Pegster

DH was actually a lucky diagnosis for me. A positive DH biopsy means you have Celiac disease and you need to cut gluten out of your diet completely. The rash will go away. Mine went away very quickly, but I still have flare ups after three years. I am thankful to have a definite diagnosis from my skin biopsy because so many people have intestinal difficulties...

I spent a week in the Tokyo area and had a lot of trouble eating out. I did have one meal at an OUTBACK and had lots of help at the Tokyo Disney resorts. Tokyo Disney Sea and Disneyland employees were extremely helpful and would provide a translator so I could speak to the chefs. I had great meals at Disney! However, outside of Disney was another story...

Yes. You need an active rash to be biopsied. My dermatologist had me come in when I had an actual blister so he could biopsy right next to it.

"My scalp bloomed gloriously with blisters" Now THAT is poetic...and very true!

I have DH and I get the blisters around my waistband. My dermatologist told me it probably wasn't dh but I know that it is. I also have a nickel allergy, but considering I don't have nickel anywhere near my waistband, I truly doubt that that is what it is. Do use a mild laundry detergent (scent free/ dye free etc.) to start with. If you are diagnosed with...

We go to LV about 2-3 times a year. We stay at Ballys or Paris usually. I have eaten lots of places and usually I get lots of help from the staff. I take my own muffins (from Kinninnick) for breakfast, and put cheese, rice crackers, fruit, etc. in a cooler in our room. We eat out once a day. There is an OUTBACK on the strip. I've done okay at the Paris...

My dh rash came and went for years without any kind of pattern. I was also diagnosed with many of the same things as your daughter and was given all sorts of creams and ointments. The rash (on my elbows mostly) would go away for a while and then show up again. It took people asking me what was wrong with my elbows before I went to a dermatologist instead...

My feeling is that dh can actually get worse for a while as the body is ridding itself of the gluten. Also, as you go gluten free, smaller and smaller amounts of gluten will cause a reaction. Watch for anti-inflammotory drugs- they can cause flare ups for some reason even if they are gluten-free. Also iodine can be a culprit. Now as for relief...I KNOW...

Well the good news is that you're committed to be gluten free with or without the official diagnosis, right? You may know in your heart that you have dh, but the doctor disagrees. Since the treatment for dh is to be on a gluten free diet, I guess it doesn't reallly matter if it's official or not. I have the opposite dilemma in that I have the dh diagnosis...

Franceen I feel your pain (and itch)! I'm glad you're clearing up. It's a miserable feeling to itch all day and night long.

Because my youngest is allergic to peanuts, we have always had to be careful in the kitchen. When I was diagnosed with celiac disease, the family just went along with the new routine. I don't cook or bake with gluten except the occasional holiday cake (my mixes are too expensive to share). I make pasta sauce and gluten-free pasta. If someone wants regular...

I had a chunk taken out of each elbow on a Friday afternoon. A few hours later I went on stage in a production of "Fiddler on the Roof." Opening number: Tradition! and I throw my arms up in the air. RIP! go the stitches. Alls well that ends well: two years later my scars are barely noticable!

Sawgrass: I was lucky in that my DH cleared up almost immediately. Unfortunately I get little random outbreaks every now and then, but rarely is it really terrible. I have been gluten-free for over two years now. Lindalee: I have had dh on my lower stomach, particularly on the sides around where the elastic is on bikini underwear. It's miserable...

Before my official diagnosis of dh, my dermatologist gave me that same cream, although in ointment form. It helps with the flare ups. Luckily it was the dermatologist who did the biopsies without even telling me what he suspected it was. When the biopsies came back positive for dh, he explained about the gluten issues and set me up with a GI dr (useless...

My racing heart and PVC's were linked to my underactive thyroid. I got the thyroid diagnosis and my Celiac diagnosis on the same day by different doctors! I'm on a beta blocker and my heart is calm now, except when I see Hugh Jackman.