annamarie6655

Hi everyone, 

I don’t mean to use you all as my personal dumping ground, but the support I’ve seen on this forum is unlike anything I’ve ever experienced. 
 

So, my mother and I have always had a rocky relationship, but when I got diagnosed w celiacs, I thought we were now on the same team together. She started off saying things like “ We’re gonna figure this out together” or “I will always make sure you never have to worry about food with me” to telling my siblings that I’m not grateful enough and I don’t have a right to be upset when I get glutened bc I do so “purposefully”…

.. so I’m brand new to celiac and just learned I can’t just trust gluten-free labels unless it’s certified. I’ve been trying my best, and thanking everyone for being accommodating and trying to make things as painless as possible, so I just don’t understand. Should I be bending over backwards for people who accommodate me? Or just general gratefulness? 
 

This whole diagnosis has further ostracized me from my family and friends, and it’s really hard not to feel completely alone. I seriously appreciate any advice you have to share!

@trents

i am only taking collagen powder and Vitamin D, but I can definitely look into Magnesium, thank you! 
 

@Scott Adams 

thank you so much for your input! I will watch closer to how I’m reacting to xanthan/guar gum from now on. Are there any other common ingredients to be on the look out for?

23 hours ago, trents said:

As I suspected, xanthan gum is one of the ingredients. It is a polysaccharide used as a texturing agent in many gluten-free products. It's hard to digest and causes distress for many celiacs. I can't say for sure if that was the problem but you might be on the lookout for it in the future.

Muscle spasms can be caused by magnesium deficiency. Are you taking any vitamin and mineral supplements? I mean some things more potent than a multivitamin?

@trents thank you so much for your response!

 When i was diagnosed, I was exhibiting mainly joint pain, hair loss, bloating, and allodynia (painful feeling from non painful stimuli). The muscle spasms only started after diagnosis, and it seems to only happen when I am severely glutened. It’s only happened twice, but it definitely makes me nervous when it happens. 
 

In regard to the pizza, thats what i saw after i got sick from it. I’m still trying to figure out how to switch to ALL certified gluten-free goods. 
 

for the dressing, here is the ingredient list: 
WATER, VEGETABLE OIL, VINEGAR, SUGAR, GARLIC, SALT, RED BELL PEPPER, ONION, CONCENTRATED LEMON JUICE, XANTHAN GUM, POTASSIUM SORBATE, HERBS, CALCIUM DISODIUM EDTA, MONOACETIN, SPICES.

and the link: https://www.kraftheinz.com/en-CA/kraft/products/00068100903577-zesty-italian-salad-dressing

@trents thank you so much for your response!

 When i was diagnosed, I was exhibiting mainly joint pain, hair loss, bloating, and allodynia (painful feeling from non painful stimuli). The muscle spasms only started after diagnosis, and it seems to only happen when I am severely glutened. It’s only happened twice, but it definitely makes me nervous when it happens. 
 

In regard to the pizza, thats what i saw after i got sick from it. I’m still trying to figure out how to switch to ALL certified gluten-free goods. 
 

for the dressing, here is the ingredient list: 
WATER, VEGETABLE OIL, VINEGAR, SUGAR, GARLIC, SALT, RED BELL PEPPER, ONION, CONCENTRATED LEMON JUICE, XANTHAN GUM, POTASSIUM SORBATE, HERBS, CALCIUM DISODIUM EDTA, MONOACETIN, SPICES.

and the link: https://www.kraftheinz.com/en-CA/kraft/products/00068100903577-zesty-italian-salad-dressing

Hello, so I was diagnosed with Celiacs about 8 months ago. After being diagnosed, I have been trying very hard to maintain a completely gluten-free (and celiac safe) diet. 
Two of the main times I had a huge reaction, it was from:

- gluten-free Digiorno Pizza w Pepperoni

- Kraft Zesty Italian Dressing (this was in canada if that changes anything)

Both are marked as gluten-free. Following eating these items, I had a severe bout of diarrhea, uncontrollable and heavy muscle spasms throughout my whole body, and aching throughout every joint.
 

If these are both gluten-free, why would I be reacting to them? Should I be worried about a separate allergy?  In regards to the muscle spasms, should I follow up with someone about that?