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gffamily

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by gffamily

  1. gffamily
    Alison, I have requested that Noah and his family be added to our church's prayer chain. Our thoughts and prayers go out to all of you. Pam
  2. gffamily
    It's funny you mentioned Thanksgiving. I just spent 1/2 hour on the phone with my mom convincing her that all was not lost with Thanksgiving this year. She is completely overwhelmed by the whole thing and is conviced that it's too much for her to handle when we visit. Needless to say, I don't let on to her about the trouble I have with the diet. Good...
  3. gffamily
    Hathor, I sent you a message earlier because I noticed we have the same results, (I have egg sensitivity too, but haven't done anything about it yet.) Funny thing is I was trying to eat vegetarian most nights of the week - sort of a gradual thing to ease me and my familt into it - when I figurd out my daughter couldn't have soy. (she was diagnosed first...
  4. gffamily
    gfgypsyqueen, You gave me alot to think about. I think in general I need to have a better attitude about the ability of other people to be supportive. I find myself assuming often that people won't understand / won't care, so I find myself avoiding social things that involve food. It's something I'm going to have to get over though, because if there...
  5. gffamily
    Help. I need to find a way to make this more livable! There is a new gluten free bakery in my area, but because I am gluten, casein, soy, and yeast free, I don't think they'll be anything there for me. I don't ever go out to eat because even at the places with gluten free menu items, I don't think I can eat the food. For some reason it's just getting...
  6. gffamily
    I wonder if it couldn't be yeast??? When I got my enterolab results, I was sensitive to gluten, casein, soy, yeast and eggs. I couldn't handle eliminating everything at once, so I stopped eating the first three six months ago. However, bloating, gas and a constant burning in my throat remained. Then just 2 weeks ago I finally removed yeast, and the bloating...
  7. gffamily
    I've wondered that too, because my daughter reacts very quickly to casein, which I thought was more indicative of an allergy than an "intolerance". But, if I remember correctly, just because you have a sensitivity diagosed through stool testing, doesn't mean that you can't ALSO be allergic that food.
  8. gffamily
    I agree with Mayflowers and Zarfkitty. I understand that the gluten-free diet is for life, (although I am hoping that with the growing numbers of people having this problem, that research will be expanded and some kind of treatment will exist in the future). But what is the harm (literally) of every so often challenging ourselves with the other food issues...
  9. gffamily
    Holdiay16, I'm sorry to say that I don't know the answers to your questions, but my daughter and I also came back with other food sensitivites in addition to gluten when we tested through Enterolab. I haven't been able to figure out the nature of the other food sensitivities exactly, since information about allergies to these foods doesn't seem to apply...
  10. gffamily
    looked at the signature again... boy I really should just go back to bed
  11. gffamily
    Jesse, I'm sorry I wrote the wrong name! Spaced out again I guess...
  12. gffamily
    jdog, I live in the north hills. We buy Redbridge from McTeigh's on Route 8 in the Glenshaw area. My husband made a deal with the owner there who now stocks a couple cases, and we agreed to buy from him instead of pay $4 more a case from Save On Beer on McKnight road. (I think we pay $24 a case, but I could be wrong. My dh usually picks it up.) Anyway...
  13. gffamily
    Ok. Thanks for sharing all the info. I'm just trying to learn a little more about it. Sounds like it was really difficult to deal with, and I should just be thankful that my rash is mild, whatever it is. I'm sorry you had to go through all that, (and have an uncooperative/unknowledgeable dermatologist to boot!) Thanks for your thoughts.
  14. gffamily
    I've read about the rash being symmetrical. Mine is not. I wonder what it is??? The other thing the gp told me was that "it could be from some type of food intolerance". I apparently have sensitivity to yeast and eggs also and haven't cut them out yet. Maybe that'd help. By the way, how long after you went gluten-free did it take for your rash to...
  15. gffamily
    Thanks! My daughter DOES have a problem with soy, but I never thought about that with the chips because the nutritionist told us not to worry about soy oil or lecithin. I wonder if she IS reacting to those? Do you have reactions to soy lecithin too? What brands of chips do you buy?
  16. gffamily
    I'll put the name in my "celiac info" folder. Maybe I'll start a NO list for docs. I have a few I could add already. At first I wondered about bug bites too, because they sort of look like mosquito bites. I ruled that out though because when I started getting them it was winter, so I figured no bugs around. I do have 3 cats, but they all are 100% indoor...
  17. gffamily
    Lissa, You mentioned that you still get d. My daughter is gluten free, but whenever we have tried to give her potato chips she gets sick. I can't figure out why, maybe they run on the same lines as wheat products or something. We've had to switch to tortilla chips, and then we have to be careful about the brand. (We buy "Nana's Cocina" at Whole Foods...
  18. gffamily
    How frustrating! And I was going to ask you if you had a dermatologist in the area to recommend....hmmmm
  19. gffamily
    Nickydroo, I'm sorry that your daughter is sick, (I have a five year old daughter too who was diagnosed with gluten sensitivity last year after she became very sick.) It can be very scary, and frustrating trying to sort through all of the inconsistent information out there. You've come to a good place though. The people on this site are so knowledgeable...
  20. gffamily
    Thanks Pegster. I'm not sure if I'll go to the dermatologist or not. My rashes don't seem nearly as bad as other people's. The most i've had at a time is a cluster of 6-8. They itch badly, but don't bleed or burn. Maybe I'll go if it worsens. I guess I just tire at the idea of having to convince someone I have a problem. I had an appointment with...
  21. gffamily
    Hi, I was hoping someone could help me. I want to see the dermatologist to get the skin test for DH. (I found out I have gluten sensitivity, and one celiac gene, (and one for gluten sensitivity), after stool tests, but have never had a scope or blood test). I have been on a gluten-free diet for about 6 months, with a couple cc issues and accidental glutenings...
  22. gffamily
    I have not dealt with toiletries at all yet, except my daughters toothpaste which seemed OK. Are the ingredients you look for some of the same names you watch for in food??? Is your risk of getting glutened the same from topicals as it is from food? Is the necessity of cutting these products out still debated, or is it the consensus? Has anyone been glutened...
  23. gffamily
    Hi Kalikohl! It's great to *meet* people from the area! Do either of you know when the gluten-free bakery(ies)are supposed to open? I had heard only about the one in squirrel Hill. (It's called "Gluuteny" or something like that). By the way, have either of you had any contact with the local celiac support group? I considered contacting them for...
  24. gffamily
    Hi fiddle faddle! It's great to meet someone in the area who is familiar with all this stuff. I live in Glenshaw. Do you know the area? Maybe if I decide to go see a gastroenterologist I'll check into AGH then. I am not sure what I'll do, but I've been having joint pain, (hips), and I'm currently breastfeeding my son, so part of my concern is that 1...
  25. gffamily
    You know, I had gotten lazy about checking labels at times, and bought things labeled gluten-free without reading the ingredients. I guess I've learned my lesson. But I think Mango04 is absolutely right - if it has ANY amount of gluten containing ingredients, it should be labeled that way. When I first heard discussions about labeling, and the idea of...
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