kevieb

ducky is right---the lady over the study says that they know there are other genes involved besides DQ2 and DQ8. they are trying to find out what they are. a good example of this would be the fact that with identical twins, if one has celiac the other has a 70-75% chance of getting celiac---but not a 100% chance. in our case, my identical twins both have...

my memory is going, i forgot i had posted about the frog eye salad! if my memory doesn't go on me again, i will look up the recipe and post it.

it has been such a long time since i have been on the board that i don't know if anyone will even remember me. the look of the board has changed since i was last here. we joined the celiac study that is being done at the university of california, irvine a year and a half ago. the results of the celiac tests confirmed what we already knew about our three...

i haven't been on here for a long time!!! we have moved and i have been pretty preoccupied with trying to adjust to the move----i cried every day for a month---and i was the one that pushed for the move??!! we have a bigger house, which is great, but we have a smaller yard and i think that is what is killing me. we still have a bigger yard than most houses...

IgA deficiency is a little more common in celiacs than it is in non-celiacs, but i don't know the figures. one of my children is IgA deficien----and registers at almost nothing. he does not have celiac disease, but he does carry one of the main genes for it. it used to seem like he had a cold all winter long, so i figured he must have allergies...

dr. fine believes that no one should consume dairy products----i think that is regardless of what test results you have. have you ever tried taking lactose supplements to see if it relieves the bloating and gas?

i have a son who is IgA deficient. he didn't just test low---his levels are almost non-existent. i think that there is a definite difference between being IgA deficient and having low IgA levels. since enterolab does not test IgA serum levels and dr. fine goes on and on saying he is going to publish---without ever publishing---i think you would be far...

aren't rotation diets supposed to be good for avoiding or managing food intolerances? (not food allergies)

were those numbers for antigliadin antibodies, or for Ttg antibodies?

some reflux babies have milk-soy protein intolerance that either causes or aggravates their reflux. when we first took my youngest to a ped gi for her reflux the first thing he did was food allergy testing to rule that out as a cause of her reflux. alot of babies have silent reflux and hardly ever spit up.

maybe start with food allergy testing. does your daughter have reflux?

we are involved in a celiac study through the university of california, irvine. i asked the woman that is over the study about all these so called gluten sensitive genes. she was not aware of any gluten sensitive genes besides the two that have been identified for celiac. she told me that they know there are more genes involved. i think that enterolab...

i'd recommend you have follow up blood work done-----this can really help to see how well you are doing with the gluten free diet. we check our girls' blood work about every 6 months, but we have done it sooner when the need arose. if it helps----there have been alot of us that have cried in the early days of diagnosis. one of my twins is going...

i think i'd start with food allergy testing and go from there. whoops!----i just looked at your post and saw that you've already done that. kids that age can get pretty wild just because they are kids---but i can understand your concern about the circles under they eyes.

HUH?????