Jump to content

dinali63

Advanced Members
 View Profile  See their activity

  • Posts

    23

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dinali63

  1. dinali63
    Thank you for the replies! The tea is an English brand PG tips. I had it in England a couple of years ago before my diagnosis and really liked it. I found it in the grocery store here, and thought it would be safe. It makes sense that it could be something in the manufacturing process. I tried to call the company but didn't get through. I sent an...
  2. dinali63
    Hi! I was diagnosed with celiac over one year ago and have been feeling pretty well. However, in the past week, I've gotten severe gastrointestinal symptoms that today have me staying in the house. The only difference in my diet is that I tried a new black tea. Can black tea (not flavored) contain gluten? I saw a nutritionist in NY that told me I would...
  3. dinali63
    I just saw your posting and wanted to add that my family and I travel to Disneyworld at least twice a year. Both my son and I have celiac disease and Disney is wonderful! Any restaurant on any Disney property will work with you (even on Disney's Boardwalk property). I would suggest telling the server that you would like to speak with the chef because your...
  4. dinali63
    I am vacationing in the Berkshires and went to dinner at Spice in Pittsfield, MA. What a wonderful experience! We called ahead and were told that gluten free was no problem to accomodate. When our server came to the table, she asked who had the gluten allergy and I told her that it was my son and me. She then told me to choose what I wanted from the menu...
  5. dinali63
    I wanted to mention that there's a fantastic gluten free bakery on Siesta Key....right behind Capt. Curt's restaurant. It's called Island Ice cream and Gluten free bakery and their desserts and breads are delicious. The key lime pie is the best I've ever tasted! The only ice cream that's gluten free is vanilla, but all their baked goods are gluten free...
  6. dinali63
    I'm pretty new at all this too, but definitely when I get glutened the reaction has become stronger and the one time it happened recently, I vomited the food that I thought could have been glutened. I ate at a restaurant that had a gluten free menu, but the food must have been cross contaminated. I started feeling ill about a 1/2 hour after eating and felt...
  7. dinali63
    Hi! I just read your post and I know this was suggested, but I wanted to let you know that I had a really hard time myself, with a lot of gluten free items, because they contained soy. I've found that I'm intolerant of any type of soy including soy lecithin. You have to be careful with cookies that contain soy flour and salad dressings that contain soy...
  8. dinali63
    Just wanted to share my recent experience too......I have celiac disease that was diagnosed with blood work and biopsies. My son who's six, was diagnosed with lactose intolerance with the breath test in August. He's also soy intolerant which we figured out when we took him off dairy. I am now suspecting celiac or gluten intolerance with him, because of...
  9. dinali63
    I am from the northeast, but visit relatives in Sarasota at least 3 times a year (would love to move there). I was recently diagnosed with celiac disease and thought I'd have so much trouble finding places to eat while visiting the Sarasota area. I was so wrong! Thank you for posting the info about the support group in the area. Now, I'm really looking...
  10. dinali63
    My son was diagnosed as lactose intolerant in September and we are now waiting for the biopsy because the doctors suspect celiac (I was diagnosed in June with celiac and I'm also lactose intolerant and soy intolerant). After taking my son off dairy, we gave him soy and he developed violent diarrhea from it. Maybe it's the soymilk for your daughter? We...
  11. dinali63
    I also had low Vitamin D levels and positive blood work (my numbers were just slightly out of range). I then had the endoscopy which showed some damage to the villi in the small intestine. I was only diagnosed in June, and have strictly adhered to the diet. I have now determined that I cannot have soy either (I also steer clear of dairy). Since I have...
  12. dinali63
    Thank you for sharing. My son's gastroenterologist is suggesting both to be done, because of his severe diarrhea. He's also grown an inch since the beginning of August , but lost two pounds in weight. She said she wanted to rule out colitis, IBD, IBS, crohns. I do think that there are risks to these procedures and my husband and I are still discussing...
  13. dinali63
    Thank you for all these great posts! All this great information gave me a lot to talk about with my son's pediatrician and the specialist today. They answered my questions and gave me good reasons for making sure that we get to the answers for why he's having these problems. The specialist has two children with celiac, and she was very sympathetic to my...
  14. dinali63
    I'm new to this forum. I was diagnosed with celiac disease 4 months ago...both my blood tests and biopsy were positive. I have suffered for years not knowing what it was, and I'm finally feeling better. With my diagnosis I have so much more knowledge that I'm now having a hard time figuring out what to do for my son. He is six and has always had ...
  15. dinali63
    I was diagnosed with celiac disease and have been on a gluten free diet for a little over three months. At first I did a lot better on the diet and was feeling great, then I started having the same kind of stomach pains. I posted last week, and got some great suggestions, and on Monday cut out soy from my diet (I realized that many of the prepared items...
  16. dinali63
    I'm new to the board, and newly diagnosed. It's hard and at times I feel alone too. Try and get yourself surrounded by people who support you and although you can't expect others not to eat things that you can't, there are still people out there who will care. Where I work, there was one woman who was insulted that I didn't eat her dish she brought in...
  17. dinali63
    I am newly diagnosed with celiac and thought that I would feel SOOO much better without gluten in my diet. I did, and then started to have the same bloating and stomach pains. I then cut out dairy. Felt a bit better, but still had stomach pains. So, now, after posting on this site a couple of days ago, with the help of others that posted, it was suggested...
  18. dinali63
    Just wondering where you can buy the item? I just checked the label of my ricemilk and I'm wondering if I'm reacting to the soy lecithin and Natural flavors listed. I had a severe GI reaction to soy milk in the past. It would be nice to find a milk substitute I can tolerate.
  19. dinali63
    Well, I went straight to the rice milk container and found it was labeled gluten free and enriched on the front (which is why I was so excited and picked it up), but I didn't look that closely at the other ingredients.........which included soy lecithin and natural flavors! I had tried soy milk before this, but ended up in the bathroom for two days. ...
  20. dinali63
    What about rice milk? Have you found that to be ok? I did have a reaction to soy......what a disappointment. I haven't looked at casein, but was just cutting out the lactose. I'll try that too. I think that the answer will be to start out with a VERY limited diet and add in.
  21. dinali63
    Wow! Why is it that doctor's give you this diagnosis and just send you out the door with no information?! This list has given me a good place to start.....a bit overwhelming, but I just want to get rid of this daily stomach pain. I guess I'm going to have to become very creative in the kitchen. My family has been really good about all this and we have...
  22. dinali63
    Thank you for the advice. This is all so new to me and I'm just realizing how important it is to have a support group to learn from. I realized I had been eating a lot more nuts recently since it was suggested by my nutritionist in order to get enough protein. That will be the first item to go! Thanks again!
  23. dinali63
    I was recently diagnosed with celiac disease and have been on a gluten free diet for 3 months. I thought I'd start to feel so much better.........but instead slowly came to realize that I'm definitely lactose intolerant. I've cut out all lactose for a week but I'm still having stomach pain and bloating at times after eating. Is this common? How do I go...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.