  9. kbdy
    The bad thing is that she's been gluten-free for about 15mths. We were so diligent & for whatever reason, we just didn't double check. It's really bad that all 3 adults didn't check Just plain dumb. But, it's a mistake that we won't ever make again!
  10. kbdy
    Dh & I are so mad at ourselves. We had picked up what we thought was gluten-free pasta. It was in a case w/other gluten-free pasta, but it was next to regular pasta. Someone must've picked up a reg. & put it on the gluten-free side & we didn't even look at it. Poor dd was sooooo sick, my heart just ached for her. I wish it was me instead...
  11. kbdy
    Dd is gaining weight & isn't showing symptoms, so that's why I wondered. Do they do that to see if they're healing or is it just not necessary?
  12. kbdy
    My dd was dx'd just over a year ago. I'm wondering how often, if ever, would she need to go through the biopsy? My FIL has it done every year to see if there's any improvement in the villi.
  13. kbdy
    I picked up my girls from VBS this afternoon & on the way home ydd tells me that she's hungry b/c they lost her snack. I advised them of her having Celiac on the registration sheet, told both teachers & they said they understood the restrictions. I told them that I would bring her a snack each day so they didn't have to worry about it. Well...
  14. kbdy
    My dd (3.5) was dx'd about 5mths ago & has started preschool. They have snack each time & dd brings her own gluten-free snack. At first she was doing ok w/this, until another child had a birthday & brought in treats that she couldn't have. I do have a stash at the school of treats she can have if there is a birthday, so she did get a treat...
  15. kbdy
    Thank you all for the responses. I never thought that it might be associated w/pain And yes she's been gluten-free for about 2wks now. My kids are going on vacation w/my parents this weekend & it's gonna be tough b/c they don't have a kitchen where they're staying. Hopefully they will fully follow the gluten-free diet or dd is gonna be sick &...
  16. kbdy
    I have a call into them to see what they say, but they're not too familiar w/celiac either I weighed her this am & she seems to only be down about 1lb so about 26lbs. I'm hoping that one day she'll just be hungry & eat. I'm sure there's a period of adjustment to this diet. I just feel bad that she won't eat.
  17. kbdy
    We've tried all kinds of things with her, but she just doesn't want to eat. Unless you count Cheetos & Trix. I've made the Pamela's bread mix, tried crackers, pretzels, mac & cheese, pasta, pizza, (al gluten-free) she won't touch meat.. any kind of meat. Refusing cheese & milk. What do I do now? I know that the texture is different &...
  18. kbdy
    Thank you all for the extra info. Sounds like I have a lot of learning to do in a very short amount of time. I appreciate all the help
  19. kbdy
    I had posted yesterday on the kids/babies board about seeing a nutritionist, what a joke! I'm glad that some had responded about things to ask her... She gave me NO meal/dietary plan... told me to get dd to eat whatever she wanted that was gluten-free just to get her weight up (cheetos, pb, any snack that had fat) & then to worry about healthy things...
  20. kbdy
    Thank you for all of your advice. I hope that she knows what she's talking about, but I'm not certain yet. When I called she asked why we needed a nutritionist for a 3yr old, I said b/c of Celiac. She said, "well, does she have diabetes?" Ummm, no. Sooo, we'll have to see. Right now I have HMO to thank for this referral b/c they wouldn't let...
  21. kbdy
    Our dd was dx'd w/Celiac & we are seeing the Nutritionist tomorrow. What type of questions should we be asking? All this is very new to us & there is an overwhelming amount of info here! But that's good, I just need to find the time to get through it all! What is most helpful when seeing a nutritionist? TIA!
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