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Trillian

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Trillian

  1. Trillian
    I'm shocked that they did a DEXA on your 5yo. DEXAs are not reliable on people under the age of 35 because they compare your results against a healthy 30 yo female. Obviously your daughter will have much lower density than a 30yo because she is still growing. The scores that are compared are called T values. Her Z-scores are measurements against other people...
  2. Trillian
    I had negative blood work and biopsy, but my GI and PCP doctors confirmed Celiac based on several things: I have persistent anemia, I have osteoporosis and had 3 fractures in the past 3.5 years, I have lots of other secondary symptoms of Celiac, and I improved dramatically after starting the gluten-free diet. I am also frustrated that my official tests...
  3. Trillian
    I've heard about other intolerances mentioned here and there on this forum. Also, I've heard that they just kind of appear after you've been gluten-free for months or years. That totally sucks. If you have one (or more) how did you discover the second intolerance? If I'm reading correctly, you get better on the gluten-free diet for a while, then your intestines...
  4. Trillian
    Grommet, I was shocked that my eczema and headaches went away so quickly after starting the diet. The secondary issues went away more quickly than the gastrointestinal problems. My skin cleared, headaches and joint pain got better, sinuses cleared up, etc. I was taking all kinds of meds for those and came off the meds quickly after starting the diet...
  5. Trillian
    Hathor, My husband doesn't doubt... and I feel so much better now. I'm going to forgo the Enterolab unless something else pops up and I need to find out if I have another intolerance. I'm crossing my fingers that I don't develop a soy/casien problem. I'm amazed that there are people on this forum who develop other intolerances AFTER they go gluten-free...
  6. Trillian
    Hathor, I read on this forum that Enterolab almost always produces positive results - even in people without Celiac. Have you heard this? Besides this, I know that it is really expensive. I'm not sure if insurance covers it. I'll have to do more research. It would give me a sense of validation. Thank you for the suggestion!
  7. Trillian
    Raven, I've been to neurologists, physical therapists, endocrinologists, etc. - just as I've read that a lot of people on this forum have... I'm lucky I only have anemia and osteoporosis and not another autoimmune disease. I'm so sorry you have to accommodate for that because, I guess, that you weren't diagnosed with celiac early enough. I've been trying...
  8. Trillian
    Fiddle-faddle, With all the other diseases, life insurance is beyond reach anyway. Celiac would just add to it. I'm so overwhelmed right now thinking about how Celiac may have caused my other health issues and (here's that big IF statement), if we had caught it in time, I wouldn't have so many other things wrong with me and I'd be able to get life insurance...
  9. Trillian
    Liz, WOW, I had no idea that gluten could affect kidneys. I have a list of health related problems that have cleared up in the last two months, and I'm still in the stunned-phase. I can't believe, after all these years of going to various doctors, that my neurological, allergy, and pain issues have connections to my diet and have significantly improved...
  10. Trillian
    Testy, Mostly I was hoping they'd at least tell me if it was Celiac compared to gluten intolerance because of the negative tests - there's such a big difference health-wise. But they ignored my suggestion of gluten intolerance as if it wasn't a viable suggestion. I suppose I'll be totally convinced if the anemia and osteoporosis clears up.
  11. Trillian
    Susie, I got the diagnosis, but I do feel lost at this point. It's nice to have a confirmation and have the doctors assure me that my anemia and osteoporosis will clear up as I stop eating gluten (I'm gluten free 2 months now! Yeah!). But they just leave me hanging after the diagnosis. I've gotten most of my info about living with celiac from this forum...
  12. Trillian
    Raven, I've poured over so many postings on this site and I'll agree that I've got a good team of doctors. I'm happy to hear that you came to the diagnosis the same way I did. I guess it gives me a sense of validation. Thank you for taking time to reply.
  13. Trillian
    I know this goes against what most people preach on this forum and I'm not looking to get my hand slapped... I've been sick with a lot of traditional Celiac symptoms for years and have had lots of secondary diagnoses: eczema, gerd, migraine, constipation, bone pain, hives, year round allergies, lactose intolerance, etc. And I also have larger problems...
  14. Trillian
  15. Trillian

    ARCHIVED Changes

    Trillian replied to Kaycee's topic in Board/Forum Technical Help

    I always noticed the ads before... they're how I'm learning that there's more to the celiac diet than plain salad, rice, and chicken. I think they didn't stand out as much before because the background was faded and the postings were the highlight of the pages. I like the advertisements for the same reason as another poster said - the ads give us the...
  16. Trillian
    I'm quite sure that this would be a good suggestion for the corporate headquarters. Explain celiac (and its prevalence) and mention other intolerances/allergies that might benefit from the separate utensils idea. It just takes one person to suggest something like this... maybe they never thought of it before. I haven't tried Noodles... what can a celiac...
  17. Trillian
    I'm also in Colorado and tried Chipotle with the same bad experience. In Denver we've got a high percentage of Spanish-speakers and a lot of them work in food service industry. Not only in fast-food, which I avoid because most have gluten flying all over the place, but also in "regular" restaurants - back in the kitchen. Although your server might write down...
  18. Trillian
    It is very important to note that most major mental illnesses are biological in origin and due to chemical imbalances in the brain. The imbalances do not fix themselves and must be managed with medication. Food intolerance may worsen mental illness and changing diet may improve mental illness symptoms, but if a person suffers from a chemical imbalance they...
  19. Trillian
    Thanksgiving is my favorite holiday. It's my favorite foods... and time with family without the stress of presents. I always spend Wednesday cooking with my mom, and now that my daughter is old enough, she spends it with us, polishing silver and getting the china ready for the family to converge on my mom's house for Thursday. It's a special time for our...
  20. Trillian
    Thank you all for your responses. I guess I was a little dejected that I didn't get a clear answer. I'll eat my favorites with joy - and check the label regularly. Thank you again...
  21. Trillian
    I've recently started the gluten-free diet and have heard that I should phone or email companies when I want a true report if their product contains gluten. So I've started doing that. I emailed M&M's Mars company just to be sure that M&Ms are safe because I've gotten conflicting reports... (somebody said they coat their blue ones in flour and...
  22. Trillian
    Andy, I'm here to commiserate. I've been gluten-free for 6 weeks and sometimes (not always) my mental health feels out-of-sorts and my body feels heavy or coming loose at the seams. It's different than feeling sad or mad about giving up gluten (which I definitely am sometimes). Perhaps I'm being inadvertently glutened, but I doubt it since I threw out...
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