dinali63

Thank you for the replies! The tea is an English brand PG tips. I had it in England a couple of years ago before my diagnosis and really liked it. I found it in the grocery store here, and thought it would be safe. It makes sense that it could be something in the manufacturing process. I tried to call the company but didn't get through. I sent an...

Hi! I was diagnosed with celiac over one year ago and have been feeling pretty well. However, in the past week, I've gotten severe gastrointestinal symptoms that today have me staying in the house. The only difference in my diet is that I tried a new black tea. Can black tea (not flavored) contain gluten? I saw a nutritionist in NY that told me I would...

I just saw your posting and wanted to add that my family and I travel to Disneyworld at least twice a year. Both my son and I have celiac disease and Disney is wonderful! Any restaurant on any Disney property will work with you (even on Disney's Boardwalk property). I would suggest telling the server that you would like to speak with the chef because your...

I am vacationing in the Berkshires and went to dinner at Spice in Pittsfield, MA. What a wonderful experience! We called ahead and were told that gluten free was no problem to accomodate. When our server came to the table, she asked who had the gluten allergy and I told her that it was my son and me. She then told me to choose what I wanted from the menu...

I wanted to mention that there's a fantastic gluten free bakery on Siesta Key....right behind Capt. Curt's restaurant. It's called Island Ice cream and Gluten free bakery and their desserts and breads are delicious. The key lime pie is the best I've ever tasted! The only ice cream that's gluten free is vanilla, but all their baked goods are gluten free...

I'm pretty new at all this too, but definitely when I get glutened the reaction has become stronger and the one time it happened recently, I vomited the food that I thought could have been glutened. I ate at a restaurant that had a gluten free menu, but the food must have been cross contaminated. I started feeling ill about a 1/2 hour after eating and felt...

Hi! I just read your post and I know this was suggested, but I wanted to let you know that I had a really hard time myself, with a lot of gluten free items, because they contained soy. I've found that I'm intolerant of any type of soy including soy lecithin. You have to be careful with cookies that contain soy flour and salad dressings that contain soy...

Just wanted to share my recent experience too......I have celiac disease that was diagnosed with blood work and biopsies. My son who's six, was diagnosed with lactose intolerance with the breath test in August. He's also soy intolerant which we figured out when we took him off dairy. I am now suspecting celiac or gluten intolerance with him, because of...

I am from the northeast, but visit relatives in Sarasota at least 3 times a year (would love to move there). I was recently diagnosed with celiac disease and thought I'd have so much trouble finding places to eat while visiting the Sarasota area. I was so wrong! Thank you for posting the info about the support group in the area. Now, I'm really looking...

My son was diagnosed as lactose intolerant in September and we are now waiting for the biopsy because the doctors suspect celiac (I was diagnosed in June with celiac and I'm also lactose intolerant and soy intolerant). After taking my son off dairy, we gave him soy and he developed violent diarrhea from it. Maybe it's the soymilk for your daughter? We...

I also had low Vitamin D levels and positive blood work (my numbers were just slightly out of range). I then had the endoscopy which showed some damage to the villi in the small intestine. I was only diagnosed in June, and have strictly adhered to the diet. I have now determined that I cannot have soy either (I also steer clear of dairy). Since I have...

Thank you for sharing. My son's gastroenterologist is suggesting both to be done, because of his severe diarrhea. He's also grown an inch since the beginning of August , but lost two pounds in weight. She said she wanted to rule out colitis, IBD, IBS, crohns. I do think that there are risks to these procedures and my husband and I are still discussing...

Thank you for all these great posts! All this great information gave me a lot to talk about with my son's pediatrician and the specialist today. They answered my questions and gave me good reasons for making sure that we get to the answers for why he's having these problems. The specialist has two children with celiac, and she was very sympathetic to my...

I'm new to this forum. I was diagnosed with celiac disease 4 months ago...both my blood tests and biopsy were positive. I have suffered for years not knowing what it was, and I'm finally feeling better. With my diagnosis I have so much more knowledge that I'm now having a hard time figuring out what to do for my son. He is six and has always had ...

I was diagnosed with celiac disease and have been on a gluten free diet for a little over three months. At first I did a lot better on the diet and was feeling great, then I started having the same kind of stomach pains. I posted last week, and got some great suggestions, and on Monday cut out soy from my diet (I realized that many of the prepared items...