brenda in northcarolina

Hi all,

I'm currently in the hospital with an inability to eat anything at all (even gluten-free foods), and my doctor told me that my small intestines narrow so much at one point, it is impossible for food to pass through. He says this is due to Celiac disease, and my recovery. Has anyone ever heard of this? I have to have surgery to correct this problem, and i'm pretty freaked out about it. Still, I haven't heard of anything like this...but I suppose celiac is a sneaky jerk-face sometimes.

Anyone?

HI, i see where you wrote that you are in the hospital with narrowing of the intestines is this common for celiac or just something that happened? i am recently diagonised with celiac and dont know much about it , by the way i hpoe you have a speedy recovery!

If celiac is all about the diet then why are we uninsurable are there more long term effects i should know about ? as I said i know almost nothing about celiac, i would love to know more ... where do you get your info? from a doctor or other health care provider? ther are no support groups whereI live I'm about 2 hrs from asheville [the biggest city].

When I left my job several months ago, I looked into private insurance, to see if it might be less expensive than going with my husband's plan at work. I went through an insurance broker who also has Celiac. She researched like crazy, and came up empty-handed. She said that with a Celiac diagnosis I was "uninsurable". So, the kids and I are on hubby's group plan. And the insurance broker (newly diagnosed) was not a happy camper either.

I'm sure that's not what you want to hear, but that was my experience. It seems so ridiculous. Although I have felt like hell a lot this past year, since my diagnosis, my medical costs are next to nothing. It's all about diet, as we all know, and allowing for healing to take place.

Good luck!!

Yeah I seem to be in fairly good health except for the celiac and everyone tells me it is inherited but i havent heard of anyone in the family with this disease i still know almost nothing about it except avoid a million diffrent foods, i have no insurance[ i lost it about the time i was diagonised] so i dont go to the doctor and since im from a small town i havent met anyone else with celiac i would love more info on this as far as the insurance goes i thought you had to be aware of a condition for it to be pre-exiting i really had no idea ... i have eaten ANYTHING i wanted for 20 plus yrs with no problems except an occassional tummy ache then bam im sooooo sick for 3months before bening told its celiac.

celiac disease is inherited - if that can be called pre-existing. I didn't notice it until I was 28,or so years old.I'm in pretty good health,but fatigue,and bone weakness,and our dietary needs have to be acknowledged and considered by others;I'm more paced and careful now that I know what I've got-I don't just run out and do all sorts,so it helps to be somewhat independent, financially and physically,from group constraints,where people don't have your same needs.

Health-Care wise , if they treat other conditions,espically diabetes , and other more severe and inherited disorders then why can't they treat Celiac Disease ? It's treatment is mostly dietary and through management , and I thought I read about something prescribed to make Celiac bones stronger,but I don't remember where or when I read it.

I don't think anyone told me to eat foods containing glutten i think it just happened over the years sort of like cancer bening in remission for 20 plus years i ate what ever i wanted nothing seemed to bother me then about 6 months ago it came back with avengance i had no idea what it was at first i just knew i was suddenly very sick, i don't know a single person that has this disease. i'm from a very small town and most people have never heard of celiac, any way i don't see how the insurance company can say i knew about having this when it hasen't botherd me in over 20 yrs. surely there must be something i can do!!

If there was a way you can prove a doctor told you that you could go back to eating gluten, that might help. It might have been a verbal thing, though. I imagine that unless you're still seeing the doctor you had as a kid, though, those records might be destroyed. Although, if your insurance knows that you were diagnosed as a kid, how did they find that out? How was diagnosis preformed as a kid? Biopsy? Blood test?

I was recently diagonised with celiac disease,I had this as a child but thought i had grown out of it.

6 months ago I began having severe stomach pain , enough to require pain meds. the doctors began testing for divertilosis, IBS etc , after the colonoscopy and bioposy celiac was confirmed. Now my insurance is saying this was pre-exting and are tryingto stick me with bills totaling more than 6 grand, any advice?

I'm from a very small town in nc there are NO doctors that specialize in or even familiar with celiac disease i feel so frustrated that i can't get information this disease much less a glutten free diet every thing i've read has come from the web site celiac.com