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splash

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  • Gender
    Female
  • Location
    Washington, DC

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  1. I take New Chapter Organics Woman's One Daily. It is food-based and is the only vitamin I've tried that my body really absorbs. Unfortunately, the New Chapter prenatal vitamin contains oats even though it claims to be "naturally gluten free."
  2. I agree that 20 ppm is infinitessimal, but for now I'd be more comfortable eating a product that declares that the equipment used is gluten free than eating a product that is 20ppm gluten free but whose manufacturer is not willing to make the same declaration about its equipment. But I do thank you for clarifying the state of things! And to bring it full...
  3. I'm highly sensitive and have not had any trouble with Amy's products - they are some of my staple items. On the OTHER hand, Trader Joe's "Gluten Free" stocks and soups have made me very sick on many occasions. It has been a major problem because I'm often invited to dinner with family and friends that make a commendable effort to buy special ingredients...
  4. I really appreciate hearing these points. I have not baked much since going gluten free several years ago, and I definitely haven't shopped in a typical baking aisle recently. So I haven't had the experience but I can definitely visualize the serious frustration with having to purchase something covered in gluten. I'm also extremely sensitive and that...
  5. Just to add a little reminder to what I'm sure sounds like a fairly unhappy conversation: this diagnosis is GOOD news. Your wife has probably been experiencing confusing and frustrating, and possibly embarrassing symptoms for some time now. Many people go to the doctor and find out that they have permanent illnesses, or that they are doomed to taking medication...
  6. Many major grocers are taking up the trend of establishing a separate "Gluten Free Aisle" of the store. What does the celiac community think of this idea? As the author of the poll, I have to admit my own bias: while I'm delighted that grocers are making gluten free selections a priority, in the end I find it fairly inconvenient to finish my shopping with...
  7. Okay that is helpful - so if it takes 2 yrs for the gluten to get out of my system (and my skin) I don't need to start thinking something wacky is going on for at least another 6 months. Somehow that actually is comforting. It still does seem crazy, though, that new blisters keep appearing every day or so for several weeks on end. I just figured a "flare...
  8. I have been gluten free for 1.5 years and haven't had any major DH symptoms since I started the diet - until now. When I was a teenager I had the worst rashes on my hands, and at the time we thought it was "seasonal" (that seems hilarious now). It would mainly show up on my palms and between my fingers, itchy blisters either like heat blisters or deep below...
  9. My reactions to barley are much more delayed than for wheat. After eating wheat I'm usually very sick within the hour. Last week I ate a Nanna's cookie that I accidentally overlooked was "No Wheat" instead of "No Gluten" and halfway through wondered why it was so tasty - it was made of barley flour. Aside from some mild geographic tongue that evening,...
  10. PS I have been seeing a nutritionist, who has been a godsend to help me straighten out my symptoms and know how to listen to my body. It's the kind of help that doctors just don't know how to give. If you're in the DC area check out www.eatinpeace.com - Charlotte really knows what she's talking about and is a total angel!
  11. I tested negative on both blood test and gene test (I didn't even bother putting myself through the biopsy) but I have severe reactions any time I eat gluten, and the gluten-free diet after one year has changed my whole life. My genetic test showed that I have double DQ1, and apparently DQ1 in some countries is associated with gluten intolerance. They don...
  12. PS I was shocked that night that I ate the soy sauce (the tuna was drenched in it) that I didn't have a reaction right away. What's up with that??
  13. I've been gluten free for a year now. Stomach aches are my most noticeable symptom - once the reaction starts my stomach burns intensely and then within about 15 minutes I have urgent diarrhea. (Sorry for the graphics...) So it's pretty easy to tell that I've ingested something bad, but lately it has happened after a couple of possible culprits and I'm...
  14. As much as I would love to have Guinness for a week, it looks like it didn't take more than half a beer after all. I haven't had any skin problems since going gluten free, but last night I started to get a bunch of blisters on my hands and I'm not entirely GI-comfy right now even though that didn't come on all at once like it would with wheat. What I had...
  15. I'm double DQ1 and have had twitches under my eye a few times. I've now been gluten free for 8 months but they still come back sometimes and I can't tell if it's connected to accidental glutening. It never lasts more than a few hours for me. My mother, who must have at least one DQ1 since I'm double, had an eye twitch that lasted nonstop for two years...
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