Queener
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Queener
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ARCHIVED Help! Always Bloated
Queener replied to JessieFree's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Are you eating popcorn? I found that it bloats me up. I also have found I'm reacting negatively to soy in peanut butter and Nutella. (My way of making gluten free bread taste ok!). -
I think the only way your doc would have been able to tell you definitely that it was DH was with a punch biopsy - and believe me, after having those on my knee and top of my foot, you wouldn't want that done to your butt. By the way, I also get the DH bumps on my butt - weird, but usually right along the place where the two cheecks meet along the crack...
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ARCHIVED Is Nutella gluten-free?
Queener replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
I ate Nutella this morning on gluten free bread and had an immediate reaction - diarrhea, pain, lethergy, you know the drill. Bummer. I really like it. I may have an issue with soy. I began having problem with Jif peanut butter too which I never had before....??? Just when you think that you have found something to make that nasty bread taste ok...... -
ARCHIVED Lays Original-survey!
Queener replied to Arpita's topic in Gluten-Free Foods, Products, Shopping & Medications
I get glutened on Lays original and Wavy - but not stackables -- which are great! -
I don't get it. If you have Celiac Disease, I assume you are gluten-free. If you are truly gluten-free, I don't see why you would have a rash - if it is in fact DH. The treatment for DH is gluten-free diet....... I had only the DH symptoms and read enough to know that if I had DH, I was Celiac. I contacted Dr. Joseph Murray at Mayo to see if he would...
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Sounds like DH to me, however, most people don't have a reaction to external exposure to wheat unless extremely sensitive. My feet drive me crazy when I get a DH flare up -- itch like crazy.
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ARCHIVED Diagnosed With Dh Without Biopsy
Queener replied to LoriC's topic in Dermatitis Herpetiformis
You indicate that they have set you up with a gastro appt in October. If you are gluten free now, any test results will not test positive for Celiac (not sure about DH). Surprised your dermatologist didn't do a punch biopsy of your rash - this must be done when you have the rash - they test skin right next to the rash (ouch by the way!!). -
I can't imagine he "mis-diagnosed" you without a blood test???
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Giving up pasta and beer were extremely difficult for me, but after reading about all incredibly increased risk of many types of CANCER, I gave it up without a thought. Do some research - print it out and let your daughter and family read it -- what's worse - giving up pizza or having cancer???
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ARCHIVED I Need To Have A Skin Biopsy
Queener replied to sickchick's topic in Dermatitis Herpetiformis
fyi - I have DH and was diagnosed by Dr. Joseph Murray at the Mayo Clinic - a very well known expert in the field of Celiac research. He had a Mayo dermatologist take a punch biopsy of my rash and said that if it came back positive for DH, then it was a certainty that I had Celiac Disease and the endoscope would not be required for diagnosis of Celiac Disease... -
Isn't Dr. Murray wonderful?! About 2 yrs ago I started having rash on elbows, knees and ankles.... painful, itchy - gave me scars cuz I scratched so much. I went to my MD and he sent me to a dertmatologist. The derm looked like Doogie Howser (12 yrs old). He had no clue. I went home and just itched off and on. I had no gut problems whatsoever - other...