Jump to content

Worriedtodeath

Advanced Members
 View Profile  See their activity

  • Posts

    209

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Worriedtodeath

  1. Worriedtodeath
    HI Matt!!!! We just went gluten free yesterday with all three kids, 19 months, 7years, and 10 years. While I am just starting out on gluten-free kids, let me tell you what I have discovered so far. Wheat is in everything! I've been reading baby food labels (she likes it) and wheat is everywhere!! Read those labels. Better yet make your own. ...
  2. Worriedtodeath
    HI! I just recieved the blood work on the three kids and I can't figure out which numbers are the ones to pay attention to. The test was a celiac panel by Prometheus Labs -----------------------------------------------------------------------------------------2nd test------------------1st test for baby assay result-----------------------kid 1(10 years...
  3. Worriedtodeath
    HI All! I normally make up a month of menus - breakfast, lunch, dinner . It keeps me from serving the same ole same ole as well as cuts down on time (I can see if I need to boil a couple of chickens at once instead of one chicken two different times) I'll make out my Jan list in the next couple of days and realized we are going gluten free Jan 11 after...
  4. Worriedtodeath
    HI! WE are still in the process of getting an "offical" dx of Celiac. My daughter is 18 months old and goes for her biopsy next month. That will determine if we proceed as Celiac or Non Celiac gluten senstive (I know same treatment either way. My hubby wants the test) We noticed symptoms around 12 months of age. Around that time, we put her back...
  5. Worriedtodeath

    ARCHIVED Good Drs

    Worriedtodeath posted a topic in Doctors

    We've been struggling with my 18 month since her 12 month well check. I've posted elsewhere about her. From the beginning the ped who is close to retirement but is the leading ped in her practice and oversees the drs and staff has said Celiac even with neg blood work. We have a biopsy scheduled in Jan and even if it comes back neg (or inclusive since she...
  6. Worriedtodeath
    Forgot to say concerning your question - Our ped gi stated the diet trials alone convinced him my daughter has full blown Celiac even if she never gets a positive biopsy. He felt that many kids have all the signs and symptoms before the damage occurs enough to get a positive. The disease is patchy, the small intenstine 22 feet and he's only testing a few...
  7. Worriedtodeath
    HI! No answers here but we are in the same boat just with a much younger child. She gets her biopsy next month at 19 months of age and has had problems since 12 months of age. Negative blood work. Ped feels due to her age that the biospy will not be positive but that doesn't rule out Celiac. Just means she hasn't been sick long enough or severe enough...
  8. Worriedtodeath
    WHat brand vanilla do ya'll use? I picked up some and realized oh that has it too. ALong with sausage, hot dogs, and cream of chicken!!!! I get the meat stuff but vanilla and cream of chicken?? What brands do you use or what do you substitute for the vanilla and cream of chicken?? Thanks stacie
  9. Worriedtodeath
    HI! How much did your kids grow after going gluten-free and how old where they when you started gluten-free? I'm wondering just how much my 10 year old would grow if he went gluten-free. I suspect ,since dealing with all the baby's problem, he is also Celiac. Both boys had almost identical problems to hers except they never slipped off of...
  10. Worriedtodeath
    So for those of you who are a complete gluten free family, what do you have in your pantry? I was looking at my cabinets thinking what should i have in here as my"stock" , those items you have to have to cook a meal with? What basics do you always have on hand for 3 kids (10y, 7y, 18m) as "quickie" snacks? So how do you have your pantry set up? And...
  11. Worriedtodeath
    THanks everyone! We decided to go with it just in case it is something else. It's just with her so young, even the drs agree a positive will be hard to get. BUt even with out, she will still have to go without wheat. THat should do a lot of improvement but at least if we don't get a positive, the drs will feel that nothing has been overlooked and can...
  12. Worriedtodeath
    HI! Funnything is she doesn't look sick or ill. Other than circles under her eyes. She's the same as she was at her well check just skinnier. She has that big belly with skinny arms/legs and you can see every rib. She even managed to grow 1/2". My sibilings and I were like this. We grew, we were skinny skeletons, and we stayed in the bathroom. If...
  13. Worriedtodeath
    HI! Just left the peds office this morning. My ped seems to be very up on Celiac and raised the question of it from the day symptoms appeared. We had our gi visit monday and today we discussed her thoughts on the biopsy he wants. For background, my 18 m presented around 10-12 months, it was caught at the 12 months visit. We eliminated everything but...
  14. Worriedtodeath
    Not only is she not the only in SC She's not the only one in ELGIN!!! We are just getting started on this path but have all ready figured out that the boys have been missed all these years. Stacie
  15. Worriedtodeath
    HI! We only eat wheat around here so other than "hidden" gluten, taking out wheat elimanates it for us. After she was so sick in June, we fed her fruit/veggies and the improvement was like night and day. Thus we thought food allergy and when we gave her cheerios and pasta again took her for allergy testing when the bowels went crazy again. He said...
  16. Worriedtodeath
    HI!! Our 18 month old is considered to have Celiac even though her blood test was neg. After receiving the neg, we did food trials thru the allergist and discovered that she can not handle wheat. She will be removed from wheat with approval from her ped, ped gi, and allergist as it is causing diaherra, failure to thrive etc. The ped gi feels postive...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.